Difficulty Breathing: One of Many Symptoms with MG...I’ve already discussed one of the first symptoms I had when this disease reared its ugly head. You can read about that in the article, Myasthenia Eyes and the Emotional... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments17 comments
Never Been Sick...I have always been very healthy. Never sick, didn't even take an aspirin. On Friday, 2/12/21 I had my first Moderna COVID shot. On Sat. I had a sore arm... By Lightbrigade1 min readBookmark for laterReactions0reactionsComments13 comments
Managing Flares by Listening to My Mind...What goes on in your head all day? If you’re like me, maybe you have a constant to-do list running in the background, critical of any lazy moment. As I... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments1 comments
Helping Others Understand Myasthenia Gravis...Being a member of a small minority might seem special. But when that minority represents individuals with a rare disease, the challenges are enormous. That’s certainly true with myasthenia gravis (MG)... By Juliana Texley2 min readBookmark for laterReactions0reactionsComments4 comments
Frequently Asked Questions (FAQs) About Myasthenia Gravis...Whether you are living with myasthenia gravis (MG) or know someone who is, here is a guide to the basics of MG. Myasthenia gravis is a chronic autoimmune disease. Autoimmune... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent hospital stays, difficult or noticeable symptoms, and constant... By Editorial Team 2 min readBookmark for later
Workplace Considerations...Everyone deserves to be treated fairly at work, including people with chronic medical conditions or disabilities. It is not only the right thing to do – it is the law... By Editorial Team 3 min readBookmark for later
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing, copays, travel, and more. But help is available... By Editorial Team 4 min readBookmark for later
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect your finances and your family’s. However, there is... By Editorial Team 3 min readBookmark for later
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your job done. When this happens, you may find... By Editorial Team 3 min readBookmark for later
Myasthenia Gravis Diagnosis: Still Seeking Answers...We know that myasthenia gravis (MG) affects everyone differently. From the range and severity of symptoms to specific MG triggers, each person’s experience is unique. This can make the diagnosis... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Sometimes We Need Someone to Listen...Sometimes we just need someone to listen, to be there. Not for offering advice. Not even for consoling us or providing encouragement. Sometimes we need to have a sad day... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
Communications on the Job...With such a rare condition, do you ask for accommodations or do you simply endure? What accommodations can help you continue to be productive?...Reactions0reactionsComments2 replies
The Need for Myasthenia Gravis Awareness: MG Awareness Month 2021...June marks Myasthenia Gravis Awareness Month. Together, it is time to bring awareness to how it feels to live with a rare disease like myasthenia gravis. Join us in informing... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments0 comments
Managing Flares by Listening to My Heart...The first few months after my myasthenia gravis (MG) diagnosis, I had to quit my job. My vision was consistently double and ptosis made it difficult to stare at a... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments0 comments
Considerations for Driving with Myasthenia Gravis...When the diverse symptoms of myasthenia gravis converge to a diagnosis, the many unknowns can be the hardest part. Chief among them is the question “How will my lifestyle change?”... By Juliana Texley2 min readBookmark for laterReactions0reactionsComments0 comments
Is There Such A Thing As Bulbar Myasthenia Gravis?...Myasthenia gravis (MG) can have wide-reaching effects on the body. This can lead to different symptoms and ways of classifying MG. One term that may be used is bulbar MG... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments16 comments
Take the Person Before Patient Survey...The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like myasthenia gravis can... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments0 comments
Zach McCallum...When Zach was diagnosed with myasthenia gravis, he was already, as he puts it, “a professional sick person.” Thanks to a primary immune deficiency and a handful of other medical... By Editorial Team 2 min readBookmark for later
Twenty-Eight Years with MG...My symptoms leading up to a diagnosis of MG began while I was driving East on U S – 36 in Kansas in 1993. I suddenly realized my left eyelid... By olefrosty2 min readBookmark for laterReactions0reactionsComments3 comments
