Active todayTremors, muscle twitches...Hello dear forum friends. I’m a newbie here and learning a lot from you all. I am AChR positive, bulbar presentation with lost voice and swallowing issues. Did 5 plasmapheresis...Reactions0reactionsComments27 repliesMuscle WeaknessSymptoms
Dealing with MG Weakness and Misconceptions...There is a misconception that if our legs are weak from myasthenia gravis (MG), all we have to do is quit being lazy and exercise! People wonder, "Why do you...Reactions0reactionsComments0 comments
Ask the Advocate: Diagnosis and Grief...Life looks different after a myasthenia gravis (MG) diagnosis. It may take some time to process these changes. While everyone responds differently, grief is a natural reaction and can even...Reactions0reactionsComments0 comments
The High Cost of MG Medication and Care...The medical bills that accumulated during my initial diagnosis and treatment of myasthenia gravis (MG) came to thousands of dollars. Fortunately, I had good insurance, so most of those expenses...Reactions0reactionsComments2 comments
The Impact of Ethnicity in Myasthenia Gravis...Health disparities are prevalent across all diseases. They encompass factors not just related to ethnicity. Health disparities are based on other factors such as sex, sexual orientation, immigration status, age...Reactions0reactionsComments0 comments
Healthcare team...…Looking for MD whose primary specialization is MG..seen too many who were useless. I live on Long Island, NY. Anyone out there who can help me? Thank you!...Reactions0reactionsComments4 repliesHealthcare Team
3 Things That Help Our Relationships While Living with MG...Relationships are beautiful, but they can also be complicated. They take work and they take effort. Throwing a chronic illness into the mix just complicates them further. Sometimes we don’t...Reactions0reactionsComments0 comments
Gardening and Harvesting Adjustments for MG...In case you missed it, check out part 1 of this article, "Gardening Safely When You Have MG." In the days since COVID began, gardening has been on the rise...Reactions0reactionsComments0 comments
breathing problems with mg...Hi I was diagnosed with generalized mg nine months ago .I am currently taking a range of medication . pyridostigmine and immunosuppressants plus I also recieve immunoglobulin treatment every month...Reactions0reactionsComments7 repliesGeneralized MG
Pyridostigmine...I was just diagnosed about a 5 weeks ago, doc put me on 60mm of Pyridostigmine 3x a day. I feel no change, Doc said first, it could take up...Reactions0reactionsComments7 repliesGeneralized MGDiagnosis
Thank You for Taking Our Survey!...We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with myasthenia gravis. New here? We invite you to explore...Reactions0reactionsComments0 comments
My Life with Myasthenia Gravis...As best as I remember, my symptoms started around age 10. My first symptom was difficulty using my hands and fingers along with extreme constipation. It was to the point...Reactions0reactionsComments4 comments
What If?...I feel anxious and fearful. What if my symptoms come back? What if the medication stops working? What if I have to go back to surviving; hungry, tired, and unable...Reactions0reactionsComments1 comments
New Drug...I just started the new drug Vyvgart, I am on the fourth dose given over 4 weeks with a break in between I am feeling a lot better. I was...Reactions0reactionsComments2 comments
Two Autoimmune Diseases...I was diagnosed with MG on June 2, 2021. The first major symptom was waking up with double vision. After seeing my PCP, he sent me to an ophthalmologist the...Reactions0reactionsComments1 comments
Gardening Safely When You Have MG...When you're finished reading this article, check out part 2, "Gardening and Harvesting Adjustments for MG." Spring is just around the corner, so it won’t be long until it’s warm...Reactions0reactionsComments1 comments
Take the Health and Media Habits Survey!...Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media do you use to relax or even find information about your condition?...Reactions0reactionsComments0 comments
A Little Help From Friends...A rare disease, unique and varied symptoms, a scarcity of specialists ... all these things make people with myasthenia gravis (MG) feel isolated and starved for good contacts. In a world...Reactions0reactionsComments2 comments
Does Prednisone help with fatigue?...Hello, Was diagnosed with MG last month. I am trying to be ultra conservative with my approach. So far I have been taking Mestinon 3x per day as a muscle...Reactions0reactionsComments4 repliesThymectomyGeneralized MGDiagnosis
Recovering After My First Myasthenia Flare-Up...In case you missed it, check out part 1 of this article, "Dealing with My First MG Flare-Up." My myasthenia gravis symptoms had finally subsided, and I was doing pretty...Reactions0reactionsComments2 comments
