A New Life with Myasthenia Gravis...My journey with myasthenia gravis started officially in 2018, but the symptoms started as early as 2017, by the time I started my clinical rotation in med school. Night shifts... By hi_im_ais3 min readBookmark for laterReactions0reactionsComments3 comments
The Struggle with a Dental Visit...Myasthenia gravis (MG) is an autoimmune disorder that creates challenges for our medical and dental care. You may not be accustomed to having to research every aspect of your care... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments2 comments
4 Ways to Prepare for Traveling with MG...I remember one of the first things I thought I’d have to give up shortly after being diagnosed with myasthenia gravis (MG) was traveling. I couldn’t imagine being away from... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments13 comments
Shelbie Brown...Shelbie Brown currently resides in New Jersey. She began having symptoms right as the pandemic hit in March 2020. Not being able to see a doctor in person right away... By Editorial Team 1 min readBookmark for later
Myasthenia Gravis post COVID Vaccination ...Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...Reactions0reactionsComments15 repliesGeneralized MGNewly Diagnosed
My PCP says......Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...Reactions0reactionsComments12 repliesGeneralized MGHealthcare TeamSymptoms
Our Daily Struggle with Hair Care...Hair styling can be a real drain for people with myasthenia gravis (MG). For something that should be so very simple, it's often frustrating and challenging on us. I am... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments9 comments
Treatment ...Doc is looking @ Imuran or CellCept & IVIG for me. Anyone have any insight or experience with these treatments? *sounds like the "cure" may be worse than the disease?...Reactions0reactionsComments2 repliesGeneralized MGNewly Diagnosed
Pay Attention to Slow Heart Rate...I had taken Mestinon for years. The pharmacy printout mentioned slow heart rate as a possible side effect. I had not noticed a slowed pulse and so went on as... By Gramma Louise1 min readBookmark for laterReactions0reactionsComments4 comments
A Flare, an Exacerbation, or a Crisis...When I was first diagnosed with myasthenia gravis (MG), I didn’t know there were levels to symptom severity. I just knew that I didn’t feel well. It took several months... By Mallory San Nicolas2 min readBookmark for laterReactions0reactionsComments9 comments
Ask the Health Leader: Comforting Someone After a Diagnosis...Processing a myasthenia gravis (MG) diagnosis takes time. You might also worry about the impact on your relationships. Friends, family, and caregivers may wonder how they can help you adjust... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments2 comments
What to Expect When Starting Mestinon for Myasthenia Gravis...Medical Disclaimer: This content was created for generalized informational purposes only. This is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Pyridostigmine (Mestinon) is a... By Valerie Sidhoum2 min readBookmark for laterReactions0reactionsComments32 comments
An Interview With Dr. Aziz Shaibani: Coping With Myasthenia Gravis...Dr. Aziz Shaibani is a neurologist specializing in neuromuscular disorders with over 30 years of experience. He serves as a Clinical Professor of Medicine at Baylor College of Medicine; Adjunct... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments1 comments
Enter Our Awareness Month Giveaway...*This giveaway has closed but we still welcome community members to share their coping strategies.* In honor of Myasthenia Gravis Awareness Month, we're gifting one lucky winner a copy of...Reactions0reactionsComments68 repliesAwarenessCoping
I Wish I Had Said …...Everyone has those moments. You are surprised by a comment. It could be from a stranger or a close acquaintance. They say something about your visible symptoms or limitations. Or they... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments0 comments
Combat Fatigue with Rest and Planning Ahead...When we have a disease such as myasthenia gravis, how do we function? How do we continue to work, do our chores, be a spouse, a parent, cook, go shopping?... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments8 comments
Bladder Problems and Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune disease that causes weakened muscles. With MG, the nerves are not able to communicate with muscles well. MG can affect people at any age... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments19 comments
MuSK MG...... ... anyone out there with MuSK MG? Hello, I have just been diagnosed with MuSk MG and am awaiting my first appointment with a nuero muscular specialist nuerologist. Wondering...Reactions0reactionsComments4 replies
Muscles...Hi I'm new here and waiting for blood results achr & musk. Can anyone help,I have graves disease,TED and pernicious anemia. My eye Dr requested blood tests as have one...Reactions0reactionsComments9 repliesMuscle Weakness
My Life Changing, Life Destroying Story...My name is Stephen, I reside in the North East of England. I've never enjoyed great health since 2003 when I developed chronic recurring nasal polyps, and I'm now five... By Swright5702 min readBookmark for laterReactions0reactionsComments4 comments
