Issues That Made Me Despise My Power Wheelchair...I really despise my power wheelchair. I have not liked it since the day it was delivered! I am in a power chair because of myasthenia gravis (MG) weakness and...reactions2comments
Did You Massage Your Thymectomy Scar?...Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have the same purpose. The aim of scar massaging...reactions8repliesSurgeryThymectomyNewly Diagnosed
Ultomiris vs Vyvgart...My doctor is wanting to switch me from Ultomiris to Vyvgart. I wanted to know if there is anyone who has made the same switch - would like to hear...reactions7repliesGeneralized MG
vyvgart vs IVIG...Just wondering whatever anyone can share--from personal knowledge--about vvgart and IMIG ... especially success rates and side affects. I have just been told about IVIG and I saw an ad...reactions11repliesResearch & Clinical Trials
My Experience with IVIG & Tips...The article I just read about IVIG provides great information. I can't take steroids like Prednisone so, when Mestinon alone wasn't enough, my wonderful neurologist suggested a trial of IVIG...reactions3comments
Yes Connie, This Is Another Connie...Well, I am 72 and was diagnosed this last September. I think I have had symptoms for years and blamed them on other things... weakness in walking because of my...reactions4comments
Cane Use...I was 'sort of' diagnosed with MG by an ophthalmologist who specialized in neurological eye issues -- awaiting blood test results for the Mayo Clinic. Anyway, when I walk my...reactions3repliesAssistive DevicesCopingAwareness
New Mg symptoms or something else....I have some new symptoms not sure if it’s Mg related. My middle, ring and pinky finger will curl in towards the palm of my hand. The other problem is...reactions7repliesAutoimmune Diseases
Cure or Relief...Recently (to me) CBS News released a segment on Tzield; a new medication recently approved by the FDA for some level of relief of Type 1 Diabetes. It was clear...reactions1replyTreatment
Prevnar 20...Anyone get the prevnar 20 vaccine? Any problems?? Im scheduled for one at 1:00 pm today abd nervous. Help...reactions1replyAutoimmune Diseases
What Is Medical Gaslighting?...If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical gaslighting can happen to anyone, but it most...reactions10comments
My experience with University of Chicago neuromuscular clinic-seronegative friensly...I feel like I need a disclaimer or something similar:This is just reflecting on my journey for a diagnosis. UCM has made a HUGE impact on my life and I...reactions2repliesDiagnosis
Facial swelling and throat closure ...I've been dealing with MG for about ten years. From extreme fatigue, drooling, drooping of my eyes and vision issues. This last exacerbation affected my throat , it closed cutting...reactions16repliesAwareness
Relationships, Intimacy, and MG...Myasthenia gravis (MG) is a rare disease, a chronic condition, and often misunderstood. Coping with any one of those factors alone could place a strain on relationships, let alone managing...reactions6comments
Weekly episodes of sounding and looking drunk. GP suggests menopause, but could it something more?...I am writing this post on behalf of my mum and it's going to be a lengthy one. She is 52, no pre-existing health conditions established, although she did have...reactions4repliesSymptoms
Looking for doctor...I’m hoping to move to Georgia to live with my daughter and looking for a doctor in the Savanna area. Hopefully someone in the community can refer me to someone...reactions3repliesCaregiving
MG Has Changed My Perspective on Yoga...I didn't do yoga, let alone try it, before I started having myasthenia gravis (MG) symptoms. I imagined yoga as a long stretching session, something I was already doing. Typically...reactions8comments
Encouragement from Strangers...For the most part, writing articles about my life with myasthenia gravis (MG) is pretty easy to do. I have read once that to be a good writer, you write...reactions5comments
Thymectomy...Hi just to let the community know that since the thymectomy to remove a thymoma I have had three ct scans and I am pleased to say that all have...reactions5repliesAutoimmune Diseases
It's Been 31 Years Now...I was diagnosed with MG in 1992 after being subjected to every kind of blood work and test available at that time. But, nothing was really positive until my doctor...reactions1comment
