Viral Cause?...I've had tests for just about all of the viruses that are common. I had a strong antibody response to HHV-6, but when they did a PCR to confirm an...Reactions0reactionsComments2 replies
Myasthenia Gravis and Brain Fog...Myasthenia gravis (MG) is an autoimmune disease that affects the muscles of the body. The immune system creates antibodies that fight the neuromuscular junction. This is the area where a...Reactions0reactionsComments10 comments
FeaturedNever ever heard of this before...Diagnosed 12 years ago. Just affected my right eye. Took pills - mestonen. 2 years ago started symptoms- weakening, losing weight, until I couldn't really swallow. Then, 2 hospital visits...Reactions0reactionsComments3 replies
My MG...I was lucky enough to be diagnosed with ocular mg in the early stages in 2006 and had my thymus removed. Put on cellcept (allergic to other meds) and steroids...Reactions0reactionsComments18 comments
When to Use Mobility Devices...When myasthenia gravis (MG) hit me, it smoldered along for the first year or so. I had some episodes of blurry vision, I was assured were migraines. The leg and...Reactions0reactionsComments14 comments
My Life is Changed !!!...Hi everyone 👋 I was former ICU staff nurse. In those 4 yrs of experience of my work is awesome ...yes, I was healthy n fit. I have never been...Reactions0reactionsComments10 comments
CellCept (Mycophenolate) and Myasthenia Gravis...Editor's Note: CellCept is used off-label to treat myasthenia gravis. Talk to your doctor about the risks and benefits of this treatment. CellCept, also known as mycophenolate mofetil, is a...Reactions0reactionsComments3 comments
FeaturedFor the newly diagnosed...Being diagnosed with any condition can be challenging. Being diagnosed with a chronic autoimmune disease might feel impossible at first, but the good news is that it’s not impossible and...Reactions0reactionsComments3 repliesNewly Diagnosed
Myasthenia Gravis Awareness Starts With Me..."Myasthenia what?" Upon telling anyone I knew about myasthenia gravis (MG), I would often have to repeat the name multiple times, explaining what this foreign diagnosis meant. To simplify it...Reactions0reactionsComments0 comments
Difficulty Breathing: One of Many Symptoms with MG...I’ve already discussed one of the first symptoms I had when this disease reared its ugly head. You can read about that in the article, Myasthenia Eyes and the Emotional...Reactions0reactionsComments17 comments
Never Been Sick...I have always been very healthy. Never sick, didn't even take an aspirin. On Friday, 2/12/21 I had my first Moderna COVID shot. On Sat. I had a sore arm...Reactions0reactionsComments14 comments
Managing Flares by Listening to My Mind...What goes on in your head all day? If you’re like me, maybe you have a constant to-do list running in the background, critical of any lazy moment. As I...Reactions0reactionsComments1 comments
Helping Others Understand Myasthenia Gravis...Being a member of a small minority might seem special. But when that minority represents individuals with a rare disease, the challenges are enormous. That’s certainly true with myasthenia gravis (MG)...Reactions0reactionsComments4 comments
Frequently Asked Questions (FAQs) About Myasthenia Gravis...Whether you are living with myasthenia gravis (MG) or know someone who is, here is a guide to the basics of MG. Myasthenia gravis is a chronic autoimmune disease. Autoimmune...Reactions0reactionsComments0 comments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent hospital stays, difficult or noticeable symptoms, and constant...
Workplace Considerations...Everyone deserves to be treated fairly at work, including people with chronic medical conditions or disabilities. It is not only the right thing to do – it is the law...
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing, copays, travel, and more. But help is available...
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect your finances and your family’s. However, there is...
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your job done. When this happens, you may find...
Myasthenia Gravis Diagnosis: Still Seeking Answers...We know that myasthenia gravis (MG) affects everyone differently. From the range and severity of symptoms to specific MG triggers, each person’s experience is unique. This can make the diagnosis...Reactions0reactionsComments0 comments
