Unending Fatigue with Myasthenia Gravis...I just recently had a few days with no fatigue. They were wonderful! Those days keep me going no matter how few and far between they happen to be. Sometimes...Reactions0reactionsComments3 comments
IVIG: Success or Failure?...I’d been living with myasthenia gravis (MG) for about 3 months. The speech problem was now intermittent, but I still had minor issues with swallowing. My breathing problem had improved...Reactions0reactionsComments3 comments
Saying Goodbye to Prednisone...I'm eating breakfast on a Saturday morning and all seems normal. However, this morning is different. For the first time in 2 years, a little white pill isn't in front...Reactions0reactionsComments3 comments
Feeling Defeated by Myasthenia Gravis...This week we've had high heat along with high humidity. I don't know about you, but for me, it's been a real struggle. You might have other triggers for your...Reactions0reactionsComments1 comments
Motherhood and Myasthenia Gravis...When I feel better, I want to: This was the wish list I made as I lay bedridden with myasthenia gravis. These simple activities that were normal routines for most...Reactions0reactionsComments0 comments
What Is the Difference Between Myasthenia Gravis and Bell’s Palsy?...Myasthenia gravis (MG) and Bell’s palsy share a few common symptoms. However, they are different conditions with distinct underlying causes. MG is an autoimmune disease that results in weakness in...Reactions0reactionsComments0 comments
My Experience with Urinary Incontinence...I don’t know about you, but I get so tired of needing to pee, along with not being able to hold it. Sometimes it just runs out ... I feel...Reactions0reactionsComments18 comments
Challenges I Faced to Get the Final Diagnosis...I am a 22-year-old female from Uganda and a midwife by profession. I started experiencing symptoms around late 2019, mainly difficulty in speech and swallowing. At that time, I was...Reactions0reactionsComments5 comments
Why Can’t We Find the Correct Treatment for Me?...Back in December 2008, I’d been living with a diagnosis of myasthenia gravis (MG), asthma, allergies, and hypertension for a couple of weeks. Still, my right eye was closed! I...Reactions0reactionsComments0 comments
Rediscovering a New "Normal"...When I received my diagnosis of myasthenia gravis (MG) in February of 2019, everything changed. My full and busy life came to a halting stop. As my symptoms progressed, my...Reactions0reactionsComments0 comments
Type 2 Diabetes with gMG...I was diagnosed with gMG back in January of 2019. At that time it only affected my eyes. It went into submission and I never really took any of the...Reactions0reactionsComments8 comments
Don't Get Frustrated...I was actually in grade school when I had the first symptoms. I started seeing double after reading for a minute or two or after any activity. In 7th grade...Reactions0reactionsComments5 comments
Connection between MG and the sPLA2-11a Enzyme?...See the link below which speaks to the impact of this enzyme which "has the capacity to bind to receptors at neuromuscular junctions and potentially disable the function of these...Reactions0reactionsComments0 repliesResearch & Clinical TrialsDiagnosisAutoimmune Diseases
Adjusting to Life with Myasthenia Gravis...I spent days in the hospital awaiting a diagnosis. Finally, I was home at last! When I got home, I had a welcome banner that my children and grandchildren made...Reactions0reactionsComments4 comments
Resistance Band Stretching Helps my MG...How did people with myasthenia gravis (MG) get the nickname "snowflake"? Because we are all different just like a snowflake. No 2 people with MG are exactly alike! Some people...Reactions0reactionsComments3 comments
Rituximab for Myasthenia Gravis...Rituximab is a drug used for various autoimmune conditions, 1 being myasthenia gravis (MG). Many people with MG see a response with immunosuppressants. However, about 10 percent of people with...Reactions0reactionsComments0 comments
What To Know About Antibiotics and Myasthenia Gravis...If you have myasthenia gravis (MG), certain drugs can make your MG symptoms worse. It is important that you and your doctors are aware of which drugs should be used...Reactions0reactionsComments8 comments
Reclaiming My Career After Myasthenia Gravis...In April of 2019, I officially quit. I stepped down from everything I was involved in. It felt like my aspirations were flushed down the drain as I left my...Reactions0reactionsComments1 comments
Moody Myasthenia Roller Coaster Ride...I don't know about you, but for me, the moodiness of myasthenia gravis (MG) just makes it hard to live with. Think about it, 1 moment you are doing fine...Reactions0reactionsComments3 comments
What Is the Connection Between Pain and Myasthenia Gravis?...Myasthenia gravis (MG) is an autoimmune condition that affects how nerves and muscles talk to one another. This can lead to muscle weakness and fatigue. MG can affect specific parts...Reactions0reactionsComments64 comments