Rare Disease Day® and Myasthenia Gravis...The last day of February is Rare Disease Day® all around the world. It is a day to recognize and raise awareness about rare diseases and how they impact patients...Reactions0reactionsComments0 comments
How do you get diagnosis when you keep getting turned down from doctors?...So I'm new to this whole thing. And this site, to which im entirely grateful for. I am extremely frustrated, and I don't know what to do now, and i...Reactions0reactionsComments11 repliesSeronegative
Prisoner...I am a prisoner! In prison for life... no crime committed. I am not in an actual prison. But a prisoner of my own body with a disease there is...Reactions0reactionsComments0 comments
Dry Eye Therapies for MG...Most people have experienced the unpleasant feeling of dry eyes. It is a common complaint I hear from patients at the pharmacy. People with myasthenia gravis (MG) are more likely...Reactions0reactionsComments4 comments
19-Years-Old, With a Body I Couldn't Control....I was weak everywhere from the get-go. In March of 2005, I noticed I couldn't button my jeans or raise my arms to fix my ponytail. Then I started choking...Reactions0reactionsComments1 comments
The Struggle to Find Knowledgeable Physicians...As I read comments from others on the Myasthenia-Gravis.com Facebook page, I see many about physicians that seem to be unfamiliar with myasthenia gravis (MG). For some, taking years for...Reactions0reactionsComments0 comments
what is meant by weak legs...lately after exercise my legs are sore. My knee’s feel jammed. I have only been swimming and using an elliptical machine. i don’t have the energy to do weights. Today...Reactions0reactionsComments1 repliesExerciseMuscle Weakness
Undergoing Multiple Major Surgeries...Although I was just was diagnosed with myasthenia gravis (MG) in October of 2020, I had symptoms most of my life. At times, they were severe and included breathing problems...Reactions0reactionsComments2 comments
Finding a Balance with Exercise and Myasthenia Gravis...I don’t think it comes as any surprise that 1 of the top resolutions each New Year is to exercise more. We all know that working out is excellent for...Reactions0reactionsComments5 comments
In remission from GMG by fixing diet...Developed GMG symptoms - double vision, drooping eyelid, loss of strength / endurance, etc. - in late 2003 when I was in my mid-40s and was diagnosed early 2004. Fortunately...Reactions0reactionsComments2 repliesDiet & NutritionRemissionGeneralized MG
Vitamin D...I have read that a high dose of Vitamin D has a good effect on persons suffering with MG although not proven? Has anyone have any advise on this or...Reactions0reactionsComments6 repliesTips & AdviceTreatment
A Guide to Buying a Blood Pressure Monitor...People with myasthenia gravis (MG) may be at a higher risk of high blood pressure (BP) compared to the rest of the population. In fact, one study found that MG patients have...Reactions0reactionsComments0 comments
MG Makes Me Hesitant to Date Again...Myasthenia gravis (MG) has brought new fears of committing to a life partner. Dating is more complex than before. I have worries different from what a typical relationship involves. Will...Reactions0reactionsComments0 comments
mg diagnosis or misdiagnosis?...after trouble swallowing then muscle fatigue in the legs and neck and shoulders it took 2 years for some kind of diagnosis. j After blood tests showed no acetylcholine receptors...Reactions0reactionsComments4 repliesTreatmentDiagnosis
VYVGART...Has anyone started the 4 week treatment? Side affects?...Reactions0reactionsComments2 repliesTreatment
Diet...Is there one basic recommended diet for patients with gMG? Especially for fatigue and brain fog? Thank you...Reactions0reactionsComments1 repliesDiet & NutritionGeneralized MG
Ask the Advocate: Caring for a Partner with Myasthenia Gravis...Life as a caregiver or care partner to someone with myasthenia gravis (MG) can be overwhelming. Whether you are a spouse, parent, child, or other loved one of someone with...Reactions0reactionsComments5 comments
The Adverse Effects of Heat and Cold When You Have MG...I live in the mid-south where extreme hot weather is the norm late spring through early fall. The heat is accompanied with high humidity. Winter brings pleasant days as well...Reactions0reactionsComments0 comments
Chronic Secretions and Mucus Can Be Challenging...Since my initial myasthenia gravis (MG) diagnosis, I’ve noticed an increase in secretions/mucus. I have also been diagnosed with hypothyroidism, allergies, and asthma, so I just thought the increase was...Reactions0reactionsComments2 comments
Diagnosed at 13 in 1957...During a family Christmas party, my uncle, an optometrist, noticed something different with my eyes. "Come here Kathryn, let me get a close-up of your eyes." Following his finger movement...Reactions0reactionsComments1 comments
