Managing Vision Issues...For some reason, double vision is the hardest symptom for me to manage. I say double-vision, but for me it’s more like...reactions31comments
What Test(s) Were Used to Diagnose Your MG?...What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis?...reactions34repliesSymptomsNewly DiagnosedDiagnosis
Home Cleaning Aids...Cleaning your home can be extremely tiring and difficult when living with myasthenia gravis (MG). This is true for me, even when...reactions1comment
toll prednisone took on my body...I have a big round face, big neck, weight gain and round torso, just cut back over 3 months and now off...reactions2repliesGeneralized MG
Making Self-Care a Priority...I’ve had myasthenia gravis for almost 10 years now. I can’t believe I’m even typing that. It feels surreal to think back...reactions11comments
Just when you think you are safe......It's been almost 3 years since hubby has had a crisis. He took his meds, avoided infections, and improved steadily. Then one...reactionscomments
Advice about antibiotics ...I was diagnosed with MG in Feb '22, as a result of double vision and droopy eyelids. Luckily only misdiagnosed briefly as...reactions2repliesNewly Diagnosed
Choosing a Wheelchair, Power Chair, or Mobility Scooter...You’ve checked with your insurance about what durable equipment and mobility aids they will cover for myasthenia gravis (MG). You’ve discussed your...reactionscomments
Newly diagnosed ...Started treatment this week for mg 4 x half pyridostigmine but only slight change...is this normal? Also im in the UK and...reactions6replies
Firing My Neurologist...I wrote an article called "My Experience with Doctors and Misdiagnoses" where I talked about how I finally got to meet with...reactionscomments
Obtaining a Mobility Aid and What One to Choose...A mobility aid is a piece of equipment or device designed to help you walk when your mobility is impaired, temporarily or...reactions1comment
The Process of Getting a Handicap Placard...If you have trouble walking due to myasthenia gravis and haven’t gotten a handicap placard or license plate, you may want to...reactions8comments
Deborah Vick...Deborah Vick is driven by her passion to create inclusive communities for people of ALL abilities, with special emphasis on equitable medical...
Role Reversal...After almost 50 years of marriage, hubby and I were "used to one another." A lot of things went without saying. We...reactions2comments
What Is Congenital Myasthenic Syndrome?...Myasthenia gravis (MG) is a disease that causes weakness and fatigue in muscles that you voluntarily control. It is an autoimmune disease...reactionscomments
IVIG Side Effects...IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention...reactions78repliesSide EffectsTreatmentMuscle Weakness
Sfemg ...Hello! I recently had a sfemg. In the frontalis I had 3 abnormally high jitters out of 20 pairs, but one of...reactionsreplies
Myasthenia Gravis (MG) Symptoms During My Pregnancy...I get asked a lot by other women who have myasthenia gravis (MG) what it was like for me when I was...reactions2comments
Awaiting possible diagnosis...Hi, am new to these boards. I’m 52 and living in the UK. I mentioned an intermittently droopy right eyelid to my...reactions5repliesSymptomsDiagnosis
Toll Prednisone Took on Your Body...What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning...reactions128repliesSide EffectsTreatmentNewly Diagnosed
