An MG Marriage...My husband didn’t marry me when I was sick. He had no idea what was in store for his or our future when he got down on one knee and...reactions3comments
My Thymectomy and Me...It was January 2021, a new year. My first neurologist appointment of the year, my doctor and I decided that the next step was a thymectomy surgery. I was a...reactions21comments
Eculizimab treatment in seronegative Mg...Hello there! I am writing this article via translation. So there may be mistakes in my explanation, sorry.. I live in Istanbul, Turkey. I am 42 years old female and...reactionsreplies
Bathing Tips for MG...One of my biggest problems with range of motion is using my left arm due to pain from the left side of my neck, shoulder, and upper back that radiates...reactionscomments
Been ghosted by my neuro's PA...Early this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...reactions5repliesHealthcare TeamNewly DiagnosedTreatment
What Qualities Should I Look for in a Doctor?...The path to a myasthenia gravis (MG) diagnosis can be exhausting, but finding the right doctor can make a huge impact. We had the opportunity to hear from our patient...reactions12comments
Antibody Blood Test Timing...Are blood test results affected by the timing of an antibody blood test draw with the immediate level of Myasthenia symptoms?...reactions2replies
Myasthenia what? ...I have been dealing with chronic Lyme disease for several years and have had different types of pain so I thought the weakness in the left side of my mouth...reactions11replies
Two Steps Forward, One Step Back ... the MG Dance...Myasthenia gravis (MG) is sometimes a little like Lucy and the football. You make careful life changes, modify your goals, take your meds, follow doctors’ orders, and symptoms seem to...reactions8comments
What Now?...I am so frustrated, I'm not quite sure what to do! It already took 48 years to get a diagnosis of myasthenia gravis (MG) - the entire time there were...reactions5comments
Diagnosed During A Pandemic...March of 2020, the country shut down. And at the end of that month, it seemed like so did my body? I began to have a slight eyelid droop for...reactions7comments
IVIG infusion ...I was told by my dr. I can’t have that infusion because I had 2 cancers back in 2008 and the side effect of that infusion is cancer ! I...reactions2replies
Toilet and Bathroom Aids for MG...Some may find this topic a little embarrassing, but elimination is a fact of life and is nothing to be embarrassed about. As someone living with myasthenia gravis (MG), I've...reactionscomments
what is the best way to deal this?...newly diagnosed,what can I expect in the future?...reactions2repliesCopingDiet & NutritionIntimacy & Relationships
Can Anybody Understand?...I have myasthenia gravis (MG)! Each minute of each day can change rapidly, leaving my life in limbo when it comes to what I'm able to do. Sometimes daily life...reactions5comments
My Experiences with Doctors and Misdiagnosis...It's been a long hard battle for a diagnosis over the years. The past 2 years have been both the best and the worst. After 10 years of remission from...reactions5comments
Oral Care Products for People with MG...People with myasthenia gravis (MG) may experience individual struggles with daily oral hygiene. I previously talked about risks at the dentist and tips on how to prepare for a dentist...reactionscomments
Diet and suppliments...Are there any guidelines for diet and suppliments with MG?...reactions5repliesDiet & Nutrition
10 Week Update: My Vyvgart Experience...My Vyvgart treatment started May 18, 2022. I am at 10 weeks from that start date. Here is an earlier update I posted. Included in my start kit was a...reactions13comments
