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Swings of emotions following diagnosis

I'm pretty new here, I'm experiencing huge swings of emotions following diagnosis. From extreme relief and happy that I have an answer to real anger and crying over being ignored for so long and the effect it's had on my life thus far. Wanted to know if this was common or other people experienced this and how they managed it? I appreciate you all here supporting eachother, it's really nice to see 😀

  1. Thank you all for your kind words 😀 I'm glad this space is here. I've had symptoms and difficulties for a very long time so I think the grieving process I'm well experienced with that, but yeah the other bits definitely. I've already been anxious and depressed because of it for a long time as well and I think that's contributed to how I feel now. Guess I just felt I was crazy or lazy for a long time.

    1. How are you doing today!! Emotional swings are normal before & after diagnosis. It is a relief to finally get a DX!! We do go through a morning process after Dx also. Everywhere from the anger of why for some of us did it take so... long to get the DX! To I don't know who I am now & what can I do!! And many other thoughts and emotions. From experience this is with each flare also, a never-ending battle of emotions. Feel them for they are real!! Just reach out for help if it turns into depression/anxiety! Not a place to be without treatment, many of us do or have used anti-depressants. Hugs & Love to you!! Sally Farrier...Myasthenia-Gravis.com (team member).

      1. Hi , We are really glad you have found our community. I wanted to echo Cheryl - the range of emotions after a diagnosis are valid and it's completely understandable to be feeling multiple things at once. Adjusting to the news of a diagnosis takes time, but we are here to support you. Other community members may jump in to share how they have managed, but please don't hesitate to let us know if you have any other questions. -Lauren (Myasthenia-Gravis.com Team)

        1. From my role as RN, any emotion you have is valid and most of us have have had swings of emotion, let tears flow until they stop on their own and they become more rare. For me, have had to come up with an anchor thought that isn't pollyannish but calms me. That has changed a lot over 23 mos on Mestinon and seeing improvement. I am lucky to have an elderly friend who is my phone buddy, reminds me tomorrow will be better after sleep or telling me to take more mestinon right now( she hears it in my voice) Writing a journal helps to make correlation of mood to overdoing it or being sick and that has helped me not feel like it is a personal failing. cyber hug.

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