Pillow Packin'...Years ago while undiagnosed, I was desperately looking for ways to help me cope. My muscles were so tired, weak, and hurt so bad at times that I could not...Reactions0reactionsComments7 comments
What Is Mental Health?...Mental health is the range of thoughts, emotions, and behaviors that affect your well-being and how you relate to others. Just like good physical health, good mental health is vital...
new medication...Looking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts? side effects? Mu husband has occular MG which...Reactions0reactionsComments7 repliesTreatment
MYOCLONUS ...Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain in the past. Now only mild activity brings...Reactions0reactionsComments10 repliesGeneralized MGSleepSymptoms
Lessons Learned from IVIG...When I was first diagnosed with myasthenia gravis (MG) in 2015, I was extremely underwhelmed by the number of treatment options. Somehow I was also extremely overwhelmed with the idea...Reactions0reactionsComments12 comments
Sleep Disturbance...Not sure if many with MG have this or not but was wondering if sleep disturbances are common with MG. I am having a terrible time falling and then staying...Reactions0reactionsComments8 repliesSymptoms
Myasthenia Gravis Diagnosis After the Age of 55: The Risks...In case you missed it, check out part 1 of this article, "A Myasthenia Gravis Diagnosis After the Age of 55." The "wild ride" I was on was a turning...Reactions0reactionsComments1 comments
Might it be MG?...Right, for the last 18 months I have experienced double vision (vertical) accompanied by a tightness over my head from temple to temple whenever I bend down and do something...Reactions0reactionsComments4 repliesDiagnosis
Crisis Time...With a condition as rare as myasthenia gravis (MG), caregivers are often challenged to advocate for appropriate care. That can sometimes require a lot of preparation and a surprising level...Reactions0reactionsComments0 comments
Covid and Paxlovid...Hi just wondering if anyone has taken Paxlovid for Covid? Paxlovid is an anti viral treatment which has FDA emergency use authorization. I was given this after testing positive for...Reactions0reactionsComments3 repliesSide EffectsAwarenessHealthcare Team
Active todayPain when swallowing....I know that a lot of us have difficulty swallowing. When I am overtired or it’s time for medication I can have difficulty swallowing with pain, sometimes a good bit...Reactions0reactionsComments8 repliesSymptoms
My Experience with Prednisone...There aren’t many treatment options for myasthenia gravis (MG) so when we find one that actually works, it’s like hitting the lotto, even when that treatment comes with a ton...Reactions0reactionsComments8 comments
Struggling with myasthenia gravis ...Hello friends, It is a pleasure to meet you all. I have been diagnosed with MG since 2014. I have been struggling with it in refugee camp without proper medication...Reactions0reactionsComments13 repliesCoping
A Myasthenia Gravis Diagnosis After the Age of 55...I learned little about myasthenia gravis (MG) when I went through nursing school, graduating in 1972. However, one of the main things I remember about myasthenia was that the onset...Reactions0reactionsComments6 comments
FeaturedVyvgart...Did anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs with no symptoms until Feb of this year...Reactions0reactionsComments51 repliesAutoimmune DiseasesTreatment
Be Your Own Agent - or Theirs...There is a term educators use that seems simple, but is really pretty deep. It’s agency - the sense that what you do and what you get are related. A...Reactions0reactionsComments0 comments
Causes of Minor MG Flares and How to Deal with Them...Ever since my medication change to mycophenolate (CellCept), I’ve done quite well! I’ve had very minor issues since then and I’ve lost about half of my prednisone weight. I’m glad...Reactions0reactionsComments5 comments
Myasthenia-gravis.com Giveaway Terms and Conditions...These Official Rules apply to any giveaway (or "Promotion") published on MYASTHENIA-GRAVIS.COM, a Health Union ("Health Union" or "We") owned and operated website. For conflicts between the Promotional giveaway article...Reactions0reactionsComments0 comments
Having Myasthenia Gravis, COVID, and Pneumonia...While I realize that everyone's experience can be different, this is a personal account of my experience with COVID-19 and myasthenia gravis (MG). In January 2021, I was in a...Reactions0reactionsComments5 comments
My MG...After reading all of your stories about MG, I am glad not to be the only one with this. I was diagnosed in April 2019 with a pretty bad case...Reactions0reactionsComments8 comments
