FeaturedWhat symptoms have been the most surprising?...Thinking about your myasthenia gravis symptoms and journey, what symptoms have been the most surprising, or unexpected?...Reactions0reactionsComments9 repliesSymptoms
Myasthenia Gravis Effects on Speaking and Swallowing...The symptoms I mentioned in my previous articles were all I experienced that weekend. But after my admission to the hospital, that changed for the worse. You can read about...Reactions0reactionsComments118 comments
COVID Precautions...The CDC just published a caution about vaccination: "...(for immunocompromised persons) Covid-19 vaccine may not have been effective for them and encouraged them to take precautions as if they were...Reactions0reactionsComments0 repliesAwareness
A Closer Look at Mestinon...There are many forms of myasthenia gravis (MG) but the exact cause is still not clear for everyone. While there is currently no cure, there are two general approaches to...Reactions0reactionsComments8 comments
Digital Health vs. Digital Therapeutics...Technology is now a common way to deliver healthcare. Digital health products help prevent, diagnose, or manage chronic conditions. Devices range from wellness apps to artificial intelligence and wearable devices...Reactions0reactionsComments7 comments
Going Through Testing for Myasthenia Gravis...After experiencing difficulty breathing and having vision problems, I still had no diagnosis. I was home for the long Thanksgiving weekend when Monday finally came. I called to make my...Reactions0reactionsComments0 comments
Abdominal cramps is common in our disease ??? ...Hi guys , do u guys have feelings about this .... Since several days , I had abdominal cramps ..can't tolerate at all ... I had research in google about...Reactions0reactionsComments8 replies
The Effects of Happiness on Myasthenia Gravis...We're all told about how depression, anxiety, and stress can make our myasthenia gravis (MG) symptoms worse. But, what about the effects of happiness or extreme joy? What does it do...Reactions0reactionsComments2 comments
My Diagnosis with Myasthenia Gravis During Pregnancy...It was December of 2018 and I remember my vision feeling off. My eyes were becoming more and more unfocused. I blamed it on a wrong prescription and tried to...Reactions0reactionsComments1 comments
Traveling with Myasthenia Gravis...The first diagnosis of myasthenia gravis (MG) seems ominous. Will there ever be a return to “normal?” The truth is that we might have to redefine “normal” as we move...Reactions0reactionsComments4 comments
Myasthenia Gravis and Fatigue...If you have myasthenia gravis (MG), then you are probably very familiar with the feeling of muscle weakness. You may have this feeling either at the end of the day...Reactions0reactionsComments2 comments
My Brief MG Story...I was 60 years old before I agreed to be tested for MG. Before that I was in denial. My younger sister had been diagnosed with MG 25 years earlier...Reactions0reactionsComments4 comments
Why Is Myasthenia Gravis Difficult to Diagnose?...Medical disclaimer: This content was created for generalized informational purposes only. This is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Diagnosing myasthenia gravis (MG)...Reactions0reactionsComments1 comments
Immunosuppressed in a Vaxxed World...The masks are off...except at our house. After 2 different vaccines, my husband (on imuran and mestinon) still has no measurable antibodies. There are other tests, but the doctor recommends...Reactions0reactionsComments3 repliesAwareness
What to Expect When Taking CellCept (Mycophenolate)...Editor's Note: CellCept is used off-label to treat myasthenia gravis. Talk to your doctor about the risks and benefits of this treatment. CellCept (mycophenolate mofetil) is a drug for people...Reactions0reactionsComments2 comments
Myasthenia Gravis and COVID-19...Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with chronic conditions. "Quarantine," "social distancing," and "herd immunity"...Reactions0reactionsComments4 comments
Dealing with Heat and Hot Weather...If you live with myasthenia gravis (MG), you may have blurred vision and weakness in your arms, hands, face, and legs. You may also experience shortness of breath and fatigue...Reactions0reactionsComments6 comments
Speaking Out for Myasthenia Gravis...What does awareness mean to me? Awareness is knowledge. If you have experienced something, then you at least have a basic knowledge of its existence in the world. Even basic life...Reactions0reactionsComments0 comments
What to Know About Philips CPAP and Ventilator Recall...After many months of investigation, Philips has announced a recall notification for many of its devices. The medical device company analyzed risks related to several products, including: In the United...Reactions0reactionsComments0 comments
Viral Cause?...I've had tests for just about all of the viruses that are common. I had a strong antibody response to HHV-6, but when they did a PCR to confirm an...Reactions0reactionsComments2 replies
