Easing Back Into Exercise After Myasthenia Gravis...It has been almost 3 years since my diagnosis. This month, I finally made it back to the exercise studio I religiously attended before myasthenia gravis (MG). It was a...reactionscomments
No diplopia, will meds improve eye movement when reading?...Do you guys think that this is worth treating? I'm very suspicious that I have ocular mg. I am positive for multiple physical signs including the ice test, cogan's lid...reactions3repliesSide EffectsSymptomsMuscle Weakness
Finding The Right Doc Is A Challenge...Hi. My name is Brad. I am 60 years old. My diagnosis was only a week ago, but this process may have started back in 2020. Back then, I started...reactions1comment
Reference ranges make no sense...I had a myasthenia gravis work up from LabCorp and the reference ranges do not match the reference ranges that I was able to find on Mayo clinic's website here's...reactions1replyDiagnosisSeronegativeTips & Advice
Cogan's lid twitch...I have tested negative for the antibodies, but I think I still might have the ocular version. I did the coggins eyelid twitch test at home and it looks positive...reactions2repliesSeronegativeDiagnosis
Rare Disease Day® and Myasthenia Gravis...The last day of February is Rare Disease Day® all around the world. It is a day to recognize and raise awareness about rare diseases and how they impact patients...reactionscomments
How do you get diagnosis when you keep getting turned down from doctors?...So I'm new to this whole thing. And this site, to which im entirely grateful for. I am extremely frustrated, and I don't know what to do now, and i...reactions11repliesSeronegative
Prisoner...I am a prisoner! In prison for life... no crime committed. I am not in an actual prison. But a prisoner of my own body with a disease there is...reactionscomments
Dry Eye Therapies for MG...Most people have experienced the unpleasant feeling of dry eyes. It is a common complaint I hear from patients at the pharmacy. People with myasthenia gravis (MG) are more likely...reactions4comments
19-Years-Old, With a Body I Couldn't Control....I was weak everywhere from the get-go. In March of 2005, I noticed I couldn't button my jeans or raise my arms to fix my ponytail. Then I started choking...reactions1comment
The Struggle to Find Knowledgeable Physicians...As I read comments from others on the Myasthenia-Gravis.com Facebook page, I see many about physicians that seem to be unfamiliar with myasthenia gravis (MG). For some, taking years for...reactionscomments
what is meant by weak legs...lately after exercise my legs are sore. My knee’s feel jammed. I have only been swimming and using an elliptical machine. i don’t have the energy to do weights. Today...reactions1replyExerciseMuscle Weakness
Undergoing Multiple Major Surgeries...Although I was just was diagnosed with myasthenia gravis (MG) in October of 2020, I had symptoms most of my life. At times, they were severe and included breathing problems...reactions2comments
Finding a Balance with Exercise and Myasthenia Gravis...I don’t think it comes as any surprise that 1 of the top resolutions each New Year is to exercise more. We all know that working out is excellent for...reactions5comments
In remission from GMG by fixing diet...Developed GMG symptoms - double vision, drooping eyelid, loss of strength / endurance, etc. - in late 2003 when I was in my mid-40s and was diagnosed early 2004. Fortunately...reactions2repliesRemissionDiet & NutritionGeneralized MG
Vitamin D...I have read that a high dose of Vitamin D has a good effect on persons suffering with MG although not proven? Has anyone have any advise on this or...reactions6repliesTips & AdviceTreatment
A Guide to Buying a Blood Pressure Monitor...People with myasthenia gravis (MG) may be at a higher risk of high blood pressure (BP) compared to the rest of the population. In fact, one study found that MG patients have...reactionscomments
MG Makes Me Hesitant to Date Again...Myasthenia gravis (MG) has brought new fears of committing to a life partner. Dating is more complex than before. I have worries different from what a typical relationship involves. Will...reactionscomments
mg diagnosis or misdiagnosis?...after trouble swallowing then muscle fatigue in the legs and neck and shoulders it took 2 years for some kind of diagnosis. j After blood tests showed no acetylcholine receptors...reactions4repliesDiagnosisTreatment
