Not Ready for Summer...Now don't get me wrong, I love summer. Well ... I used to love summer! But the longer I live with myasthenia...reactions13comments
Gabapentin and Myasthenia Gravis...Gabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure...reactions27repliesTreatmentTriggersNewly Diagnosed
Had You Heard of Myasthenia Gravis Before Your Diagnosis?...When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from...reactions50repliesDiagnosisNewly DiagnosedAwareness
Soliris (Eculizumab) Outcome & Side Effects...Eculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you...reactionsrepliesTreatmentRefractory MGGeneralized MG
Are You a Diabetic With Myasthenia Gravis?...Do you have diabetes as well as Myasthenia gravis? We would love it if you could share your experience and what your...reactions4repliesHealthcare TeamTreatmentNewly Diagnosed
How Do You Cope With Hot Temperatures?...Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the...reactions66repliesCopingSymptomsWeather
Do You Have MuSK or LRP4 Antibodies?...Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause...reactions5repliesDiagnosisTypesAwareness
Box Breathing and How It Helps With Stress...Our lives are filled with family obligations, work and school responsibilities, healthcare appointments, and busy schedules. Stress is a normal part of...reactions7comments
My Youngest Grandson's Opinion About My MG...Our grandsons were over visiting and they were asking to go outside. What they really wanted to do was ride the dirt...reactions3comments
Share some medications that have been proved to be useful for CMS patients....Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective...reactions1replyMuscle Weakness
Blood tests are negative but have symptoms...I have many of the symptoms of MG- loss of muscle strength around my mouth, sometimes trouble chewing/swallowing /drinking water some slurring...reactions7replies
Mestinon Reverse Effect ...Hello all, I have been taking mestinon for 8 years and was very dependent on it. Just recently I have been having...reactions6repliesAutoimmune Diseases
Helen's Story...I am writing in sadness but with the intent of expressing hope for all those who have been diagnosed with MG. I...reactions8comments
Did COVID Make You a Germophobe?...I was diagnosed with MG right at the start of covid. I was never one to focus on germs before then. I...reactions3repliesTreatmentMental HealthDepression
What Year Were You Diagnosed With Myasthenia Gravis?...What year were you diagnosed with Myasthenia gravis? How long did it take to receive a diagnosis? What treatments were available to...reactions68repliesAwarenessDiagnosisTreatment
Refractory Mg-Does Your MG Not Cooperate With Treatment?...Do you have refractory MG? If you are unsure of this term, refractory MG refers to anyone with MG in which: "MG...reactionsrepliesRefractory MG
How Do I Get the Latest Updates on Myasthenia-Gravis.com?...The internet is rife with information on myasthenia gravis (MG). Unfortunately, sometimes it can get to be a little too much. Perhaps...reactionscomments
How Gardening with MG Is Beneficial to Me...In some of my other articles, I’ve mentioned that my husband and I love to garden. We love growing and preserving our...reactions2comments
Do You Suffer From Dysphoria? Feeling Dissatisfied With Life...Do you suffer from dysphoria, meaning feeling depressed, troubled, and unsatisfied with how life is going for you? How much does MG...reactionsrepliesCopingDepressionMental Health
What Main Quality Do You Look For in a Doctor...When aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not...reactionsrepliesNewly DiagnosedHealthcare TeamTreatment
