Plasmapheresis cessation ...My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...Reactions0reactionsComments6 repliesNewly DiagnosedTreatment
Preparing for Thymectomy and Hospital Pandemic Restrictions...It has been 6 months since my thymectomy. Woohoo! The pain medications kept most of my time in the hospital a blur. Still, I remember having many frustrating disappointments. My... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments0 comments
Prednisone Withdrawal...Prednisone is an anti-inflammatory drug commonly used for its immunosuppressant properties in people with myasthenia gravis (MG). Its role is to manage MG symptoms and myasthenic crises, often in combination... By Canadian Pharmacist2 min readBookmark for laterReactions0reactionsComments11 comments
Could It Be Myasthenia Pain or Something Else?...Once you discover you have myasthenia gravis (MG), there is a lot of learning and adjustments to be made. Then just when you think you’ve got it, you learn something... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments2 comments
Resolutions and Goal Setting Can Be Intimidating...Here we are into a new year! When everyone else is making personal or professional resolutions or setting goals, I wonder how many of us with myasthenia gravis (MG) are... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
Shining a Light on Photophobia...Myasthenia gravis (MG) patients experience many symptoms. As individuals, we have different symptoms, react to the same situations differently, and medications work differently for different people. While some of us... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
Seronegative myasthenia ...Does anyone have any input on thymectomy for seronegative MG Thanks...Reactions0reactionsComments3 repliesSeronegative
Special Delivery: Navigating the Maze of Specialists...Like many in this community, my husband’s path to diagnosis and treatment was far from direct. His symptoms began while we were wintering in a southern state. He discussed that... By Juliana Texley4 min readBookmark for laterReactions0reactionsComments0 comments
Should I Wait? When I Know I Need Help and Just How Much...After having myasthenia gravis (MG) for almost 3 decades, I have gotten pretty good at knowing when I need to call my neurologist during a flare. For me, my first... By Claire Denton2 min readBookmark for laterReactions0reactionsComments3 comments
FDA Approves Vyvgart™ (efgartigimod) for Adults with Generalized Myasthenia Gravis...On December 17, 2021, the U.S. Food and Drug Administration (FDA) approved Vyvgart™ (efgartigimod) to treat generalized myasthenia gravis (gMG) in adults who test positive for the anti-acetylcholine receptor (AChR)... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
My Introduction to MG...I am 71 years old and was enjoying my retirement and, up until now, was doing 4-6 hours of heavy gardening/exercise 6 days a week. My introduction to myasthenia gravis... By Bruce Douglas1 min readBookmark for laterReactions0reactionsComments5 comments
More Helpful Cooking Solutions for Myasthenia Gravis...In case you missed it, check out part 1 of this article, My Cooking Tips for Myasthenia Gravis. For those of us who eat and cook meat, standing over a... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
Positive MUSK antibodies, followed by 2 negative tests, then enlarged thymus....I have had strange weakness symptoms on and off for about 10 months. My doctors checked for M.S and a few other things , all of which came back negative...Reactions0reactionsComments2 repliesNewly DiagnosedGeneralized MGThymectomy
Obsessing About Early Christmas Decorating...My Christmas decorating obsession has kept me busy until a few days ago. Then, Christmas, birthday, and our anniversary came along. I usually have plenty of help from my husband... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
My Journey with Diets and Learning to Enjoy Food Again...When I was first diagnosed with myasthenia gravis (MG), I started researching diets for autoimmune diseases. Due to my upbringing which valued holistic health, I believed my body was capable... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments2 comments
Seeing the Light - Or Not...They say that "hindsight is 20/20." In the case of my husband's myasthenia gravis (MG), his sudden loss of 20/20 vision should have been our first clue to the possibility... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments0 comments
Celebrating Christmas the Myasthenia and COVID Way...The biggest holidays of the year are peaking just around the corner. This will be our second Christmas dealing with COVID-19 during the holidays. My view on life is different... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
it started out of the blue...Has anyone else just suddenly experienced a sensation that one of their hands had been disconnected or somehow unplugged? While the other hand started trembling? I was in an Ulta...Reactions0reactionsComments7 repliesGeneralized MGMuscle WeaknessSymptoms
5 Ways to Gussy Up Mashed Potatoes (When Mashed Potatoes Are All You Can Eat)...Question: When is the worst time of year to have a myasthenia gravis (MG) flare up? Well, there isn’t really a good time for one, but for me, the winter... By Zach McCallum4 min readBookmark for laterReactions0reactionsComments1 comments
The Importance of Self Care...The past 2 years have been extremely challenging for me and for my family. I was diagnosed with myasthenia gravis (MG) 27 years ago and there have been rough times... By Claire Denton2 min readBookmark for laterReactions0reactionsComments3 comments
