Low-dose naltrexone...Hello everyone There's someone here who has heard of or is taking LDN ?...reactions9repliesGeneralized MGTreatment
Is Myasthenia Gravis Genetic?...Do your genes play a role in whether you will develop myasthenia gravis (MG)? There are no known risk factors for the disease. But, scientific research continues to shed light...reactions7comments
Im frustrated with testing...I started with pretty extreme weakness in my legs and pain in my back and hips. My primary ruled out orthopedic causes and referred me to a neurologist. I am...reactions4repliesSeronegativeMuscle WeaknessCoping
I was born in 1956 . There was something wrong with my muscles...my brother had it too......We were tested for MS and other neurological diseases. We had very heavy eyelids and our eyes did not move. We were diagnosed with MG at the Univercity of Chicago...reactions3repliesCoping
Struggles with Myasthenia Gravis Fatigue and Pain...I will be doing a series of articles about how to make life a little easier when you have myasthenia gravis (MG). The articles will be centered around bathing, grooming...reactionscomments
Having Surgery Without a Neurologist Consult...We all know there’s a certain amount of risk with surgery and anesthesia under the best of circumstances. Surgeons and anesthesiologists talk to their patients about the expected results and...reactionscomments
Pillow Packin'...Years ago while undiagnosed, I was desperately looking for ways to help me cope. My muscles were so tired, weak, and hurt so bad at times that I could not...reactions7comments
What Is Mental Health?...Mental health is the range of thoughts, emotions, and behaviors that affect your well-being and how you relate to others. Just like good physical health, good mental health is vital...
new medication...Looking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts? side effects? Mu husband has occular MG which...reactions7repliesTreatment
MYOCLONUS ...Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain in the past. Now only mild activity brings...reactions10repliesGeneralized MGSleepSymptoms
Lessons Learned from IVIG...When I was first diagnosed with myasthenia gravis (MG) in 2015, I was extremely underwhelmed by the number of treatment options. Somehow I was also extremely overwhelmed with the idea...reactions12comments
Sleep Disturbance...Not sure if many with MG have this or not but was wondering if sleep disturbances are common with MG. I am having a terrible time falling and then staying...reactions8repliesSymptoms
Myasthenia Gravis Diagnosis After the Age of 55: The Risks...In case you missed it, check out part 1 of this article, "A Myasthenia Gravis Diagnosis After the Age of 55." The "wild ride" I was on was a turning...reactions1comment
Might it be MG?...Right, for the last 18 months I have experienced double vision (vertical) accompanied by a tightness over my head from temple to temple whenever I bend down and do something...reactions4repliesDiagnosis
Crisis Time...With a condition as rare as myasthenia gravis (MG), caregivers are often challenged to advocate for appropriate care. That can sometimes require a lot of preparation and a surprising level...reactionscomments
Covid and Paxlovid...Hi just wondering if anyone has taken Paxlovid for Covid? Paxlovid is an anti viral treatment which has FDA emergency use authorization. I was given this after testing positive for...reactions3repliesAwarenessSide EffectsHealthcare Team
Pain when swallowing....I know that a lot of us have difficulty swallowing. When I am overtired or it’s time for medication I can have difficulty swallowing with pain, sometimes a good bit...reactions8repliesSymptoms
My Experience with Prednisone...There aren’t many treatment options for myasthenia gravis (MG) so when we find one that actually works, it’s like hitting the lotto, even when that treatment comes with a ton...reactions8comments
Struggling with myasthenia gravis ...Hello friends, It is a pleasure to meet you all. I have been diagnosed with MG since 2014. I have been struggling with it in refugee camp without proper medication...reactions13repliesCoping
A Myasthenia Gravis Diagnosis After the Age of 55...I learned little about myasthenia gravis (MG) when I went through nursing school, graduating in 1972. However, one of the main things I remember about myasthenia was that the onset...reactions6comments
