Strange Happenings...I was first told I had MG in 1976 back then no one really knew too much about it, I was lucky and had a great eye doctor who actually... By Zigge11 min readBookmark for laterReactions0reactionsComments6 comments
Biologics...The goal of treating myasthenia gravis (MG) is to reduce or improve muscle weakness. Drugs like acetylcholinesterase inhibitors (AChE) inhibitors, steroids, and other immunosuppressants are often used. However, these drugs... By Editorial Team 4 min readBookmark for later
The Impact of Myasthenia Gravis on Friendships...Before I was diagnosed with myasthenia gravis (MG), I was very social. I loved community gatherings and hosted people over at our home almost every week. There was nothing like... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments1 comments
Accepting My Limitations Gave Me Freedom...If there’s one thing myasthenia gravis (MG) brings, it’s limitations: limitations on the capacity for activity, work, and the potential for productivity. When I was first diagnosed with MG, the... By Cristiano Del Giacco4 min readBookmark for laterReactions0reactionsComments7 comments
My story...I am 65 years old. I was diagnosed with Myasthenia Gravis almost 3 years ago. It started 3 years ago with double vision. I didn’t know until 4 months later...Reactions0reactionsComments2 repliesDiagnosisMuscle WeaknessThymectomy
Become Your Own Myasthenia Gravis Advocate...As you probably know, myasthenia gravis (MG) is a chronic autoimmune disease. Because of the rarity of this disease, many physicians and other medical professionals know or understand little about... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments1 comments
Was Gaslighting Involved in Your Diagnosis Journey?...Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...Reactions0reactionsComments95 repliesSymptomsDiagnosisAwareness
Diagnosing Myasthenia Gravis...Myasthenia gravis (MG) can be a hard diagnosis to receive. I don’t mean hard as in emotionally challenging, although that definitely happens too. I mean it is difficult to find... By Mallory San Nicolas2 min readBookmark for laterReactions0reactionsComments1 comments
A Healing Balm for Stress and Anxiety...Stress and anxiety have been a constant tension in my life. A few days ago, a mysterious itchy rash started spreading across my body like wildfire. I scrambled to book... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments1 comments
Very Confusing Illness...I started experiencing double vision in 2019. It could get quite severe at times. Went to the doctor and she thought it was vestibular. She sent me to an ENT... By Andy C1 min readBookmark for laterReactions0reactionsComments3 comments
Living with and Managing Multiple Conditions...In other articles, I’ve talked briefly about living with 2 or more health conditions. When I was first diagnosed with myasthenia gravis in December 2008, I was also diagnosed with... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments5 comments
Suspect Myasthenia...I had a ct scan on my lungs because of a persistent cough. The scan showed atelectasis in both lungs. The pulmonary doctor said it was caused by muscle weakness...Reactions0reactionsComments3 repliesDiagnosis
Raising Young Children While Managing Myasthenia Gravis...I have 2 children - a son who is 4, and a daughter who just turned 2. Life is nonstop with the demands of 2 toddlers. With them still dependent... By Jessica Liao2 min readBookmark for laterReactions0reactionsComments0 comments
Seronegative MG...Good Morning! I recently was diagnosed with MG. Going next week to have a scan of the Thymus and discussion after with MG Neuro on the next steps. Nervous about...Reactions0reactionsComments3 repliesTips & AdviceSeronegative
I'm a Rag Doll...Rag dolls are made out of cloth and slightly stuffed. When you set one down, they just kind of crumple into a heap. They cannot be posed into any form... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments13 comments
Dealing with Transportation Issues...One of the things I have found hard to deal with while living with myasthenia gravis is transportation. There are times when I am unable to drive myself and family... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments4 comments
Newly diagnosed at age 82 ...Since 1997 I've had symptoms which I think have been myasthenia gravis all along but was misdiagnosed with a psychiatric disorder, bipolar II rapid cycling. Symptoms were physiological only, with...Reactions0reactionsComments4 repliesNewly Diagnosed
CBD and how it is good or bad for myasthenic patients....With sore muscles I would like to use CBD cream. I am concerned that the weak muscles might not respond well. At the same time would it be a real...Reactions0reactionsComments4 repliesMedical MarijuanaMuscle Weakness
Exercise with Myasthenia Gravis...Have been diagnosed with MG for 11 years. Strongest symptoms showed 2 years ago and hospitalized me. Have engaged in moderate exercise last 2 years - hiking, walking, biking. I...Reactions0reactionsComments7 repliesExercise
Plasmapheresis cessation ...My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...Reactions0reactionsComments6 repliesNewly DiagnosedTreatment
