Sometimes We Need Someone to Listen...Sometimes we just need someone to listen, to be there. Not for offering advice. Not even for consoling us or providing encouragement. Sometimes we need to have a sad day...Reactions0reactionsComments0 comments
Communications on the Job...With such a rare condition, do you ask for accommodations or do you simply endure? What accommodations can help you continue to be productive?...Reactions0reactionsComments2 replies
The Need for Myasthenia Gravis Awareness: MG Awareness Month 2021...June marks Myasthenia Gravis Awareness Month. Together, it is time to bring awareness to how it feels to live with a rare disease like myasthenia gravis. Join us in informing...Reactions0reactionsComments0 comments
Managing Flares by Listening to My Heart...The first few months after my myasthenia gravis (MG) diagnosis, I had to quit my job. My vision was consistently double and ptosis made it difficult to stare at a...Reactions0reactionsComments0 comments
Considerations for Driving with Myasthenia Gravis...When the diverse symptoms of myasthenia gravis converge to a diagnosis, the many unknowns can be the hardest part. Chief among them is the question “How will my lifestyle change?”...Reactions0reactionsComments0 comments
Is There Such A Thing As Bulbar Myasthenia Gravis?...Myasthenia gravis (MG) can have wide-reaching effects on the body. This can lead to different symptoms and ways of classifying MG. One term that may be used is bulbar MG...Reactions0reactionsComments16 comments
Take the Person Before Patient Survey...The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like myasthenia gravis can...Reactions0reactionsComments0 comments
Zach McCallum...When Zach was diagnosed with myasthenia gravis, he was already, as he puts it, “a professional sick person.” Thanks to a primary immune deficiency and a handful of other medical...
Twenty-Eight Years with MG...My symptoms leading up to a diagnosis of MG began while I was driving East on U S – 36 in Kansas in 1993. I suddenly realized my left eyelid...Reactions0reactionsComments3 comments
Managing Flares by Listening to My Body...I am turning 30 this year, which has prompted me to start thinking about what I am taking away from my 20s. There are definitely moments I never want to...Reactions0reactionsComments0 comments
Myasthenia Eyes and the Emotional Toll...The first symptom I experienced was the droopy eyelid. At first, I figured it was from the edema I had experienced for the previous couple of years getting worse. I...Reactions0reactionsComments29 comments
Valerie Sidhoum...Valerie was previously a Health Care leader on Myasthenia-Gravis.com. Dr. Valerie Sidhoum is a Neurologist in Philadelphia. She completed her residency at the Hospital of the University of Pennsylvania where...
What Causes Remission in Myasthenia Gravis?...Myasthenia gravis (MG) is a rare, autoimmune disease that causes a person’s muscles to become weak and to tire easily. The way the disease develops is different for each person...Reactions0reactionsComments18 comments
The Role of Sunscreen for Myasthenia Gravis...As the warmer and sunnier days approach, it is time to be mindful of how the sun’s rays impact our bodies. Some people with myasthenia gravis (MG) are particularly at...Reactions0reactionsComments0 comments
Seronegative Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune disease that affects your muscles. Those living with MG have antibodies in their blood that attack the areas where nerves communicate with the muscles...
Myasthenia Gravis Can't Stop Me...“You have textbook case myasthenia.” Those were the exact terms the neurologist uttered at the time of my diagnosis. The words I had been waiting for. The conversation that would...Reactions0reactionsComments7 comments
Myasthenia Gravis and Sleep Disorders...Myasthenia gravis (MG) causes fatigue or extreme tiredness. At the same time, many people with this autoimmune disease have trouble sleeping. Common sleep disorders for people with MG include excessive...Reactions0reactionsComments3 comments
Claire Denton...Claire was previously a health leader on Myasthenia-Gravis.com. My Myasthenia Gravis diagnosis came in 1995 when I was a senior in college, student teaching and planning my wedding. It was...
Sally Farrier...I began having problems in my hands at the age of 10. I was unable to write more than a few sentences, keep time to music, complete an eye test...
What Are Digital Therapeutics?...Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...Reactions0reactionsComments0 comments
