double vision...For dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...reactions17repliesGeneralized MGTreatmentVision
Does IVIG work?...Hello, I have generalized MG confirmed by blood work at age 35. Prednisone made me feel better but I stopped taking it after reading how it can destroy your body...reactions1replyGeneralized MG
Statins and Beta Blockers...I have read in various articles that taking Statins or Beta Blockers facilitates OMG. Discussed with Cardiologist and he became defensive that it was proven fact through research that they...reactions13repliesTreatment
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team to manage your condition. However, there are other...
Swings of emotions following diagnosis ...I'm pretty new here, I'm experiencing huge swings of emotions following diagnosis. From extreme relief and happy that I have an answer to real anger and crying over being ignored...reactions4repliesNewly DiagnosedCopingTips & Advice
Botox® and MG...Botox® injections work by temporarily weakening muscles and are a common procedure with several uses. They are commonly used to minimize wrinkles. But they can also treat certain conditions. For...reactions3comments
My Muscles with Myasthenia Gravis...Our muscles are funny things. If we don't use them, we lose them. Our muscles have memory and remember how to do things. But when you have myasthenia gravis (MG)...reactions2comments
The Holidays with Myasthenia Gravis...I remember the busy days of preparing for the holidays. There was always so much to do, but I never gave it a second thought. Between preparing meals, decorating, shopping...reactions4comments
My MG Progression...My myasthenia gravis (MG) symptoms first began in 2013. I should say "symptom" because it was only vision issues. I never had a droopy eyelid, and I couldn’t really explain...reactions3comments
Awful problems after covid jab ...Smell in the nose. Occasionally hot and sweaty problems with eyes could that be the vaccine or covid itself...reactions2repliesGeneralized MGMuscle WeaknessSide Effects
Tapering Off Mestinon?...I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms to get worse even if I don't have...reactions4repliesMuscle WeaknessGeneralized MGTreatment
MG Versus MS...Myasthenia gravis (MG) is a chronic (long-term) condition that affects your muscles and causes weakness. Multiple sclerosis (MS) is also a chronic condition. MS can sometimes cause symptoms that are...reactionscomments
Side Effects From Pyridostigmine(Mestinon)...Have you experienced any side effects from the MG treatment Pyridostigmine, commonly called Mestinon? This article on our website, https://myasthenia-gravis.com/treatment/ache-inhibitor, discusses the side effects of these kinds of medications, acetylcholinesterase...reactions19repliesSide EffectsTreatmentDiagnosis
How To Play Doctor ... Or Not...One of the hardest things about advocating for a patient with a rare disease is the uncertainty of the information that we want to share. Only about 14 in every...reactions2comments
Evacuating and Relocating Due to Natural Disasters With MG...Hurricanes, fires, earthquakes, tsunamis, tornados, avalanches, ice storms, sinkholes, eruptions, flooding, blizzards, and landslides. Natural disasters are devastating phenomena entirely out of our control. I'm located in South Florida and...reactionscomments
Mycophenolate Mofetil 500mg...Last year was a milestone making 80, Octogenarian status, but challenge with multiple health concerns, full hysterectomy finding ovarian cancer, stage 3, chemo (now in remission thank God); urinary infection...reactions8repliesOcular MG
What Should I Do?...I went to BWH and meet with Dr. Dou.... a 150-mile round trip. He wanted to continue to see me, but it is too difficult for me to drive there...reactions6replies
EMG test on Mestinon?...Hi, I have been put on Mestinon 90mg every 4 hours during the day and 180 mg time release at night. Should I be on Mestinon while receiving an EMG...reactions7repliesGeneralized MGSeronegative
OMG and other medications I’m taking ...Hi all. I’m in the UK. Diagnosed with OMG 10 years ago when I was 42. Remitting and relapsing. Went into remission for a good few years then this year...reactions4repliesOcular MG
Drugs and Vaccines to Avoid With Myasthenia Gravis...Myasthenia gravis (MG) is a rare disorder of the immune system. MG affects how some muscles and nerves communicate. Many people living with MG experience muscle weakness. Certain types of...reactions24comments
