What exercise routines do you enjoy with MG?...Share how you stay active! Do you exercise in the morning or in the evening? How do you know how much exercise is too much? This forum post is an...Reactions0reactionsComments55 repliesExercise
How do you cope with fatigue?...Studies show that fatigue can have major effects in people with autoimmune diseases like MG....Reactions0reactionsComments16 repliesCopingSymptoms
After a Long Wait ... Finally A Diagnosis...In case you missed it, you can read about the days leading up to Janice's diagnosis in the article, A Major Step Towards Diagnosis. The day of my Tensilon test...Reactions0reactionsComments0 comments
Social Media and Myasthenia Gravis Support...With a diagnosis of myasthenia gravis (MG) often comes a sense of intense loneliness. The disease is rare. The symptoms are mostly internal. Despite that ptosis wink, others often cannot...Reactions0reactionsComments5 comments
Take the Managing Treatment and Medication Survey...The Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like myasthenia gravis (MG)...Reactions0reactionsComments0 comments
What Is the Tensilon Test?...The Tensilon test is a procedure once used to help diagnose myasthenia gravis (MG). It has not been used in the United States in years. Other types of tests are...Reactions0reactionsComments1 comments
Frustrated with Vision Problems...Do you also have vision problems? With all the stuff that goes on with myasthenia gravis (MG), one of the more frustrating things for me is the vision problems. Personally, I...Reactions0reactionsComments1 comments
My Experience with Rituximab...I was diagnosed with anti-MuSK myasthenia gravis (MuSK+ MG) in February of 2019. My neurologist recommended getting rituximab because of its high remission rate for patients with MuSK+ MG. However...Reactions0reactionsComments3 comments
Can You Die From Myasthenia Gravis?...Myasthenia gravis (MG) is an autoimmune condition that impacts the way nerves and muscles communicate. The body mistakenly attacks itself, leading to muscle weakness. The word "myasthenia" means muscle weakness...Reactions0reactionsComments20 comments
Specifics of dx...I hear you discuss antibodies, positive and negative this and that. What do I need to know to ask my neuro?...Reactions0reactionsComments1 replies
What Myasthenia Gravis Drugs are Safe During Pregnancy?...Pregnancy is an exciting time. But, for those with autoimmune conditions such as myasthenia gravis (MG), pregnancy may be accompanied by feelings of apprehension. People with MG respond to MG differently...Reactions0reactionsComments0 comments
Ocular myasthenia gravis ...I was diagnosed with OMG today. My right eye is pretty much closed be the end of the day. I had an EMG on my face to diagnose it and...Reactions0reactionsComments18 repliesOcular MGNewly DiagnosedDepression
Ocular myasthenia gravis ...Has anyone had an EMG test on their face? OMG...Reactions0reactionsComments6 repliesCopingAwareness
Country Life with Myasthenia Gravis...The temperature is about 72 degrees with soft breezes today as I sit here on the deck in my rocking chair overlooking the backyard. Streaks of brilliant orange, yellow, black...Reactions0reactionsComments1 comments
A Major Step Towards Diagnosis...At this point in the ongoing recount of my hospitalization and diagnosis of myasthenia gravis (MG), more new symptoms kept rolling in 1 or 2 at a time. Every day...Reactions0reactionsComments1 comments
New life with MG...I’m just starting my journey with MG. I’m scared and concerned. People are beginning to notice that there's something wrong. My eyes are sagging, they drift outwards. I have trouble...Reactions0reactionsComments19 repliesAutoimmune DiseasesGeneralized MGOcular MG
What To Do While Waiting for a Diagnosis...There’s an old meme about a frog in a pot. It waits and waits to respond to increasing discomfort. It's not just frogs; humans procrastinate too! Awareness of a potentially serious challenge...Reactions0reactionsComments2 comments
The Unspoken Battle of Weight Loss...When many people with myasthenia gravis (MG) talk about their struggle with weight, they often talk about weight gain. Weight gain is a common side effect of prednisone. It is...Reactions0reactionsComments5 comments
Speech Problems in Myasthenia Gravis...The key symptom of myasthenia gravis (MG) is muscle weakness that gets worse after activity. This usually gets better after rest. Certain muscles can be affected by the disorder, including...Reactions0reactionsComments13 comments
Refractory Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune condition in which the body mistakenly attacks itself. In MG, the way nerves and muscles communicate is affected. MG is treated with different drugs...Reactions0reactionsComments4 comments