The Importance of Finding a Doctor Who Specializes in MG...Throughout my years living with myasthenia gravis (MG), I’ve had my fair share of doctors. I’ve also been in between doctors when...reactions12comments
Diagnosis - New Symptoms?...Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today...reactions5repliesSymptomsDiagnosis
Preparing for Winter With a Power Chair...As we prepare for colder weather, it’s time to think about winterizing our outdoor living spaces. It’s bad enough to manage walking...reactions1comment
Difficulty swallowing while sleeping ...I have difficulty every night swallowing phlegm approx 4 hours every night after I have fallen asleep. I wake up, drink a...reactions5repliesAutoimmune Diseases
Therapies to relieve symptoms...Hey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26...reactions5repliesGeneralized MGNewly DiagnosedCoping
Ocular MG...I was diagnosed by a neuro opthamologist but my blood tests were negative. Even though I have ptosis, the consulting neurologist said...reactions6replies
Muscle Weakness...My dad is in the middle of his third MG crisis in 18 months, the latest has included ventilator for 12 days...reactions1reply
The Challenges of Seronegative Myasthenia Gravis...In this guest post, Cheri Higgason writes about the challenges of obtaining a seronegative myasthenia gravis diagnosis. As someone who has experienced...reactions38comments
Good News! ...I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was...reactions2repliesCaregiving
Weakness in my neck and back!...My neck and back muscles were allowing my head to hang forward. Spent five days in hospital. They pumped steroids into me...reactions4replies
Life Change at 73...Four months ago, in September 2022, I began this journey with shortness of breath. I was very active, swimming twice a week...reactions4comments
Problems...I am nearly eighty and have a secondary illness I have to take medication for this 2nd illness which causes constipation etc...reactions4replies
FeaturedActive 5 days agoDoes Anything Help Your Double Vision And/or Droopy Eyes?...Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)? Has anything helped you? Medication, surgery, tape, glasses...reactions137repliesOcular MGDrivingVision
Benefits of Understanding MG and Being Your Own Advocate...Take the initiative to become an advocate for your health and you will have a completely new experience with your myasthenia gravis...reactions3comments
My Reaction to Insecticides, Pesticides, and Herbicides...The other day I was in the house when I heard a plane. It was flying low, I could tell by the...reactionscomments
shoes and boots...Does anyone have good , lightweight shoes with great traction,not super expensive? Boots are also an issue. Have found zip, kind of...reactions6repliesAssistive Devices
The Way We Were...I'm one of the few who hates the song "Have a Holly, Jolly Christmas." For huge numbers of us, the idea that...reactionscomments
double vision...For dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision...reactions17repliesGeneralized MGTreatmentVision
Does IVIG work?...Hello, I have generalized MG confirmed by blood work at age 35. Prednisone made me feel better but I stopped taking it...reactions1replyGeneralized MG
Statins and Beta Blockers...I have read in various articles that taking Statins or Beta Blockers facilitates OMG. Discussed with Cardiologist and he became defensive that...reactions13repliesTreatment
