Diagnosed at 13 in 1957...During a family Christmas party, my uncle, an optometrist, noticed something different with my eyes. "Come here Kathryn, let me get a close-up of your eyes." Following his finger movement...Reactions0reactionsComments1 comments
Ptosis?...I started experiencing mild MG symptoms 2 months ago. I'm not officially diagnosed yet but I think I am having a milder case of ptosis. What do you think? ...Reactions0reactionsComments1 comments
My Journey with MG...On November 18th, 2021, I suffered from horrendous double vision. Weeks earlier, I started having issues with bladder control. I visited my GP and was immediately sent to the stroke...Reactions0reactionsComments1 comments
6 Tips for Staying on Top of Treatment...Living with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while taking care of...Reactions0reactionsComments0 comments
Facing Surgery with a Diagnosis of Myasthenia Gravis...I have had 3 prior surgeries, all while experiencing the same symptoms that I currently have. The difference now is that I have been officially diagnosed with myasthenia gravis (MG)...Reactions0reactionsComments0 comments
Thriving in Marriage After MG...When I was diagnosed with myasthenia gravis (MG), my husband and I had been married for 5 years. We had 1 toddler and a baby on the way. Our marriage...Reactions0reactionsComments2 comments
Unusual presentation of symptoms...Hello I wanted to share my unique story in hopes of making sense of a mystery. My doctor after about a month of trying to rule other things out is...Reactions0reactionsComments10 repliesNewly DiagnosedSymptoms
Finding Comfort When We Redefine Family...The holiday season recently passed. If family interactions didn’t unravel as well as we had hoped, we might still focus on this defeat. This is not the mentality we need...Reactions0reactionsComments7 comments
Adjusting To A New Life...Looking back, the first thing I noticed was photographs. My smile was crooked and one side of my face seemed to droop. I thought gravity was playing tricks on me...Reactions0reactionsComments2 comments
My MG Story...I was 50-years-old and I started falling. My legs gave out, which went on for six months until I fell going up the stairs and broke my first bone in...Reactions0reactionsComments1 comments
Strange Happenings...I was first told I had MG in 1976 back then no one really knew too much about it, I was lucky and had a great eye doctor who actually...Reactions0reactionsComments6 comments
Biologics...The goal of treating myasthenia gravis (MG) is to reduce or improve muscle weakness. Drugs like acetylcholinesterase inhibitors (AChE) inhibitors, steroids, and other immunosuppressants are often used. However, these drugs...
The Impact of Myasthenia Gravis on Friendships...Before I was diagnosed with myasthenia gravis (MG), I was very social. I loved community gatherings and hosted people over at our home almost every week. There was nothing like...Reactions0reactionsComments1 comments
Accepting My Limitations Gave Me Freedom...If there’s one thing myasthenia gravis (MG) brings, it’s limitations: limitations on the capacity for activity, work, and the potential for productivity. When I was first diagnosed with MG, the...Reactions0reactionsComments7 comments
My story...I am 65 years old. I was diagnosed with Myasthenia Gravis almost 3 years ago. It started 3 years ago with double vision. I didn’t know until 4 months later...Reactions0reactionsComments2 repliesDiagnosisMuscle WeaknessThymectomy
Become Your Own Myasthenia Gravis Advocate...As you probably know, myasthenia gravis (MG) is a chronic autoimmune disease. Because of the rarity of this disease, many physicians and other medical professionals know or understand little about...Reactions0reactionsComments1 comments
Was Gaslighting Involved in Your Diagnosis Journey?...Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...Reactions0reactionsComments95 repliesSymptomsDiagnosisAwareness
Diagnosing Myasthenia Gravis...Myasthenia gravis (MG) can be a hard diagnosis to receive. I don’t mean hard as in emotionally challenging, although that definitely happens too. I mean it is difficult to find...Reactions0reactionsComments1 comments
A Healing Balm for Stress and Anxiety...Stress and anxiety have been a constant tension in my life. A few days ago, a mysterious itchy rash started spreading across my body like wildfire. I scrambled to book...Reactions0reactionsComments1 comments
Very Confusing Illness...I started experiencing double vision in 2019. It could get quite severe at times. Went to the doctor and she thought it was vestibular. She sent me to an ENT...Reactions0reactionsComments3 comments
