Not reacting to treatments...Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV...reactions1replyCaregivingAutoimmune DiseasesGeneralized MG
I never heard of myasthenia gravis until the neuroglist said I have it. ...I noticed that I would occasionally have double vision and that my left eye was not behaving. Having had retina problems, I...reactions16repliesOcular MGSide Effects
What Time of the Year Is Best and Worst for Your MG?...Myasthenia gravis can be triggered uniquely for each individual that lives with it. The time of the year may affect how many...reactionsrepliesTriggersSymptomsWeather
Did Your MG First Symptoms Happen All at Once, a Crisis?...A Myasthenic Crisis is the most severe event Myasthenia gravis can cause. Although it can vary, a crisis typically involves weakening multiple...reactionsrepliesNewly DiagnosedCrisisAwareness
Do You Have a Preference of Older or Younger Doctors to Treat MG?...Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or...reactionsrepliesHealthcare TeamTreatmentNewly Diagnosed
Myasthenia Gravis and Reducing My Mestinon Dosage...We’ve just passed the 2 year anniversary of my thymectomy, and the results I've seen continue to impress. I'm currently on the...reactions18comments
Don’t Waste Energy Stressing Over Things That Didn’t Work in Your Favor...During a recent paddleboarding outing, my boyfriend and I were returning to the boat ramp, only minutes away, when I hit a...reactionscomments
Myasthenia Gravis and Cardiovascular Medication...Myasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and...reactions20repliesTreatmentSymptomsNewly Diagnosed
MG Terminology...I bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we...reactions2repliesDiagnosisAwarenessNewly Diagnosed
Neck Pain...Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it?...reactionsrepliesSymptomsTips & AdviceMuscle Weakness
Not Ready for Summer...Now don't get me wrong, I love summer. Well ... I used to love summer! But the longer I live with myasthenia...reactions13comments
Gabapentin and Myasthenia Gravis...Gabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure...reactions27repliesTreatmentTriggersNewly Diagnosed
Had You Heard of Myasthenia Gravis Before Your Diagnosis?...When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from...reactions50repliesDiagnosisNewly DiagnosedAwareness
Soliris (Eculizumab) Outcome & Side Effects...Eculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you...reactionsrepliesTreatmentRefractory MGGeneralized MG
Are You a Diabetic With Myasthenia Gravis?...Do you have diabetes as well as Myasthenia gravis? We would love it if you could share your experience and what your...reactions4repliesHealthcare TeamTreatmentNewly Diagnosed
How Do You Cope With Hot Temperatures?...Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the...reactions66repliesCopingSymptomsWeather
Do You Have MuSK or LRP4 Antibodies?...Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause...reactions5repliesDiagnosisTypesAwareness
Box Breathing and How It Helps With Stress...Our lives are filled with family obligations, work and school responsibilities, healthcare appointments, and busy schedules. Stress is a normal part of...reactions7comments
My Youngest Grandson's Opinion About My MG...Our grandsons were over visiting and they were asking to go outside. What they really wanted to do was ride the dirt...reactions3comments
Share some medications that have been proved to be useful for CMS patients....Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective...reactions1replyMuscle Weakness
