Managing Flares by Listening to My Body...I am turning 30 this year, which has prompted me to start thinking about what I am taking away from my 20s. There are definitely moments I never want to... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments0 comments
Myasthenia Eyes and the Emotional Toll...The first symptom I experienced was the droopy eyelid. At first, I figured it was from the edema I had experienced for the previous couple of years getting worse. I... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments29 comments
Valerie Sidhoum...Valerie was previously a Health Care leader on Myasthenia-Gravis.com. Dr. Valerie Sidhoum is a Neurologist in Philadelphia. She completed her residency at the Hospital of the University of Pennsylvania where... By Editorial Team 1 min readBookmark for later
What Causes Remission in Myasthenia Gravis?...Myasthenia gravis (MG) is a rare, autoimmune disease that causes a person’s muscles to become weak and to tire easily. The way the disease develops is different for each person... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments18 comments
The Role of Sunscreen for Myasthenia Gravis...As the warmer and sunnier days approach, it is time to be mindful of how the sun’s rays impact our bodies. Some people with myasthenia gravis (MG) are particularly at... By Canadian Pharmacist2 min readBookmark for laterReactions0reactionsComments0 comments
Seronegative Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune disease that affects your muscles. Those living with MG have antibodies in their blood that attack the areas where nerves communicate with the muscles... By Editorial Team 4 min readBookmark for later
Myasthenia Gravis Can't Stop Me...“You have textbook case myasthenia.” Those were the exact terms the neurologist uttered at the time of my diagnosis. The words I had been waiting for. The conversation that would... By Meridith2 min readBookmark for laterReactions0reactionsComments7 comments
Myasthenia Gravis and Sleep Disorders...Myasthenia gravis (MG) causes fatigue or extreme tiredness. At the same time, many people with this autoimmune disease have trouble sleeping. Common sleep disorders for people with MG include excessive... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments3 comments
Claire Denton...Claire was previously a health leader on Myasthenia-Gravis.com. My Myasthenia Gravis diagnosis came in 1995 when I was a senior in college, student teaching and planning my wedding. It was... By Editorial Team 2 min readBookmark for later
Sally Farrier...I began having problems in my hands at the age of 10. I was unable to write more than a few sentences, keep time to music, complete an eye test... By Editorial Team 2 min readBookmark for later
What Are Digital Therapeutics?...Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
The Gravis Gourmet...Myasthenia gravis (MG) brings challenges on many levels. Fatigue and weakness are only the beginning. Chewing and swallowing can become more difficult. Reflux is often common. Worst case, food can... By Juliana Texley2 min readBookmark for laterReactions0reactionsComments2 comments
Finding Hope in The Midst of a Pandemic...I remember when the news started pouring in. Each day I fearfully anticipated the next update on a new virus taking over the world. It felt like a dark cloud... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments2 comments
Communicating about your myasthenia gravis...When you encounter a friend or associate who is not familiar with myasthenia gravis, how do you (simply but accurately) explain the condition?...Reactions0reactionsComments3 repliesAwareness
A Long and Frightening Road To a Myasthenia Diagnosis...I was diagnosed with myasthenia gravis in December 2008. The long road to discovering the diagnosis wasn’t just frustrating, it was a nightmare! My symptoms began on Thanksgiving Day. The... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments5 comments
FeaturedDid you test positive for any MG antibodies?...AChR, MuSk, LRP4? Are you seronegative? Don't know or not sure? Share your experiences here....Reactions0reactionsComments12 repliesDiagnosisSeronegativeTypes
How old were you when you were diagnosed with MG?...Add any other details you'd like to share!...Reactions0reactionsComments120 repliesDiagnosis
FeaturedWhich doctor is your primary doctor for your MG?...Who do you see for your care around your myasthenia gravis diagnosis?...Reactions0reactionsComments31 repliesHealthcare TeamDiagnosis
Welcome to Myasthenia-Gravis.com Stories!...At Myasthenia-Gravis.com, we believe that we are stronger together than we are alone. Living with or caring for someone with myasthenia gravis (MG) can be a challenge, but the more... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments0 comments
Juliana Texley...Juliana was previously a health leader on Myasthenia-Gravis.com. Juliana Texley has a PhD in science education with an emphasis on genetics. She has taught science at all levels for more... By Editorial Team 1 min readBookmark for later
