Pyridostigmine...I was just diagnosed about a 5 weeks ago, doc put me on 60mm of Pyridostigmine 3x a day. I feel no change, Doc said first, it could take up...Reactions0reactionsComments7 repliesGeneralized MGDiagnosis
Thank You for Taking Our Survey!...We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with myasthenia gravis. New here? We invite you to explore... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments0 comments
My Life with Myasthenia Gravis...As best as I remember, my symptoms started around age 10. My first symptom was difficulty using my hands and fingers along with extreme constipation. It was to the point... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments4 comments
What If?...I feel anxious and fearful. What if my symptoms come back? What if the medication stops working? What if I have to go back to surviving; hungry, tired, and unable... By Jessica Liao2 min readBookmark for laterReactions0reactionsComments1 comments
New Drug...I just started the new drug Vyvgart, I am on the fourth dose given over 4 weeks with a break in between I am feeling a lot better. I was... By nlocurcio1 min readBookmark for laterReactions0reactionsComments2 comments
Two Autoimmune Diseases...I was diagnosed with MG on June 2, 2021. The first major symptom was waking up with double vision. After seeing my PCP, he sent me to an ophthalmologist the... By Mark1 min readBookmark for laterReactions0reactionsComments1 comments
Gardening Safely When You Have MG...When you're finished reading this article, check out part 2, "Gardening and Harvesting Adjustments for MG." Spring is just around the corner, so it won’t be long until it’s warm... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments1 comments
Take the Health and Media Habits Survey!...Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media do you use to relax or even find information about your condition?... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments0 comments
A Little Help From Friends...A rare disease, unique and varied symptoms, a scarcity of specialists ... all these things make people with myasthenia gravis (MG) feel isolated and starved for good contacts. In a world... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments2 comments
Does Prednisone help with fatigue?...Hello, Was diagnosed with MG last month. I am trying to be ultra conservative with my approach. So far I have been taking Mestinon 3x per day as a muscle...Reactions0reactionsComments4 repliesThymectomyGeneralized MGDiagnosis
Recovering After My First Myasthenia Flare-Up...In case you missed it, check out part 1 of this article, "Dealing with My First MG Flare-Up." My myasthenia gravis symptoms had finally subsided, and I was doing pretty... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments2 comments
Possibility of only Ocular MG and not worse symptoms...I've had a sleepy eye in one eye for 30+ years. I'm currently approaching 60. At least my wife has noticed that I've had a droopy eye for our entire...Reactions0reactionsComments4 repliesAwarenessTips & AdviceCoping
Could I have MG?...Two weeks after receiving the COVID 19 booster dose, I began to feel dizzy and light-headed while walking. All of my blood work came back normal. I went to the...Reactions0reactionsComments6 repliesAutoimmune DiseasesDiagnosis
Borderline achr antibodies...Hey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline" raised (reference range where I am is 0.0-0.59)...Reactions0reactionsComments4 repliesGeneralized MGDiagnosis
My Experience with COVID...Despite knowing it was more than likely inevitable, I caught COVID. I believe this is actually my second time, however, the first time wasn’t confirmed. It was too early in... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments0 comments
Dealing with My First Myasthenia Flare-Up...Most of us who live with myasthenia gravis (MG) will experience a flare eventually. I’ve had some minor flares since my initial diagnosis, but they usually last for a very... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments2 comments
How to Talk to Children About Your Myasthenia Gravis...Talking with your children about your myasthenia gravis (MG) can cause major anxiety. You do not know how your child will react. You might worry that they will get upset... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments1 comments
What causes Myasthenia gravis...When I was in the military I was in contact with JP-5 fuel frequently for 4 years. It is said by the department of health that it affects the nervous...Reactions0reactionsComments3 repliesAutoimmune Diseases
Pain with myasthenia ...I have recently been diagnosed with myasthenia, antibody musk. I will start treatment as soon as my insurance allows. I am having pain in my neck. Are there stretches that...Reactions0reactionsComments6 repliesMuscle Weakness
Finding a Caregiver for Someone with MG...Life with myasthenia gravis (MG) often requires assistance and support. This care varies by the severity of symptoms and ranges from skilled hands-on work to simple errands. Handling all of... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments