Didn't Know I Really Had MG Until My Crisis!...I was diagnosed in March of 2021. The droopy eye was the beginning, and then my speech started to go wonky. But a quick intervention with the neurology team gave...Reactions0reactionsComments7 comments
Severity of symptoms...My husband was experiencing muscle weakness in his legs for several years - needing to frequently "rest" between activities. We talked to several doctors with no real suggestions. Last year...Reactions0reactionsComments2 repliesNewly DiagnosedSymptomsDiagnosis
Domestic and Sexual Abuse in People with Disabilities...Editor's note: Content warning - This article includes experiences with sexual assault, domestic abuse, and violence. I am former Certified Domestic Abuse Advocate of 10 years, and I also have...Reactions0reactionsComments0 comments
My self healing journey...I was diagnosed as ocular MG in 2006, double vision was the only symptom. I got treatment of prednisone , starting from 60 mg, taping down to low doze after...Reactions0reactionsComments5 repliesAwarenessFriends & FamilyOcular MG
Myasthenia Gravis-Friendly House Adaptations...We recently conducted the Inaugural Myasthenia Gravis (MG) In America survey. One question on the survey asked, "What changes or modifications to your household/living space have you made since you...Reactions0reactionsComments8 comments
I Was Prescribed MG Cautionary Drugs...In previous articles, I've talked about having the symptoms of myasthenia gravis (MG) for 48 years before being diagnosed. At times these symptoms were quite severe. Now in my 60...Reactions0reactionsComments2 comments
How Do I Get Answers with MG?...I know many people with mysterious symptoms, such as those that appear with myasthenia gravis (MG), who are finding it increasingly difficult to find qualified physicians to diagnose and treat...Reactions0reactionsComments0 comments
Living With Two Rare Diseases...12 years ago I was diagnosed with MG. I couldn't swallow, had a very hard time talking, was fatigued, weak, and had little or no control of my tongue. Anytime...Reactions0reactionsComments2 comments
Conserving Energy...I don't know if this has been brought up... When I have several things I want to accomplish I think of all that energy. How can I do all of...Reactions0reactionsComments4 comments
Bathing Aids and Tools for Myasthenia Gravis...When we are struggling with myasthenia gravis (MG) symptoms, bathing can be difficult. If you tire easily, try resting before bathing. I almost always bathe right after rising in the...Reactions0reactionsComments0 comments
Active todayShaking (tremor) and myasthenia...Hello! I was diagnosed with myasthenia gravis almost a year ago. I had slurred speech, difficulty swallowing and chewing, and than after some time my hands would get weak. The...Reactions0reactionsComments25 repliesSymptomsMuscle Weakness
Tips for the Summer Heat...The heat is not our friend. Not with myasthenia gravis at least. It may send us spiraling downhill fast, and it does for many including myself. It actually took me...Reactions0reactionsComments13 comments
Very Scared...I just was diagnosed the first of this year they out me on steroids till I could see nuro see is saying its just me eyes I can barely walk...Reactions0reactionsComments2 replies
Congenital myasthenic syndrome...I'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I have a genetic defect, not an auto-immune disease...Reactions0reactionsComments7 replies
Newly diagnosed ...Hi all , after having covid in October 2021 I started getting double vision, I had blood tests & was told I have mg , I have been on medication...Reactions0reactionsComments2 replies
New diagnosis of MG...I just had my first visit with a neurologist after I tested positive for MG back in November. It seems my double vision got worse a couple of years back...Reactions0reactionsComments3 replies
An Interview With Chef Sean Brock: Pursuing Your Passion With MG...Chef Sean Brock is an award-winning chef and restaurateur who is focused on Southern cuisine. Sean is the winner of the 2010 James Beard Award for Best Chef, Southeast. He...Reactions0reactionsComments0 comments
A Break in the Chaos...This whole week so far has been wonderful! The temperature outside is 90 degrees but it feels like it's 100 degrees. Tomorrow it's supposed to be even hotter. I can't...Reactions0reactionsComments0 comments
What medical testing is OK if you have gMG?...Orthopedic specialist is wanting to do multiple tests to evaluate several issues. These include MRI, nerve conduction tests, mylogram with dye, etc. Can't find internet sites that discuss medical testing....Reactions0reactionsComments3 repliesGeneralized MG
PVCs ...I recently saw an article, quite a technical medical article, they talked about the possibility of PVCs, premature Ventricular contractions, and MG. Do we know anything about the correlation if...Reactions0reactionsComments1 replies
