Newly diagnosed ...Started treatment this week for mg 4 x half pyridostigmine but only slight change...is this normal? Also im in the UK and would love to connect with others as I...reactions6replies
Firing My Neurologist...I wrote an article called "My Experience with Doctors and Misdiagnoses" where I talked about how I finally got to meet with a neurologist who was able to figure out...reactionscomments
Obtaining a Mobility Aid and What One to Choose...A mobility aid is a piece of equipment or device designed to help you walk when your mobility is impaired, temporarily or permanently or to provide other means of mobility...reactions1comment
The Process of Getting a Handicap Placard...If you have trouble walking due to myasthenia gravis and haven’t gotten a handicap placard or license plate, you may want to at least think about it. You can get...reactions8comments
Deborah Vick...Deborah Vick is driven by her passion to create inclusive communities for people of ALL abilities, with special emphasis on equitable medical care, access to education, and life’s basic necessities...
Role Reversal...After almost 50 years of marriage, hubby and I were "used to one another." A lot of things went without saying. We had come through a lot of health scares...reactions2comments
What Is Congenital Myasthenic Syndrome?...Myasthenia gravis (MG) is a disease that causes weakness and fatigue in muscles that you voluntarily control. It is an autoimmune disease. This means that your immune system mistakes normal...reactionscomments
IVIG Side Effects...IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...reactions25repliesSide EffectsTreatmentMuscle Weakness
Sfemg ...Hello! I recently had a sfemg. In the frontalis I had 3 abnormally high jitters out of 20 pairs, but one of them was "uncertain". Then they tested orbicularis oculi...reactionsreplies
Myasthenia Gravis (MG) Symptoms During My Pregnancy...I get asked a lot by other women who have myasthenia gravis (MG) what it was like for me when I was pregnant. While my story is a little different...reactions2comments
Awaiting possible diagnosis...Hi, am new to these boards. I’m 52 and living in the UK. I mentioned an intermittently droopy right eyelid to my optometrist about 4 months ago who referred me...reactions5repliesSymptomsDiagnosis
Toll Prednisone Took on Your Body...What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...reactions90repliesSide EffectsTreatmentNewly Diagnosed
MG and going to the dentist...I have MG and I am scared to get my mouth numbed up at the dentist. Does a person with MG do ok with this?...reactions5repliesCoping
Frustration...So after being told that I was in remission and being encouraged to cease my mycophenolate which I was not comfortable with I now find out through new blood tests...reactions1reply
Thankful, Grateful...I was diagnosed in 1974 with this disease. I had double vision and was very weak in my arms. I fell down the steps going out the front door with...reactions2comments
MG Warrior...I am alone! No one understands what it's like for me. There's that deep pain inside, I just want to cry! The feeling is there and I just want to...reactions12comments
Dressing Aids...Myasthenia gravis (MG) causes some of us to feel fatigued all or most of the time. So how do we manage our daily hygiene and getting dressed for the day?...reactions6comments
Can You Donate Blood With Myasthenia Gravis?...Donating blood helps people in local hospitals who need blood transfusions. It benefits people who have lost blood from transplants or surgery. It also helps people who cannot make enough...reactions1comment
I've bee n prescribed CellCept...Anyone out there using cellcept now who can give me some information, etc??? Reading about all the possible side effects is lots of fun, if you know what I mean!...reactions3repliesAutoimmune DiseasesGeneralized MGAwareness
First Symptoms...What were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...reactions11repliesAwarenessSymptomsDiagnosis
