Traveling with Myasthenia Gravis...The first diagnosis of myasthenia gravis (MG) seems ominous. Will there ever be a return to “normal?” The truth is that we might have to redefine “normal” as we move... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments4 comments
Myasthenia Gravis and Fatigue...If you have myasthenia gravis (MG), then you are probably very familiar with the feeling of muscle weakness. You may have this feeling either at the end of the day... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments2 comments
My Brief MG Story...I was 60 years old before I agreed to be tested for MG. Before that I was in denial. My younger sister had been diagnosed with MG 25 years earlier... By Gramma Louise1 min readBookmark for laterReactions0reactionsComments4 comments
Why Is Myasthenia Gravis Difficult to Diagnose?...Medical disclaimer: This content was created for generalized informational purposes only. This is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Diagnosing myasthenia gravis (MG)... By Valerie Sidhoum3 min readBookmark for laterReactions0reactionsComments1 comments
Immunosuppressed in a Vaxxed World...The masks are off...except at our house. After 2 different vaccines, my husband (on imuran and mestinon) still has no measurable antibodies. There are other tests, but the doctor recommends...Reactions0reactionsComments3 repliesAwareness
What to Expect When Taking CellCept (Mycophenolate)...Editor's Note: CellCept is used off-label to treat myasthenia gravis. Talk to your doctor about the risks and benefits of this treatment. CellCept (mycophenolate mofetil) is a drug for people... By Canadian Pharmacist3 min readBookmark for laterReactions0reactionsComments2 comments
Myasthenia Gravis and COVID-19...Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with chronic conditions. "Quarantine," "social distancing," and "herd immunity"... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments4 comments
Dealing with Heat and Hot Weather...If you live with myasthenia gravis (MG), you may have blurred vision and weakness in your arms, hands, face, and legs. You may also experience shortness of breath and fatigue... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments6 comments
Speaking Out for Myasthenia Gravis...What does awareness mean to me? Awareness is knowledge. If you have experienced something, then you at least have a basic knowledge of its existence in the world. Even basic life... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
What to Know About Philips CPAP and Ventilator Recall...After many months of investigation, Philips has announced a recall notification for many of its devices. The medical device company analyzed risks related to several products, including: In the United... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Viral Cause?...I've had tests for just about all of the viruses that are common. I had a strong antibody response to HHV-6, but when they did a PCR to confirm an...Reactions0reactionsComments2 replies
Myasthenia Gravis and Brain Fog...Myasthenia gravis (MG) is an autoimmune disease that affects the muscles of the body. The immune system creates antibodies that fight the neuromuscular junction. This is the area where a... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments8 comments
FeaturedNever ever heard of this before...Diagnosed 12 years ago. Just affected my right eye. Took pills - mestonen. 2 years ago started symptoms- weakening, losing weight, until I couldn't really swallow. Then, 2 hospital visits...Reactions0reactionsComments3 replies
My MG...I was lucky enough to be diagnosed with ocular mg in the early stages in 2006 and had my thymus removed. Put on cellcept (allergic to other meds) and steroids... By The Brit1 min readBookmark for laterReactions0reactionsComments18 comments
When to Use Mobility Devices...When myasthenia gravis (MG) hit me, it smoldered along for the first year or so. I had some episodes of blurry vision, I was assured were migraines. The leg and... By Zach McCallum3 min readBookmark for laterReactions0reactionsComments14 comments
My Life is Changed !!!...Hi everyone 👋 I was former ICU staff nurse. In those 4 yrs of experience of my work is awesome ...yes, I was healthy n fit. I have never been... By Sanjana3 min readBookmark for laterReactions0reactionsComments10 comments
CellCept (Mycophenolate) and Myasthenia Gravis...Editor's Note: CellCept is used off-label to treat myasthenia gravis. Talk to your doctor about the risks and benefits of this treatment. CellCept, also known as mycophenolate mofetil, is a... By Canadian Pharmacist2 min readBookmark for laterReactions0reactionsComments3 comments
FeaturedFor the newly diagnosed...Being diagnosed with any condition can be challenging. Being diagnosed with a chronic autoimmune disease might feel impossible at first, but the good news is that it’s not impossible and...Reactions0reactionsComments3 repliesNewly Diagnosed
Myasthenia Gravis Awareness Starts With Me..."Myasthenia what?" Upon telling anyone I knew about myasthenia gravis (MG), I would often have to repeat the name multiple times, explaining what this foreign diagnosis meant. To simplify it... By Jessica Liao2 min readBookmark for laterReactions0reactionsComments0 comments
Difficulty Breathing: One of Many Symptoms with MG...I’ve already discussed one of the first symptoms I had when this disease reared its ugly head. You can read about that in the article, Myasthenia Eyes and the Emotional... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments17 comments