No Neurologists That Treat MG Where I Live

I was first diagnosed with MG 5 years ago when I had double vision in both eyes. I also had weakness in my limbs, and held my head in a left tilt. I would choke on a dime, or liquid would come out of my nose when I tried to swallow.

All my tests were negative. Yet the neurologist only tested me once. Even though my symptoms increased in intensity, he told me I did not have MG. I live in southern Alabama, and there are absolutely NO neurologists who treat MG.

I went to an ocular neurologist and an ocular physical therapist. Both the physical therapists and the ocular neurologist disagreed with the first neurologist. They definitely feel that I have ocular MG. If you could see the number of prisms in my glasses, you would probably agree. I have terrible balance issues, and at 68, I am so terrified of falling. I also have Hashimoto’s thyroid disease, narcolepsy, and a lot more that I won’t go into.

It’s hard to be told NO you don’t ~ then YES you do! Finding a doctor who can help is heartbreaking, so you just take it one day at a time.

Does anyone else live in an area without doctors who treat MG? What did you do?