The 2024 Social Health Awards Program...Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments0 comments
Potential New Therapies for MG...There are several new emerging pharmaceuticals for myasthenia gravis (MG). Many of these therapies have a novel mechanism of action, thereby offering a new potential treatment for people who do...Reactions0reactionsComments8 comments
What Not to Say to Someone with MG...These are variations on things people have actually said to me, in my real life. Please, for the love of all you hold dear, don’t say these things to anyone...Reactions0reactionsComments29 comments
My Vyvgart Experience...I am AChR-positive, and allergic to Prednisone, so my treatment is Pyridostigmine only. I was at 60 MG 5 times a day and struggling. I have received 4 rounds of...Reactions0reactionsComments9 comments
Myasthenia Gravis and Dental Procedure Risks...For more information on dental care and how to prepare for an appointment, check out the article, "The Struggle with a Dental Visit." What makes oral care such a big...Reactions0reactionsComments11 comments
GmG...I am a 62 year old female diagnosed in 1998 with myasthenia gravis had a thymectomy and other treatments went into remission for over 20 years remission living in Florida...Reactions0reactionsComments4 replies
Massage Therapy School and Myasthenia Gravis...It took doctors 48 years to diagnose me with myasthenia gravis (MG). During this time, I had a lot of flares. They all looked a little different than what MG...Reactions0reactionsComments0 comments
A New Life with Myasthenia Gravis...My journey with myasthenia gravis started officially in 2018, but the symptoms started as early as 2017, by the time I started my clinical rotation in med school. Night shifts...Reactions0reactionsComments3 comments
The Struggle with a Dental Visit...Myasthenia gravis (MG) is an autoimmune disorder that creates challenges for our medical and dental care. You may not be accustomed to having to research every aspect of your care...Reactions0reactionsComments2 comments
4 Ways to Prepare for Traveling with MG...I remember one of the first things I thought I’d have to give up shortly after being diagnosed with myasthenia gravis (MG) was traveling. I couldn’t imagine being away from...Reactions0reactionsComments13 comments
Shelbie Brown...Shelbie Brown currently resides in New Jersey. She began having symptoms right as the pandemic hit in March 2020. Not being able to see a doctor in person right away...
Myasthenia Gravis post COVID Vaccination ...Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...Reactions0reactionsComments15 repliesGeneralized MGNewly Diagnosed
My PCP says......Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...Reactions0reactionsComments12 repliesGeneralized MGHealthcare TeamSymptoms
Our Daily Struggle with Hair Care...Hair styling can be a real drain for people with myasthenia gravis (MG). For something that should be so very simple, it's often frustrating and challenging on us. I am...Reactions0reactionsComments9 comments
Treatment ...Doc is looking @ Imuran or CellCept & IVIG for me. Anyone have any insight or experience with these treatments? *sounds like the "cure" may be worse than the disease?...Reactions0reactionsComments2 repliesGeneralized MGNewly Diagnosed
Pay Attention to Slow Heart Rate...I had taken Mestinon for years. The pharmacy printout mentioned slow heart rate as a possible side effect. I had not noticed a slowed pulse and so went on as...Reactions0reactionsComments4 comments
A Flare, an Exacerbation, or a Crisis...When I was first diagnosed with myasthenia gravis (MG), I didn’t know there were levels to symptom severity. I just knew that I didn’t feel well. It took several months...Reactions0reactionsComments9 comments
Ask the Health Leader: Comforting Someone After a Diagnosis...Processing a myasthenia gravis (MG) diagnosis takes time. You might also worry about the impact on your relationships. Friends, family, and caregivers may wonder how they can help you adjust...Reactions0reactionsComments2 comments
What to Expect When Starting Mestinon for Myasthenia Gravis...Medical Disclaimer: This content was created for generalized informational purposes only. This is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Pyridostigmine (Mestinon) is a...Reactions0reactionsComments32 comments
An Interview With Dr. Aziz Shaibani: Coping With Myasthenia Gravis...Dr. Aziz Shaibani is a neurologist specializing in neuromuscular disorders with over 30 years of experience. He serves as a Clinical Professor of Medicine at Baylor College of Medicine; Adjunct...Reactions0reactionsComments1 comments
