Possibility of only Ocular MG and not worse symptoms...I've had a sleepy eye in one eye for 30+ years. I'm currently approaching 60. At least my wife has noticed that I've had a droopy eye for our entire...Reactions0reactionsComments4 repliesAwarenessTips & AdviceCoping
Could I have MG?...Two weeks after receiving the COVID 19 booster dose, I began to feel dizzy and light-headed while walking. All of my blood work came back normal. I went to the...Reactions0reactionsComments6 repliesAutoimmune DiseasesDiagnosis
Borderline achr antibodies...Hey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline" raised (reference range where I am is 0.0-0.59)...Reactions0reactionsComments4 repliesGeneralized MGDiagnosis
My Experience with COVID...Despite knowing it was more than likely inevitable, I caught COVID. I believe this is actually my second time, however, the first time wasn’t confirmed. It was too early in...Reactions0reactionsComments0 comments
Dealing with My First Myasthenia Flare-Up...Most of us who live with myasthenia gravis (MG) will experience a flare eventually. I’ve had some minor flares since my initial diagnosis, but they usually last for a very...Reactions0reactionsComments2 comments
How to Talk to Children About Your Myasthenia Gravis...Talking with your children about your myasthenia gravis (MG) can cause major anxiety. You do not know how your child will react. You might worry that they will get upset...Reactions0reactionsComments1 comments
What causes Myasthenia gravis...When I was in the military I was in contact with JP-5 fuel frequently for 4 years. It is said by the department of health that it affects the nervous...Reactions0reactionsComments3 repliesAutoimmune Diseases
Pain with myasthenia ...I have recently been diagnosed with myasthenia, antibody musk. I will start treatment as soon as my insurance allows. I am having pain in my neck. Are there stretches that...Reactions0reactionsComments6 repliesMuscle Weakness
Finding a Caregiver for Someone with MG...Life with myasthenia gravis (MG) often requires assistance and support. This care varies by the severity of symptoms and ranges from skilled hands-on work to simple errands. Handling all of...Reactions0reactionsComments0 comments
Stressful Times Call for Relaxing Times with MG...When you have a disease such as myasthenia gravis (MG), learning how and when to rest and relax is key to a healthy existence! We know stress with MG can...Reactions0reactionsComments1 comments
Ask the Advocate: How do You Stay Motivated with MG?...When living with myasthenia gravis (MG), energy levels, muscle strength, and symptoms can change daily. These fluctuations may be frustrating, and at times, discouraging. To help others face the hard...Reactions0reactionsComments0 comments
Living with Myasthenia Gravis and My Mood Swings...I grew up a rather passive person. Though things would bother me, I rarely allowed people to see me upset. I considered crying a weakness and something I didn’t want...Reactions0reactionsComments0 comments
5 Helpful Tips for Myasthenia Gravis Caregivers...Receiving a diagnosis of myasthenia gravis (MG) can be a life-altering experience, not only for the person with the diagnosis, but also for the spouse, child, parent, or friend who...Reactions0reactionsComments3 comments
Mother newly diagnosed with MG...Hi everyone, I am new to the forum and are from the Middle East, and looking for support and feedback. We My mother is 70 years old and she was...Reactions0reactionsComments9 repliesTreatmentTips & AdviceCaregiving
Needing help understanding Test Results...Hi everyone, Recently had a MG panel with reflex to Musk through Quest and I have a specific question about AChr modulating antibody. My result was 22. Reference range was...Reactions0reactionsComments1 repliesGeneralized MG
Easing Back Into Exercise After Myasthenia Gravis...It has been almost 3 years since my diagnosis. This month, I finally made it back to the exercise studio I religiously attended before myasthenia gravis (MG). It was a...Reactions0reactionsComments0 comments
No diplopia, will meds improve eye movement when reading?...Do you guys think that this is worth treating? I'm very suspicious that I have ocular mg. I am positive for multiple physical signs including the ice test, cogan's lid...Reactions0reactionsComments3 repliesMuscle WeaknessSymptomsSide Effects
Finding The Right Doc Is A Challenge...Hi. My name is Brad. I am 60 years old. My diagnosis was only a week ago, but this process may have started back in 2020. Back then, I started...Reactions0reactionsComments1 comments
Reference ranges make no sense...I had a myasthenia gravis work up from LabCorp and the reference ranges do not match the reference ranges that I was able to find on Mayo clinic's website here's...Reactions0reactionsComments1 repliesTips & AdviceDiagnosisSeronegative
Cogan's lid twitch...I have tested negative for the antibodies, but I think I still might have the ocular version. I did the coggins eyelid twitch test at home and it looks positive...Reactions0reactionsComments2 repliesDiagnosisSeronegative