Enter Our Awareness Month Giveaway...*This giveaway has closed but we still welcome community members to share their coping strategies.* In honor of Myasthenia Gravis Awareness Month, we're gifting one lucky winner a copy of...Reactions0reactionsComments68 repliesAwarenessCoping
I Wish I Had Said …...Everyone has those moments. You are surprised by a comment. It could be from a stranger or a close acquaintance. They say something about your visible symptoms or limitations. Or they...Reactions0reactionsComments0 comments
Combat Fatigue with Rest and Planning Ahead...When we have a disease such as myasthenia gravis, how do we function? How do we continue to work, do our chores, be a spouse, a parent, cook, go shopping?...Reactions0reactionsComments8 comments
Bladder Problems and Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune disease that causes weakened muscles. With MG, the nerves are not able to communicate with muscles well. MG can affect people at any age...Reactions0reactionsComments19 comments
MuSK MG...... ... anyone out there with MuSK MG? Hello, I have just been diagnosed with MuSk MG and am awaiting my first appointment with a nuero muscular specialist nuerologist. Wondering...Reactions0reactionsComments4 replies
Muscles...Hi I'm new here and waiting for blood results achr & musk. Can anyone help,I have graves disease,TED and pernicious anemia. My eye Dr requested blood tests as have one...Reactions0reactionsComments9 repliesMuscle Weakness
My Life Changing, Life Destroying Story...My name is Stephen, I reside in the North East of England. I've never enjoyed great health since 2003 when I developed chronic recurring nasal polyps, and I'm now five...Reactions0reactionsComments4 comments
A Different Kind of Prescription...When I was first diagnosed with myasthenia gravis, I remember thinking that the Mestinon my doctor prescribed would just make all my symptoms go away. I remember him describing it...Reactions0reactionsComments22 comments
How do I manage this mysthania ?gravis...Hi Am ifeoma I started experiencing weakness in 2010 because I was pregnant I thought it was one of the symptoms of pregnancy. After birth it continues that I have...Reactions0reactionsComments1 repliesAwareness
Excited for Spring...It's spring here and I'm rather excited! Now, that might seem strange to say being that I have myasthenia gravis (MG) and I can't do a lot. Although my medications...Reactions0reactionsComments2 comments
Plasma aphersis ...Wondering if anyone knows. If getting 10treaments of plasma aphersis (didn’t work) am I losing any of protection from the Covid shots had 3. Drs didn’t answer me either!!! Dr...Reactions0reactionsComments2 repliesAutoimmune Diseases
Rebekah Dorr...I have been living with MG for nearly 11 years and I have worked as a patient educator, clinical advocate and online community leader for a little over 8 years...
Thymus gland...Do i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that it can only improve by 30 % if...Reactions0reactionsComments4 repliesTreatmentThymectomy
Long-Term Side Effects of Prednisone...Most people with myasthenia gravis (MG) are familiar with prednisone, a common drug prescribed during flares. Prednisone belongs to the drug class called corticosteroids. This class of medications have been...Reactions0reactionsComments5 comments
Low-dose naltrexone...Hello everyone There's someone here who has heard of or is taking LDN ?...Reactions0reactionsComments9 repliesGeneralized MGTreatment
Is Myasthenia Gravis Genetic?...Do your genes play a role in whether you will develop myasthenia gravis (MG)? There are no known risk factors for the disease. But, scientific research continues to shed light...Reactions0reactionsComments6 comments
Im frustrated with testing...I started with pretty extreme weakness in my legs and pain in my back and hips. My primary ruled out orthopedic causes and referred me to a neurologist. I am...Reactions0reactionsComments4 repliesSeronegativeCopingMuscle Weakness
I was born in 1956 . There was something wrong with my muscles...my brother had it too......We were tested for MS and other neurological diseases. We had very heavy eyelids and our eyes did not move. We were diagnosed with MG at the Univercity of Chicago...Reactions0reactionsComments3 repliesCoping
Struggles with Myasthenia Gravis Fatigue and Pain...I will be doing a series of articles about how to make life a little easier when you have myasthenia gravis (MG). The articles will be centered around bathing, grooming...Reactions0reactionsComments0 comments
Having Surgery Without a Neurologist Consult...We all know there’s a certain amount of risk with surgery and anesthesia under the best of circumstances. Surgeons and anesthesiologists talk to their patients about the expected results and...Reactions0reactionsComments0 comments
