What Is the Social Health Network Community?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...reactionscomments
Any side effects of long term IVIG treatment? ...I am now 53 years old. I got diagnosed with Thymoma in Dec 2020. Had surgery in February 2021. After surgery, in April 2021 I started slurry speech and difficulty...reactions3replies
Your Azathioprine (Imuran) Side Effect Experience...Azathioprine, also known as Imuran, can cause several side effects, commonly including nausea and vomiting. Long-term usage can cause cancer and infection risk increases. Has your Myasthenia gravis ever been...reactions3repliesNewly DiagnosedSide EffectsTreatment
Not Recognizing the Person I See in the Mirror With MG...Have you looked in a mirror and not recognized the person you saw? As we watch our physical appearance change, it can damper our mental health. Appearance can affect our...reactions2comments
Living in Remission...My myasthenia gravis came on with a vengeance in the midst of a major business-related stress situation. Double vision and alternately drooping eyelids were constant for the next 8 years...reactions3comments
Active 3 days agoOcular MG...I have been living with ocular MG for almost 8 years now and my symptoms are getting worse. I am now going for eye therapy as a last resort. I...reactions8replies
Trying to Stay Positive When Living with Myasthenia Gravis...One of the hardest things to do when living with any chronic health condition is trying to stay positive. I was diagnosed with seronegative myasthenia gravis (MG) about 2 years...reactionscomments
FeaturedWaiting Sucks...Hello! I haven’t been officially diagnosed but I think it might be right around the corner. I’m waiting on some bloodwork and my follow up is on Dec 1st. In...reactions5replies
Working with MG...Hi everyone, I was diagnosed with OMG in April and am working full time in office. I am unsure how to navigate having a conversation with my employer about the...reactions3repliesMental HealthTips & AdviceDepression
Life as a Military Spouse Living with MG...Shortly after my myasthenia gravis diagnosis in 1995, I married my college sweetheart who was an Ensign in the US Navy. I remember being so concerned that I wouldn’t be...reactionscomments
When Is It Too Much?...Some mornings I wake up and I know right from the start ... today I just need to rest. Now mind you, I do have to take Mestinon every 2...reactions8comments
Mid-diagnosis journey and have a few questions ...Hi there, having been referred to neurology earlier in the year with a drooping right eyelid, I am now in the midst of tests and scans; blood tests came back...reactions2replies
Furniture for MG Weakness...Let’s talk about living room and dining room furniture since that’s where we spend a lot of time. My husband and I are both tall, as are our children. Low...reactionscomments
Cooking with MG...Like so many others, I have had difficulty eating and even more difficulty in cooking my own meals. As such, I have become dependent on family members for food and...reactions11repliesCopingDiet & Nutrition
New to Myasthenia...7 months ago I went to work and had pressure on the left side of my head and in my ear. As I was triaging a patient I felt my...reactions4repliesOcular MG
Heat/Sweat...Dear friends, Before I ever even had one symptom of MG that I knew of I started having a problem. I would be at work and if I got the...reactions1reply
Surviving Myasthenia Gravis...Word to the wise, especially for those living with myasthenia gravis (MG) at a young age: Us adults are all just faking it 'til we make it. It’s true. As...reactions3comments
My Unexpected Insurance Company Ally...Myasthenia gravis (MG) can be scary when you are left by yourself to figure out what is going on. Knowing who to call when you think there is a problem...reactionscomments
How to Approach Gardening When You Have Physical Limitations...I have always loved gardening. I guess you could say "it’s in my blood." I’m a farmer’s daughter originally from Kansas. I pretty much did it all, just like my...reactionscomments
Starting My MG Journey...I was setting this down to help my own recollection, but I find I have a lot of questions, so maybe someone would like to comment on some of the...reactions3replies
