Living with and Managing Multiple Conditions...In other articles, I’ve talked briefly about living with 2 or more health conditions. When I was first diagnosed with myasthenia gravis in December 2008, I was also diagnosed with...Reactions0reactionsComments5 comments
Suspect Myasthenia...I had a ct scan on my lungs because of a persistent cough. The scan showed atelectasis in both lungs. The pulmonary doctor said it was caused by muscle weakness...Reactions0reactionsComments3 repliesDiagnosis
Raising Young Children While Managing Myasthenia Gravis...I have 2 children - a son who is 4, and a daughter who just turned 2. Life is nonstop with the demands of 2 toddlers. With them still dependent...Reactions0reactionsComments0 comments
Seronegative MG...Good Morning! I recently was diagnosed with MG. Going next week to have a scan of the Thymus and discussion after with MG Neuro on the next steps. Nervous about...Reactions0reactionsComments3 repliesTips & AdviceSeronegative
I'm a Rag Doll...Rag dolls are made out of cloth and slightly stuffed. When you set one down, they just kind of crumple into a heap. They cannot be posed into any form...Reactions0reactionsComments13 comments
Dealing with Transportation Issues...One of the things I have found hard to deal with while living with myasthenia gravis is transportation. There are times when I am unable to drive myself and family...Reactions0reactionsComments4 comments
Newly diagnosed at age 82 ...Since 1997 I've had symptoms which I think have been myasthenia gravis all along but was misdiagnosed with a psychiatric disorder, bipolar II rapid cycling. Symptoms were physiological only, with...Reactions0reactionsComments4 repliesNewly Diagnosed
CBD and how it is good or bad for myasthenic patients....With sore muscles I would like to use CBD cream. I am concerned that the weak muscles might not respond well. At the same time would it be a real...Reactions0reactionsComments4 repliesMedical MarijuanaMuscle Weakness
Exercise with Myasthenia Gravis...Have been diagnosed with MG for 11 years. Strongest symptoms showed 2 years ago and hospitalized me. Have engaged in moderate exercise last 2 years - hiking, walking, biking. I...Reactions0reactionsComments7 repliesExercise
Plasmapheresis cessation ...My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...Reactions0reactionsComments6 repliesNewly DiagnosedTreatment
Preparing for Thymectomy and Hospital Pandemic Restrictions...It has been 6 months since my thymectomy. Woohoo! The pain medications kept most of my time in the hospital a blur. Still, I remember having many frustrating disappointments. My...Reactions0reactionsComments0 comments
Prednisone Withdrawal...Prednisone is an anti-inflammatory drug commonly used for its immunosuppressant properties in people with myasthenia gravis (MG). Its role is to manage MG symptoms and myasthenic crises, often in combination...Reactions0reactionsComments11 comments
Could It Be Myasthenia Pain or Something Else?...Once you discover you have myasthenia gravis (MG), there is a lot of learning and adjustments to be made. Then just when you think you’ve got it, you learn something...Reactions0reactionsComments2 comments
Resolutions and Goal Setting Can Be Intimidating...Here we are into a new year! When everyone else is making personal or professional resolutions or setting goals, I wonder how many of us with myasthenia gravis (MG) are...Reactions0reactionsComments0 comments
Shining a Light on Photophobia...Myasthenia gravis (MG) patients experience many symptoms. As individuals, we have different symptoms, react to the same situations differently, and medications work differently for different people. While some of us...Reactions0reactionsComments0 comments
Seronegative myasthenia ...Does anyone have any input on thymectomy for seronegative MG Thanks...Reactions0reactionsComments3 repliesSeronegative
Special Delivery: Navigating the Maze of Specialists...Like many in this community, my husband’s path to diagnosis and treatment was far from direct. His symptoms began while we were wintering in a southern state. He discussed that...Reactions0reactionsComments0 comments
Should I Wait? When I Know I Need Help and Just How Much...After having myasthenia gravis (MG) for almost 3 decades, I have gotten pretty good at knowing when I need to call my neurologist during a flare. For me, my first...Reactions0reactionsComments3 comments
FDA Approves Vyvgart™ (efgartigimod) for Adults with Generalized Myasthenia Gravis...On December 17, 2021, the U.S. Food and Drug Administration (FDA) approved Vyvgart™ (efgartigimod) to treat generalized myasthenia gravis (gMG) in adults who test positive for the anti-acetylcholine receptor (AChR)...Reactions0reactionsComments0 comments
My Introduction to MG...I am 71 years old and was enjoying my retirement and, up until now, was doing 4-6 hours of heavy gardening/exercise 6 days a week. My introduction to myasthenia gravis...Reactions0reactionsComments5 comments
