What would you tell yourself when you were first diagnosed?...Its easy to notice where we are in the present and where we'd like to be in the future, but what would you tell yourself back when you were told...reactions9repliesNewly DiagnosedMental HealthTips & Advice
Adding a Wheelchair Ramp to Our Home...I don’t have stairs into my house. Well, I do, but they are covered with a wheelchair ramp. I needed a way into the house, so my husband and youngest...reactions2comments
31 Years Down...I developed double vision at 19, assumed it was too many late nights but it wouldn’t go away. Then I noticed weak arms, legs, couldn’t walk far. I spent 18...reactions2comments
In Remission Now...I was originally diagnosed in 1988 I woke up one morning unable to fully open my eyes. My eyeballs would not move. This, it seems, are quite common symptoms. After...reactions8comments
My Myasthenia Start...I was an Army Reservist and a nurse. It started in fall 2016 with extreme fatigue, I mean bad, I worked night shift for years, had deployed, done 24hr duties...reactions3comments
Trying to Work After Almost Two Years...As we all know, myasthenia gravis (MG) is a roller coaster ride that we didn't voluntarily get on, but we're on the ride anyway! Because of MG, I've had several...reactions2comments
Breathing problems...I'm a 47 year old male and I was diagnosed with the dok7 variant of congenital myasthenia about a year ago. I've been symptomatic for a few years, but all...reactions1replyDiagnosisAssistive DevicesGeneralized MG
Speech...Hello, I care for my mother, who has been diagnosed w/ Myasthenia Gravis, and she has issues w/ trying to think of words that she is trying to say. Can...reactions3replies
MG and Homeopathy...Hi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I live in Greece.. I have a question. Has...reactions3repliesTreatment
You Work at a Restaurant?..."You work at a restaurant?" After people learn that I have myasthenia gravis (MG), it's very shocking for them to hear that I am a server. Doctors, nurses, and non-medical...reactionscomments
How I Explain MG to Others...I can start out the day just fine. I'm ready to go as if I didn't have myasthenia gravis (MG), even if it's a day where I'm a little slow...reactions4comments
Managing Safety at Home When Diagnosed with MG...A diagnosis of myasthenia gravis (MG) can bring with it a lot of problems. One of those is home safety. There are some things in my home today that I...reactions2comments
blepharoptosis surgery for Ptosis ...Hi, i am diagnosed with ocular myasthenia gravis and was given mestinon to help with my droppy eyelid. Aside from the medications, i am just wondering if anyone go for...reactions2repliesAutoimmune Diseases
Minimalizing Has Given Me Energy to Do More...I have lived in a converted van for 4 months, traveling full time with my boyfriend and 2 cats! We are in the process of working towards a converted school...reactions2comments
Switching Doctors...In the first 2 years of being diagnosed I found a doctor who was incredible. He really set the bar high for the things to look for in a practitioner...reactions10comments
Mary Lou...While driving, I experienced severe double vision. Put a tissue behind one lens of my eyeglasses so I could continue driving that day. Went to my optometrist who referred me...reactions3replies
I Hate It, I Hate It, I Hate It!...I'm a bit frustrated right now. I'm hoping some of you can help me! I'm going to give some examples of why I hate myasthenia gravis (MG). I'm a pretty...reactions9comments
Highest Steroid Dose You’ve Been Prescribed...What is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...reactions19repliesTreatmentCrisisSymptoms
gMG and Me...The exhaustion started at age 30. I was waitressing and walking/hiking four days a week. One day bang I could not get up off the couch. It lasted three months...reactions3comments
Independent Living Aids for Cooking and Eating...Many of us with myasthenia gravis suffer with varying degrees of weakness and pain. Activities most people take advantage of are more difficult for us. Whether you love to cook...reactions1comment
