Should I Wear a Medical Alert Bracelet for MG?...Myasthenia gravis (MG) is a condition in which the immune system attacks healthy cells in places where the nerves connect to the...reactions7comments
Medicare supplements/disability...Hello! I will soon be eligible for Medicare for disability. I am fortunate to live in a state where I can purchase...reactions2repliesInsurance & Disability
Travel with refractory MG...Hi friends! I have severe, refractory MG-diagnosed at onset 2 years ago-no other health conditions. I would very much like to travel...reactions1reply
Diplopia and prisms?...I was just seen by the optometrist in the ophthalmologist’s office. When I told him that I was still having double vision...reactions11repliesVisionAssistive Devices
I Have Lived with MG Most of My Life...I was diagnosed with MG in 1969 at the age of six. It took forever to figure out what was wrong with...reactions4comments
My Story Continues......Yes, I was diagnosed last September. I shared my story a few weeks back. As time has gone by I have been...reactions2comments
Unprofessional/rude healthcare professionals ...I had a neurologist appointment today with a new neurologist I'd not met before and it was such a bad appointment. I'm...reactions2repliesHealthcare TeamCoping
Financial Assistance Available Through The National Organization for Rare Diseases...NORD is a non-profit organization. This is from their website. "We provide patient assistance programs to help individuals living with rare diseases:...reactions2repliesCostInsurance & DisabilityResearch & Clinical Trials
FeaturedDo You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?...Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered...reactions186repliesSeronegativeTreatmentDiagnosis
Prosthetic Contact Lenses...Have you tried prosthetic contact lenses? Did they improve your Myasthenia gravis eye symptoms and vision? - Jodi, Team Member...reactions3repliesVisionTreatmentCoping
Myasthenia Gravis Does Not Stop Us From Making Memories...Since my myasthenia gravis (MG) diagnosis, I have endured my hands going weak when I use them intensely. I have been on...reactions3comments
Managing expectations...Hey folks - I'm pretty new to this, having been diagnosed with antibody positive MG in January. Currently, I am only experiencing...reactions4repliesOcular MGSymptomsSurgery
Getting a Second Opinion...A diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your diagnosis. You...reactions4comments
Devastating Personal Experience...I had a heart stent implanted. The following day, I could not walk, the pain was too much. My doctor said it...reactions7comments
Anti-MuSK Myasthenia Gravis...This past December, I had all the symptoms of myasthenia but my clinic, after some blood work, said that I had a...reactions3comments
Numbness and tingling in limbs...I have recently been diagnosed as having MG with MuSK. About 5 months ago I started feeling pain around my right elbow...reactions3replies
Surgery caused an MG crisis and Death (Throat stopped working)...My mom (74 yrs. old) recently passed away after being approved for a surgery to fix her broken arm. The anesthesia and...reactions3repliesSurgeryCrisisTriggers
Can MGnegative patient take VYTGARD...My doctor subscribed it for me and I am MG negative FDA only approved for MG positive...reactions2repliesGeneralized MG
Spouse has MG and Fibromyalgia ...How are you handling a spouse with MG and Fibro? How are your spirits? I am frustrated and I know she is...reactions3repliesIntimacy & RelationshipsFriends & FamilyCaregiving
Mestinon causing too frequent bowel movements....Does anyone else have this problem and is there a work around? I am currently taking half of a 60 mg three...reactions4replies
