Take the Health and Media Habits Survey!...Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media do you use to relax or even find information about your condition?...reactionscomments
A Little Help From Friends...A rare disease, unique and varied symptoms, a scarcity of specialists ... all these things make people with myasthenia gravis (MG) feel isolated and starved for good contacts. In a world...reactions2comments
Does Prednisone help with fatigue?...Hello, Was diagnosed with MG last month. I am trying to be ultra conservative with my approach. So far I have been taking Mestinon 3x per day as a muscle...reactions4repliesDiagnosisGeneralized MGThymectomy
Recovering After My First Myasthenia Flare-Up...In case you missed it, check out part 1 of this article, "Dealing with My First MG Flare-Up." My myasthenia gravis symptoms had finally subsided, and I was doing pretty...reactions2comments
Possibility of only Ocular MG and not worse symptoms...I've had a sleepy eye in one eye for 30+ years. I'm currently approaching 60. At least my wife has noticed that I've had a droopy eye for our entire...reactions4repliesTips & AdviceCopingAwareness
Could I have MG?...Two weeks after receiving the COVID 19 booster dose, I began to feel dizzy and light-headed while walking. All of my blood work came back normal. I went to the...reactions6repliesAutoimmune DiseasesDiagnosis
Borderline achr antibodies...Hey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline" raised (reference range where I am is 0.0-0.59)...reactions4repliesDiagnosisGeneralized MG
My Experience with COVID...Despite knowing it was more than likely inevitable, I caught COVID. I believe this is actually my second time, however, the first time wasn’t confirmed. It was too early in...reactionscomments
Dealing with My First Myasthenia Flare-Up...Most of us who live with myasthenia gravis (MG) will experience a flare eventually. I’ve had some minor flares since my initial diagnosis, but they usually last for a very...reactions2comments
How to Talk to Children About Your Myasthenia Gravis...Talking with your children about your myasthenia gravis (MG) can cause major anxiety. You do not know how your child will react. You might worry that they will get upset...reactions1comment
What causes Myasthenia gravis...When I was in the military I was in contact with JP-5 fuel frequently for 4 years. It is said by the department of health that it affects the nervous...reactions3repliesAutoimmune Diseases
Pain with myasthenia ...I have recently been diagnosed with myasthenia, antibody musk. I will start treatment as soon as my insurance allows. I am having pain in my neck. Are there stretches that...reactions6repliesMuscle Weakness
Finding a Caregiver for Someone with MG...Life with myasthenia gravis (MG) often requires assistance and support. This care varies by the severity of symptoms and ranges from skilled hands-on work to simple errands. Handling all of...reactionscomments
Stressful Times Call for Relaxing Times with MG...When you have a disease such as myasthenia gravis (MG), learning how and when to rest and relax is key to a healthy existence! We know stress with MG can...reactions1comment
Ask the Advocate: How do You Stay Motivated with MG?...When living with myasthenia gravis (MG), energy levels, muscle strength, and symptoms can change daily. These fluctuations may be frustrating, and at times, discouraging. To help others face the hard...reactionscomments
Living with Myasthenia Gravis and My Mood Swings...I grew up a rather passive person. Though things would bother me, I rarely allowed people to see me upset. I considered crying a weakness and something I didn’t want...reactionscomments
5 Helpful Tips for Myasthenia Gravis Caregivers...Receiving a diagnosis of myasthenia gravis (MG) can be a life-altering experience, not only for the person with the diagnosis, but also for the spouse, child, parent, or friend who...reactions3comments
Mother newly diagnosed with MG...Hi everyone, I am new to the forum and are from the Middle East, and looking for support and feedback. We My mother is 70 years old and she was...reactions9repliesTips & AdviceCaregivingTreatment
Needing help understanding Test Results...Hi everyone, Recently had a MG panel with reflex to Musk through Quest and I have a specific question about AChr modulating antibody. My result was 22. Reference range was...reactions1replyGeneralized MG
Easing Back Into Exercise After Myasthenia Gravis...It has been almost 3 years since my diagnosis. This month, I finally made it back to the exercise studio I religiously attended before myasthenia gravis (MG). It was a...reactionscomments
