medication side effects...Hi. I recently started mestinon. I was having generalized weakness, shortness of breath, double vision/very blurry vision and ptosis. I was at a point that brushing my teeth is difficult...reactions2replies
Will you take our In America survey and help others understand the true impact of MG?...**SURVEY NOW CLOSED** To better understand the patient experience and realities of MG, we are fielding our 3rd Myasthenia Gravis In America survey. By taking this anonymous survey, you can...reactions3replies
The Importance of Finding a Doctor Who Specializes in MG...Throughout my years living with myasthenia gravis (MG), I’ve had my fair share of doctors. I’ve also been in between doctors when the one I had unexpectedly went on permanent...reactions12comments
Diagnosis - New Symptoms?...Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...reactions5repliesSymptomsDiagnosis
Preparing for Winter with a Power Chair...As we prepare for colder weather, it’s time to think about winterizing our outdoor living spaces. It’s bad enough to manage walking on wet or icy surfaces - but what...reactionscomments
Difficulty swallowing while sleeping ...I have difficulty every night swallowing phlegm approx 4 hours every night after I have fallen asleep. I wake up, drink a lot of water and go back to sleep...reactions5repliesAutoimmune Diseases
Therapies to relieve symptoms...Hey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26 and recently diagnosed with Myasthenia Gravis, whilst my...reactions5repliesGeneralized MGNewly DiagnosedCoping
Ocular MG...I was diagnosed by a neuro opthamologist but my blood tests were negative. Even though I have ptosis, the consulting neurologist said that he did not believe I have this...reactions6replies
Muscle Weakness...My dad is in the middle of his third MG crisis in 18 months, the latest has included ventilator for 12 days —the past few days (no longer in ICU...reactions1reply
The Challenges of Seronegative Myasthenia Gravis...In this guest post, Cheri Higgason writes about the challenges of obtaining a seronegative myasthenia gravis diagnosis. As someone who has experienced it firsthand, she encourages others to keep pushing...reactions38comments
Good News! ...I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was so relieved to get an appointment a month...reactions2repliesCaregiving
Weakness in my neck and back!...My neck and back muscles were allowing my head to hang forward. Spent five days in hospital. They pumped steroids into me each day. Came out with my head up...reactions4replies
Life Change at 73...Four months ago, in September 2022, I began this journey with shortness of breath. I was very active, swimming twice a week, walking three miles a day, volunteering, busy with...reactions4comments
Problems...I am nearly eighty and have a secondary illness I have to take medication for this 2nd illness which causes constipation etc. Since i cannot do much physical exercise, I...reactions4replies
FeaturedDoes Anything Help Your Double Vision And/or Droopy Eyes?...Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)? Has anything helped you? Medication, surgery, tape, glasses, contacts, eye drops, etc.? - Jodi, Team Member...reactions118repliesOcular MGDrivingVision
Benefits of Understanding MG and Being Your Own Advocate...Take the initiative to become an advocate for your health and you will have a completely new experience with your myasthenia gravis (MG) doctor. Every day, doctors brief patients about...reactions3comments
My Reaction to Insecticides, Pesticides, and Herbicides...The other day I was in the house when I heard a plane. It was flying low, I could tell by the sound of the engine. I live in a...reactionscomments
shoes and boots...Does anyone have good , lightweight shoes with great traction,not super expensive? Boots are also an issue. Have found zip, kind of light weight, sort of warm but during the...reactions6repliesAssistive Devices
The Way We Were...I'm one of the few who hates the song "Have a Holly, Jolly Christmas." For huge numbers of us, the idea that the season must be endlessly jolly is way...reactionscomments
double vision...For dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...reactions17repliesGeneralized MGTreatmentVision
