I have Mystaina Gravis but I really don't know what the symptoms
I was diagnosed with Mystaina Gravis in 2018 along with Lupus , Rhumitoi Arthritis, Neuropathy, fibromyalgia, I had my Thyroid Radiated and other Autoimmune problems and I have Ceszers I did 3 test to make sure there was no false positives. My doctor put me on medication, don't see any difference. I was sleeping and still sleeping 18 to 20 hours a day. COVID hit We lost our apartment became homeless for four years. 2 months ago I got and apartment and trying to get a primary but the only openings is September 10 and I made the appointment last month I don't know any symptoms is caused by this desaase. All I know is I have the droopy eye. I would like to know and hear people stories so I can figure out
Hi there! The world of myasthenia gravis treatments is vast and offers many options. Even if you've tried something in the past that didn't yield the desired results, remember there's always hope for improvement. We're delighted to hear about your new apartment.
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A primary care physician, although great to oversee all your medical conditions and treatment, will only sometimes treat or prescribe something for myasthenia gravis (MG). We strongly encourage you to book an appointment with an MG specialist as soon as possible because it can take an average of 2 months to get in for an appointment. https://myasthenia-gravis.com/living/finding-doctor-specialists. Because you have just the droopy eye symptom, you have ocular MG, which is the weakness of the eye muscles. Still, it can progress to generalized MG, which is the weakness of multiple muscle groups in the body. You may realize that this has already occurred to some degree. You could try to schedule with a neuro-ophthalmologist who treats diseases that affect the function of the nerves and muscles of the eye, or some people go ahead and schedule with a neurologist or neuromuscular specialist who specializes in treating diseases of the nervous system like MG so they can continue with that doctor if their MG progresses from ocular to generalized, https://myasthenia-gravis.com/doctor. If you are in America, this is a good page where you can start your search for MG specialists: https://myasthenia.org/Partners-in-MG-Care?fbclid=IwAR15QEvIG-1-RpvDB-nZ5Y8OkGXiQ91HIQD9laIvq9Meo27jSSTqYkISp3Y.
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Here is a great article that discusses MG symptoms: https://myasthenia-gravis.com/symptoms
- Jodi, Team Member
