Detected Late?...I am a 57-year-old male, a university teacher in India. I was diagnosed with MG only about a year ago, but now I think I may have been living with...reactions7comments
Thymectomy...Would you all please describe what it was like before and after having a thymectomy including what your recovery was like? I am most likely going to have one but...reactions9repliesThymectomy
A tuning point of healing MG...My healing journey reached a turning point when I first got in touch with self-healing Qigong meditation. I was in my friend’s car. His wife showed me the Chinese book...reactions8repliesAutoimmune DiseasesAwareness
Myasthenia flare up ...Hi all, I was diagnosed at 21 years old, with mg and thymoma over 2 years ago. I was treated with steroids, IV and chemotherapy for thymoma tumour and have...reactions2repliesAwarenessCrisis
The Lessons We Teach Our Children...The thing that I find most challenging about having myasthenia gravis (MG) might surprise you. It’s not the double vision, the prednisone roller coaster, or even the times where my...reactionscomments
Didn't Know I Really Had MG Until My Crisis!...I was diagnosed in March of 2021. The droopy eye was the beginning, and then my speech started to go wonky. But a quick intervention with the neurology team gave...reactions7comments
Severity of symptoms...My husband was experiencing muscle weakness in his legs for several years - needing to frequently "rest" between activities. We talked to several doctors with no real suggestions. Last year...reactions2repliesNewly DiagnosedSymptomsDiagnosis
Domestic and Sexual Abuse in People with Disabilities...Editor's note: Content warning - This article includes experiences with sexual assault, domestic abuse, and violence. I am former Certified Domestic Abuse Advocate of 10 years, and I also have...reactionscomments
My self healing journey...I was diagnosed as ocular MG in 2006, double vision was the only symptom. I got treatment of prednisone , starting from 60 mg, taping down to low doze after...reactions9repliesAwarenessFriends & FamilyOcular MG
Myasthenia Gravis-Friendly House Adaptations...We recently conducted the Inaugural Myasthenia Gravis (MG) In America survey. One question on the survey asked, "What changes or modifications to your household/living space have you made since you...reactions8comments
I Was Prescribed MG Cautionary Drugs...In previous articles, I've talked about having the symptoms of myasthenia gravis (MG) for 48 years before being diagnosed. At times these symptoms were quite severe. Now in my 60...reactions2comments
How Do I Get Answers with MG?...I know many people with mysterious symptoms, such as those that appear with myasthenia gravis (MG), who are finding it increasingly difficult to find qualified physicians to diagnose and treat...reactionscomments
Living With Two Rare Diseases...12 years ago I was diagnosed with MG. I couldn't swallow, had a very hard time talking, was fatigued, weak, and had little or no control of my tongue. Anytime...reactions2comments
Conserving Energy...I don't know if this has been brought up... When I have several things I want to accomplish I think of all that energy. How can I do all of...reactions4comments
Bathing Aids and Tools for Myasthenia Gravis...When we are struggling with myasthenia gravis (MG) symptoms, bathing can be difficult. If you tire easily, try resting before bathing. I almost always bathe right after rising in the...reactionscomments
Shaking (tremor) and myasthenia...Hello! I was diagnosed with myasthenia gravis almost a year ago. I had slurred speech, difficulty swallowing and chewing, and than after some time my hands would get weak. The...reactions25repliesSymptomsMuscle Weakness
Tips for the Summer Heat...The heat is not our friend. Not with myasthenia gravis at least. It may send us spiraling downhill fast, and it does for many including myself. It actually took me...reactions13comments
Very Scared...I just was diagnosed the first of this year they out me on steroids till I could see nuro see is saying its just me eyes I can barely walk...reactions2replies
Congenital myasthenic syndrome...I'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I have a genetic defect, not an auto-immune disease...reactions7replies
Newly diagnosed ...Hi all , after having covid in October 2021 I started getting double vision, I had blood tests & was told I have mg , I have been on medication...reactions2replies
