Rheumatologist...In my search for a new Neurologist I have read that a Rheumatologist may be a better choice, if available, to help...reactions8replies
Huperzine-A...I have found that Huperzine-A (a Chinese herb) was originally found to be of help with Alzheimer, has shown some value with...reactions1reply
Potassium...My readings tell me that low potassium can affect one’s muscles. Once upon a time I went in for a kidney stone...reactions8replies
How Long Have / Did You Experience Discomfort After Thymectomy?...It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides...reactions2repliesThymectomyTreatmentNewly Diagnosed
Juggling Myasthenia Gravis and Other Health Conditions...Traveling the world, mountain and rock climbing, skydiving, deep sea fishing, going to an arts performance, or simply going to a sporting...reactions7comments
Active 6 days agoLeg and Foot Cramping and Pain...Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience...reactions778repliesSleepSide EffectsSymptoms
What 3 Factors Worsen Your MG?...What 3 factors worsen your myasthenia gravis (MG)? I bet we can all answer that question. Here are my 3: fatigue, infection...reactions10comments
The Eyes Have It...Some years ago I started having a problem seeing. One of my eyes was crossing and I could not focus or see...reactions3comments
Thymectomy Surgery 70 Year Old Woman...I’m a woman who was diagnosed with MG in August 2020 at the age of 70. My symptoms then included double vision...reactions3replies
Working Full-Time...I was diagnosed in November so I am virtually new. I'm on 5mg of prednisolone and pyridostigmine 90mg 4 times a day...reactions8replies
Muscle Spasms...I was diagnosed in 1995 I had no mobility at all I take mestinon and Prednisone to stay stable. I notice I...reactions2replies
Mg and asthma...I have been treated since2001 for Mg. Briefly prior to that they said I had asthma. Mg was diagnosed and asthma treatment...reactions10repliesGeneralized MGHealthcare Team
Seronegative diagnosis and two rare genetic diseases...I’ve tried posting as a status and it it’s won’t go. It’s been a really crappy couple of months. I’m so over...reactions1replyAutoimmune DiseasesCostDiagnosis
Treatment with ULTOMIRIS...Has anyone received ULLTOMIRIS infusions and what were your results?...reactions5replies
Don't Let Urinary Incontinence Put Your Life on Hold...There is limited research on urinary incontinence as a symptom of myasthenia gravis (MG). In my experience, not all doctors will associate...reactions22comments
mg and eye surgery...I am scheduled for a vitrectomy eye surgery for a macular hole ,I am very nervous and am wondering if anyone else...reactions3repliesVisionSurgery
Finding a Doctor Who Understands MG...There is a need for better disease management for myasthenia gravis (MG). According to a 2022 report, people with MG had the...reactions26comments
MG Flare Treatment...My wife suffered an MG Flare one month ago. She went to the hospital and received IVIG. She came home for one...reactions2replies
MG Flare...Could an MG Flare be caused by surgery of knee replacement two months prior to the Flare?...reactions1replySurgery
Brain Fog...I am 6 months into my MG diagnosis. Right now doing OK with Pyridostigmine. Lately, I have been having trouble with brain...reactions31repliesCopingSymptoms
