eye lid surgery...on March 3 I had eye lid surgery. I'm not very happy about the results. At my follow up 10 days ago...reactions2repliesVisionOcular MG
10 Years After Diagnosis......I was diagnosed with gMG in 2013. I was given Prednisone which gave me thoughts of suicide. I was also given Mestinon...reactions10comments
Does this mean I have MG...Hi guys, So I've been unwell for a while and Neuro considered MS. I had a hospital admission last month for Dysphagia...reactions2repliesDiagnosis
Seronegative MG...Hello! I was diagnosed in March 2020. I am a 30 year old female...I'll give you a little backstory..heads up it will...reactions3repliesAutoimmune DiseasesMedical MarijuanaNewly Diagnosed
Muscle Weakness...I have been falling for 3 years, in the last 2 years I've fallen 22 time. With good luck so far haven't...reactions8repliesExerciseMuscle WeaknessDriving
What Happened to My Face?...Years before I was diagnosed with myasthenia gravis (MG), there were times when the left side of my face just seemed to...reactions6comments
Your Experience Terminating Being Under the Care of a Doctor...Many of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide...reactionsrepliesTreatmentNewly DiagnosedHealthcare Team
Myths and Facts About Steroids...Corticosteroids, commonly referred to as "steroids," are a class of drugs used to treat a variety of medical conditions. There are many...reactions4comments
Seronegative MG...Myasthenia gravis had been a background disease for a good portion of my life until I was roughly 45. I sometimes wonder...reactions25comments
MG Flare...What are some ways you get through a Myasthenia flare? It's so disappointing after things have been doing better for a while...reactions5repliesCoping
Coping with Stress When You Have MG...The last few years, I’ve been under a lot of stress. As with anyone, even when we’re happy and feel stress-free, stress...reactions1comment
Should I Wear a Medical Alert Bracelet for MG?...Myasthenia gravis (MG) is a condition in which the immune system attacks healthy cells in places where the nerves connect to the...reactions7comments
Medicare supplements/disability...Hello! I will soon be eligible for Medicare for disability. I am fortunate to live in a state where I can purchase...reactions2repliesInsurance & Disability
Travel with refractory MG...Hi friends! I have severe, refractory MG-diagnosed at onset 2 years ago-no other health conditions. I would very much like to travel...reactions1reply
Diplopia and prisms?...I was just seen by the optometrist in the ophthalmologist’s office. When I told him that I was still having double vision...reactions11repliesVisionAssistive Devices
I Have Lived with MG Most of My Life...I was diagnosed with MG in 1969 at the age of six. It took forever to figure out what was wrong with...reactions4comments
My Story Continues......Yes, I was diagnosed last September. I shared my story a few weeks back. As time has gone by I have been...reactions2comments
Unprofessional/rude healthcare professionals ...I had a neurologist appointment today with a new neurologist I'd not met before and it was such a bad appointment. I'm...reactions2repliesHealthcare TeamCoping
Financial Assistance Available Through The National Organization for Rare Diseases...NORD is a non-profit organization. This is from their website. "We provide patient assistance programs to help individuals living with rare diseases:...reactions2repliesCostInsurance & DisabilityResearch & Clinical Trials
FeaturedDo You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?...Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered...reactions186repliesSeronegativeTreatmentDiagnosis
