Covid and Paxlovid...Hi just wondering if anyone has taken Paxlovid for Covid? Paxlovid is an anti viral treatment which has FDA emergency use authorization. I was given this after testing positive for...Reactions0reactionsComments3 repliesSide EffectsAwarenessHealthcare Team
Pain when swallowing....I know that a lot of us have difficulty swallowing. When I am overtired or it’s time for medication I can have difficulty swallowing with pain, sometimes a good bit...Reactions0reactionsComments8 repliesSymptoms
My Experience with Prednisone...There aren’t many treatment options for myasthenia gravis (MG) so when we find one that actually works, it’s like hitting the lotto, even when that treatment comes with a ton... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments8 comments
Struggling with myasthenia gravis ...Hello friends, It is a pleasure to meet you all. I have been diagnosed with MG since 2014. I have been struggling with it in refugee camp without proper medication...Reactions0reactionsComments13 repliesCoping
A Myasthenia Gravis Diagnosis After the Age of 55...I learned little about myasthenia gravis (MG) when I went through nursing school, graduating in 1972. However, one of the main things I remember about myasthenia was that the onset... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments6 comments
FeaturedVyvgart...Did anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs with no symptoms until Feb of this year...Reactions0reactionsComments51 repliesAutoimmune DiseasesTreatment
Be Your Own Agent - or Theirs...There is a term educators use that seems simple, but is really pretty deep. It’s agency - the sense that what you do and what you get are related. A... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments0 comments
Causes of Minor MG Flares and How to Deal with Them...Ever since my medication change to mycophenolate (CellCept), I’ve done quite well! I’ve had very minor issues since then and I’ve lost about half of my prednisone weight. I’m glad... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments5 comments
Myasthenia-gravis.com Giveaway Terms and Conditions...These Official Rules apply to any giveaway (or "Promotion") published on MYASTHENIA-GRAVIS.COM, a Health Union ("Health Union" or "We") owned and operated website. For conflicts between the Promotional giveaway article... By Editorial Team 5 min readBookmark for laterReactions0reactionsComments0 comments
Having Myasthenia Gravis, COVID, and Pneumonia...While I realize that everyone's experience can be different, this is a personal account of my experience with COVID-19 and myasthenia gravis (MG). In January 2021, I was in a... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments5 comments
My MG...After reading all of your stories about MG, I am glad not to be the only one with this. I was diagnosed in April 2019 with a pretty bad case... By Pep16871 min readBookmark for laterReactions0reactionsComments8 comments
Tremors, muscle twitches...Hello dear forum friends. I’m a newbie here and learning a lot from you all. I am AChR positive, bulbar presentation with lost voice and swallowing issues. Did 5 plasmapheresis...Reactions0reactionsComments27 repliesMuscle WeaknessSymptoms
Dealing with MG Weakness and Misconceptions...There is a misconception that if our legs are weak from myasthenia gravis (MG), all we have to do is quit being lazy and exercise! People wonder, "Why do you... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
Ask the Advocate: Diagnosis and Grief...Life looks different after a myasthenia gravis (MG) diagnosis. It may take some time to process these changes. While everyone responds differently, grief is a natural reaction and can even... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
The High Cost of MG Medication and Care...The medical bills that accumulated during my initial diagnosis and treatment of myasthenia gravis (MG) came to thousands of dollars. Fortunately, I had good insurance, so most of those expenses... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments2 comments
The Impact of Ethnicity in Myasthenia Gravis...Health disparities are prevalent across all diseases. They encompass factors not just related to ethnicity. Health disparities are based on other factors such as sex, sexual orientation, immigration status, age... By Canadian Pharmacist2 min readBookmark for laterReactions0reactionsComments0 comments
Healthcare team...…Looking for MD whose primary specialization is MG..seen too many who were useless. I live on Long Island, NY. Anyone out there who can help me? Thank you!...Reactions0reactionsComments4 repliesHealthcare Team
3 Things That Help Our Relationships While Living with MG...Relationships are beautiful, but they can also be complicated. They take work and they take effort. Throwing a chronic illness into the mix just complicates them further. Sometimes we don’t... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments0 comments
Gardening and Harvesting Adjustments for MG...In case you missed it, check out part 1 of this article, "Gardening Safely When You Have MG." In the days since COVID began, gardening has been on the rise... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
breathing problems with mg...Hi I was diagnosed with generalized mg nine months ago .I am currently taking a range of medication . pyridostigmine and immunosuppressants plus I also recieve immunoglobulin treatment every month...Reactions0reactionsComments7 repliesGeneralized MG
