The Ripple Effect of Advocacy: Celebrating Rare Disease Day® and BeyondAs we mark another Rare Disease Day®, celebrated globally on the last day of February, it's a time for reflection on the journey of advocacy, connection, and empowerment that many...Reactions0reactionsComments0 comments
What MG Pain is to Me and How I Deal with ItI know there are many of us with myasthenia gravis (MG) that suffer with muscle pain. I don’t necessarily want to talk about how much pain I have, since pain...Reactions0reactionsComments5 comments
Coping with MG When You’re Not ReligiousMyasthenia gravis (MG) is a unique disease by nature, but it is also a unique perceived experience due to many factors, such as social circumstances, living situations, mental health, financial...Reactions0reactionsComments3 comments
Pacing Yourself, Pushing Yourself: Managing Energy With a Rare DiseaseEditor's Note: This article was written by Natalie Abbott and originally appeared on our partner site RareDisease.net. I am beginning this article on my commute train to work, starting another...Reactions0reactionsComments1 comments
Aging Gracefully with Myasthenia GravisMyasthenia gravis (MG) has not been studied sufficiently in older adults. But, more and more often, MG is being found in the older population. In fact, my diagnosis came just...Reactions0reactionsComments0 comments
Yoga Doesn’t Cure My Autoimmune DiseasesEditor's Note: This article was written by Jessica Hanson and originally appeared on our partner site RareDisease.net. "Oh, you have XYZ disease? Have you tried yoga?" Wow, if I had...Reactions0reactionsComments1 comments
I Wish Society Was More Community OrientedIn the age of technology and capitalism, most adults live independently of each other. Sure, many of us live with others under one roof. But do we depend on each...Reactions0reactionsComments0 comments
MG and DiabetesThere is a complex link between myasthenia gravis (MG) and type 2 diabetes. The body’s immune system plays a role in both MG and diabetes. Research suggests that people with...Reactions0reactionsComments4 comments
My Emotions, Stress, and MGRecently, I had a health crisis. While I was in the hospital, my husband fell and broke his ankle. During most of the time he was healing, we were staying...Reactions0reactionsComments12 comments
I Figured Out How to Store My Extra MestinonAs many of us with myasthenia gravis (MG) know, Mestinon (pyridostigmine) is very sensitive to temperature and humidity. My prescription currently reads 120 milligrams every 3 hours while awake. Now...Reactions0reactionsComments4 comments
The Gut Microbiome and MG ConnectionThere are trillions of tiny living things that exist on or in your body. These tiny living things are called microbes because they can only be seen under a microscope...Reactions0reactionsComments4 comments
MG Medication and Navigating the "Donut Hole"I’ve been on mycophenolate mofetil (generic of CellCept) for myasthenia gravis (MG) for several years now. I’ve never had an issue with getting any of my medication, but this past...Reactions0reactionsComments10 comments
Avoiding New Diagnoses and Routine HealthcareI have a dilemma. I put my focus and energy into staying on top of my myasthenia gravis (MG) healthcare. But then consequently, I lose focus on other aspects of...Reactions0reactionsComments9 comments
Managing MG Pain With Holistic and Complementary TherapiesMany people with myasthenia gravis (MG) experience pain. MG can cause muscle weakness, which in turn may cause pain. This can greatly affect your quality of life and make everyday...Reactions0reactionsComments1 comments
I Can be Rebuilt: Cataract SurgeryAs a kid I remember watching TV shows about people being rebuilt bionically. Now here I am, cataract surgery in both eyes, getting shots in my lumbar and cervical spine...Reactions0reactionsComments0 comments
Inclusivity and Rare Diseases: 6 Things for Friends and Family to ConsiderEditor's Note: This article was written by Jessica Hanson and originally appeared on our partner site RareDisease.net. Social situations can be very difficult to navigate with a rare disease or...Reactions0reactionsComments0 comments
My Animal Testing Morals and Myasthenia Gravis: Finding PeaceAlmost everyone will require medical treatment at some point throughout life. But for those like me, who have strong values in support of a cruelty-free world, it creates a moral...Reactions0reactionsComments0 comments
The Challenges of Living Away from HomeI have myasthenia gravis (MG), and even though I’m partially confined to a wheelchair/power chair, I can still walk with the aid of a walker or rollator. I can also...Reactions0reactionsComments3 comments
Life Will Never Be the SameThere is no joy left in life for me with myasthenia gravis (MG). I know most people would read that sentence and think, hmm ... depression? No, it's not depression...Reactions0reactionsComments12 comments
Learning Everything I Can About Myasthenia GravisIn this guest post, Mike Stabile talks about how he has navigated the past few years since his myasthenia gravis (MG) diagnosis. After vowing to learn everything he could about...Reactions0reactionsComments15 comments
