Plasma aphersis ...Wondering if anyone knows. If getting 10treaments of plasma aphersis (didn’t work) am I losing any of protection from the Covid shots had 3. Drs didn’t answer me either!!! Dr...Reactions0reactionsComments2 repliesAutoimmune Diseases
Rebekah Dorr...I have been living with MG for nearly 11 years and I have worked as a patient educator, clinical advocate and online community leader for a little over 8 years... By Editorial Team 1 min readBookmark for later
Thymus gland...Do i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that it can only improve by 30 % if...Reactions0reactionsComments4 repliesTreatmentThymectomy
Long-Term Side Effects of Prednisone...Most people with myasthenia gravis (MG) are familiar with prednisone, a common drug prescribed during flares. Prednisone belongs to the drug class called corticosteroids. This class of medications have been... By Canadian Pharmacist2 min readBookmark for laterReactions0reactionsComments5 comments
Low-dose naltrexone...Hello everyone There's someone here who has heard of or is taking LDN ?...Reactions0reactionsComments9 repliesGeneralized MGTreatment
Is Myasthenia Gravis Genetic?...Do your genes play a role in whether you will develop myasthenia gravis (MG)? There are no known risk factors for the disease. But, scientific research continues to shed light... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments4 comments
Im frustrated with testing...I started with pretty extreme weakness in my legs and pain in my back and hips. My primary ruled out orthopedic causes and referred me to a neurologist. I am...Reactions0reactionsComments4 repliesSeronegativeCopingMuscle Weakness
I was born in 1956 . There was something wrong with my muscles...my brother had it too......We were tested for MS and other neurological diseases. We had very heavy eyelids and our eyes did not move. We were diagnosed with MG at the Univercity of Chicago...Reactions0reactionsComments3 repliesCoping
Struggles with Myasthenia Gravis Fatigue and Pain...I will be doing a series of articles about how to make life a little easier when you have myasthenia gravis (MG). The articles will be centered around bathing, grooming... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
Having Surgery Without a Neurologist Consult...We all know there’s a certain amount of risk with surgery and anesthesia under the best of circumstances. Surgeons and anesthesiologists talk to their patients about the expected results and... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
Pillow Packin'...Years ago while undiagnosed, I was desperately looking for ways to help me cope. My muscles were so tired, weak, and hurt so bad at times that I could not... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments7 comments
What Is Mental Health?...Mental health is the range of thoughts, emotions, and behaviors that affect your well-being and how you relate to others. Just like good physical health, good mental health is vital... By Editorial Team 4 min readBookmark for later
new medication...Looking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts? side effects? Mu husband has occular MG which...Reactions0reactionsComments7 repliesTreatment
MYOCLONUS ...Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain in the past. Now only mild activity brings...Reactions0reactionsComments10 repliesGeneralized MGSleepSymptoms
Lessons Learned from IVIG...When I was first diagnosed with myasthenia gravis (MG) in 2015, I was extremely underwhelmed by the number of treatment options. Somehow I was also extremely overwhelmed with the idea... By Mallory San Nicolas5 min readBookmark for laterReactions0reactionsComments12 comments
Sleep Disturbance...Not sure if many with MG have this or not but was wondering if sleep disturbances are common with MG. I am having a terrible time falling and then staying...Reactions0reactionsComments8 repliesSymptoms
Myasthenia Gravis Diagnosis After the Age of 55: The Risks...In case you missed it, check out part 1 of this article, "A Myasthenia Gravis Diagnosis After the Age of 55." The "wild ride" I was on was a turning... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments1 comments
Might it be MG?...Right, for the last 18 months I have experienced double vision (vertical) accompanied by a tightness over my head from temple to temple whenever I bend down and do something...Reactions0reactionsComments4 repliesDiagnosis
Crisis Time...With a condition as rare as myasthenia gravis (MG), caregivers are often challenged to advocate for appropriate care. That can sometimes require a lot of preparation and a surprising level... By Juliana Texley2 min readBookmark for laterReactions0reactionsComments0 comments
Covid and Paxlovid...Hi just wondering if anyone has taken Paxlovid for Covid? Paxlovid is an anti viral treatment which has FDA emergency use authorization. I was given this after testing positive for...Reactions0reactionsComments3 repliesSide EffectsAwarenessHealthcare Team
