How do I manage this mysthania ?gravis...Hi Am ifeoma I started experiencing weakness in 2010 because I was pregnant I thought it was one of the symptoms of...reactions1replyAwareness
Excited for Spring...It's spring here and I'm rather excited! Now, that might seem strange to say being that I have myasthenia gravis (MG) and...reactions2comments
Plasma aphersis ...Wondering if anyone knows. If getting 10treaments of plasma aphersis (didn’t work) am I losing any of protection from the Covid shots...reactions2repliesAutoimmune Diseases
Rebekah Dorr...I have been living with MG for nearly 11 years and I have worked as a patient educator, clinical advocate and online...
Thymus gland...Do i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that...reactions4repliesThymectomyTreatment
Long-Term Side Effects of Prednisone...Most people with myasthenia gravis (MG) are familiar with prednisone, a common drug prescribed during flares. Prednisone belongs to the drug class...reactions20comments
Low-dose naltrexone...Hello everyone There's someone here who has heard of or is taking LDN ?...reactions9repliesTreatmentGeneralized MG
Is Myasthenia Gravis Genetic?...Do your genes play a role in whether you will develop myasthenia gravis (MG)? There are no known risk factors for the...reactions8comments
Im frustrated with testing...I started with pretty extreme weakness in my legs and pain in my back and hips. My primary ruled out orthopedic causes...reactions4repliesSeronegativeMuscle WeaknessCoping
I was born in 1956 . There was something wrong with my muscles...my brother had it too......We were tested for MS and other neurological diseases. We had very heavy eyelids and our eyes did not move. We were...reactions3repliesCoping
Struggles with Myasthenia Gravis Fatigue and Pain...I will be doing a series of articles about how to make life a little easier when you have myasthenia gravis (MG)...reactionscomments
Having Surgery Without a Neurologist Consult...We all know there’s a certain amount of risk with surgery and anesthesia under the best of circumstances. Surgeons and anesthesiologists talk...reactionscomments
Pillow Packin'...Years ago while undiagnosed, I was desperately looking for ways to help me cope. My muscles were so tired, weak, and hurt...reactions7comments
What Is Mental Health?...Mental health is the range of thoughts, emotions, and behaviors that affect your well-being and how you relate to others. Just like...
new medication...Looking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts?...reactions7repliesTreatment
MYOCLONUS ...Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain...reactions10repliesGeneralized MGSleepSymptoms
Lessons Learned from IVIG Therapy for MG...When I was first diagnosed with myasthenia gravis (MG) in 2015, I was extremely underwhelmed by the number of treatment options. Somehow...reactions27comments
Sleep Disturbance...Not sure if many with MG have this or not but was wondering if sleep disturbances are common with MG. I am...reactions8repliesSymptoms
Myasthenia Gravis Diagnosis After the Age of 55: The Risks...In case you missed it, check out part 1 of this article, "A Myasthenia Gravis Diagnosis After the Age of 55." The...reactions1comment
Might it be MG?...Right, for the last 18 months I have experienced double vision (vertical) accompanied by a tightness over my head from temple to...reactions4repliesDiagnosis
