Vyvgart

I am set to start Vyvgart Sept 14th. I am hoping this will be the “one”!! I have been doing Ultomeris but just can’t feel better, moving on to see if something else might work.

I had a very similar experience point by point down to the hospital stay.
Starting on Vyvgart in a week or so. I got COVID 18 months ago (mild case) then two reverse shoulder replacements and then the MG. I'm 79 and doing pretty darn good on just the Mestinon at this point.

I had two sets (4 weekly IVs each) of Vyvgart treatment in 2023, after I was diagnosed with MG in 2022. Two days after the last Vyvgart IV, I felt totally normal. The diagnosis for MG came after I had COVID; my neurologist thinks they are related.

I was in the hospital for 3 weeks, followed by rehab for another week. My MG started with one eye nearly closing, and then not being able to swallow, along with slurred speech. Getting a diagnosis was difficult; most doctors in ER thought I had had a stroke. (I was 80 years old at the time.)

I was put on a ventilator for five days and still could not swallow. After I was put on Mestinon and Prednisone, my ability to swallow came back, even though I had lost 33 lbs.

I feel quite normal most days, thanks to the Prednisone and Mestinon. Diarrhea happens once or twice a week (most annoying) - probably from the Mestinon. It's a small price to pay, though, for feeling mostly OK. I'm just very grateful that I didn't acquire this dreadful disease when I was younger