Ask the Advocate: How do You Stay Motivated with MG?...When living with myasthenia gravis (MG), energy levels, muscle strength, and symptoms can change daily. These fluctuations may be frustrating, and at times, discouraging. To help others face the hard... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Living with Myasthenia Gravis and My Mood Swings...I grew up a rather passive person. Though things would bother me, I rarely allowed people to see me upset. I considered crying a weakness and something I didn’t want... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
5 Helpful Tips for Myasthenia Gravis Caregivers...Receiving a diagnosis of myasthenia gravis (MG) can be a life-altering experience, not only for the person with the diagnosis, but also for the spouse, child, parent, or friend who... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments3 comments
Mother newly diagnosed with MG...Hi everyone, I am new to the forum and are from the Middle East, and looking for support and feedback. We My mother is 70 years old and she was...Reactions0reactionsComments9 repliesTreatmentTips & AdviceCaregiving
Needing help understanding Test Results...Hi everyone, Recently had a MG panel with reflex to Musk through Quest and I have a specific question about AChr modulating antibody. My result was 22. Reference range was...Reactions0reactionsComments1 repliesGeneralized MG
Easing Back Into Exercise After Myasthenia Gravis...It has been almost 3 years since my diagnosis. This month, I finally made it back to the exercise studio I religiously attended before myasthenia gravis (MG). It was a... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments0 comments
No diplopia, will meds improve eye movement when reading?...Do you guys think that this is worth treating? I'm very suspicious that I have ocular mg. I am positive for multiple physical signs including the ice test, cogan's lid...Reactions0reactionsComments3 repliesMuscle WeaknessSymptomsSide Effects
Finding The Right Doc Is A Challenge...Hi. My name is Brad. I am 60 years old. My diagnosis was only a week ago, but this process may have started back in 2020. Back then, I started... By BradH6 min readBookmark for laterReactions0reactionsComments1 comments
Reference ranges make no sense...I had a myasthenia gravis work up from LabCorp and the reference ranges do not match the reference ranges that I was able to find on Mayo clinic's website here's...Reactions0reactionsComments1 repliesTips & AdviceDiagnosisSeronegative
Cogan's lid twitch...I have tested negative for the antibodies, but I think I still might have the ocular version. I did the coggins eyelid twitch test at home and it looks positive...Reactions0reactionsComments2 repliesDiagnosisSeronegative
Rare Disease Day® and Myasthenia Gravis...The last day of February is Rare Disease Day® all around the world. It is a day to recognize and raise awareness about rare diseases and how they impact patients... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
How do you get diagnosis when you keep getting turned down from doctors?...So I'm new to this whole thing. And this site, to which im entirely grateful for. I am extremely frustrated, and I don't know what to do now, and i...Reactions0reactionsComments11 repliesSeronegative
Prisoner...I am a prisoner! In prison for life... no crime committed. I am not in an actual prison. But a prisoner of my own body with a disease there is... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
Dry Eye Therapies for MG...Most people have experienced the unpleasant feeling of dry eyes. It is a common complaint I hear from patients at the pharmacy. People with myasthenia gravis (MG) are more likely... By Canadian Pharmacist2 min readBookmark for laterReactions0reactionsComments4 comments
19-Years-Old, With a Body I Couldn't Control....I was weak everywhere from the get-go. In March of 2005, I noticed I couldn't button my jeans or raise my arms to fix my ponytail. Then I started choking... By Snowflake20051 min readBookmark for laterReactions0reactionsComments1 comments
The Struggle to Find Knowledgeable Physicians...As I read comments from others on the Myasthenia-Gravis.com Facebook page, I see many about physicians that seem to be unfamiliar with myasthenia gravis (MG). For some, taking years for... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
what is meant by weak legs...lately after exercise my legs are sore. My knee’s feel jammed. I have only been swimming and using an elliptical machine. i don’t have the energy to do weights. Today...Reactions0reactionsComments1 repliesExerciseMuscle Weakness
Undergoing Multiple Major Surgeries...Although I was just was diagnosed with myasthenia gravis (MG) in October of 2020, I had symptoms most of my life. At times, they were severe and included breathing problems... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments2 comments
Finding a Balance with Exercise and Myasthenia Gravis...I don’t think it comes as any surprise that 1 of the top resolutions each New Year is to exercise more. We all know that working out is excellent for... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments5 comments
In remission from GMG by fixing diet...Developed GMG symptoms - double vision, drooping eyelid, loss of strength / endurance, etc. - in late 2003 when I was in my mid-40s and was diagnosed early 2004. Fortunately...Reactions0reactionsComments2 repliesDiet & NutritionRemissionGeneralized MG
