Rediscovering a New "Normal"...When I received my diagnosis of myasthenia gravis (MG) in February of 2019, everything changed. My full and busy life came to a halting stop. As my symptoms progressed, my... By Jessica Liao2 min readBookmark for laterReactions0reactionsComments0 comments
Type 2 Diabetes with gMG...I was diagnosed with gMG back in January of 2019. At that time it only affected my eyes. It went into submission and I never really took any of the... By mikewright11 min readBookmark for laterReactions0reactionsComments8 comments
Don't Get Frustrated...I was actually in grade school when I had the first symptoms. I started seeing double after reading for a minute or two or after any activity. In 7th grade... By Maynard Johnson2 min readBookmark for laterReactions0reactionsComments5 comments
Connection between MG and the sPLA2-11a Enzyme?...See the link below which speaks to the impact of this enzyme which "has the capacity to bind to receptors at neuromuscular junctions and potentially disable the function of these...Reactions0reactionsComments0 repliesResearch & Clinical TrialsDiagnosisAutoimmune Diseases
Adjusting to Life with Myasthenia Gravis...I spent days in the hospital awaiting a diagnosis. Finally, I was home at last! When I got home, I had a welcome banner that my children and grandchildren made... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments4 comments
Resistance Band Stretching Helps my MG...How did people with myasthenia gravis (MG) get the nickname "snowflake"? Because we are all different just like a snowflake. No 2 people with MG are exactly alike! Some people... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments3 comments
Rituximab for Myasthenia Gravis...Rituximab is a drug used for various autoimmune conditions, 1 being myasthenia gravis (MG). Many people with MG see a response with immunosuppressants. However, about 10 percent of people with... By Canadian Pharmacist2 min readBookmark for laterReactions0reactionsComments0 comments
What To Know About Antibiotics and Myasthenia Gravis...If you have myasthenia gravis (MG), certain drugs can make your MG symptoms worse. It is important that you and your doctors are aware of which drugs should be used... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments8 comments
Reclaiming My Career After Myasthenia Gravis...In April of 2019, I officially quit. I stepped down from everything I was involved in. It felt like my aspirations were flushed down the drain as I left my... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments1 comments
Moody Myasthenia Roller Coaster Ride...I don't know about you, but for me, the moodiness of myasthenia gravis (MG) just makes it hard to live with. Think about it, 1 moment you are doing fine... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments3 comments
What Is the Connection Between Pain and Myasthenia Gravis?...Myasthenia gravis (MG) is an autoimmune condition that affects how nerves and muscles talk to one another. This can lead to muscle weakness and fatigue. MG can affect specific parts... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments64 comments
What exercise routines do you enjoy with MG?...Share how you stay active! Do you exercise in the morning or in the evening? How do you know how much exercise is too much? This forum post is an...Reactions0reactionsComments55 repliesExercise
How do you cope with fatigue?...Studies show that fatigue can have major effects in people with autoimmune diseases like MG....Reactions0reactionsComments16 repliesCopingSymptoms
After a Long Wait ... Finally A Diagnosis...In case you missed it, you can read about the days leading up to Janice's diagnosis in the article, A Major Step Towards Diagnosis. The day of my Tensilon test... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
Social Media and Myasthenia Gravis Support...With a diagnosis of myasthenia gravis (MG) often comes a sense of intense loneliness. The disease is rare. The symptoms are mostly internal. Despite that ptosis wink, others often cannot... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments5 comments
Take the Managing Treatment and Medication Survey...The Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like myasthenia gravis (MG)... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments0 comments
What Is the Tensilon Test?...The Tensilon test is a procedure once used to help diagnose myasthenia gravis (MG). It has not been used in the United States in years. Other types of tests are... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments1 comments
Frustrated with Vision Problems...Do you also have vision problems? With all the stuff that goes on with myasthenia gravis (MG), one of the more frustrating things for me is the vision problems. Personally, I... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments1 comments
My Experience with Rituximab...I was diagnosed with anti-MuSK myasthenia gravis (MuSK+ MG) in February of 2019. My neurologist recommended getting rituximab because of its high remission rate for patients with MuSK+ MG. However... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments3 comments
Can You Die From Myasthenia Gravis?...Myasthenia gravis (MG) is an autoimmune condition that impacts the way nerves and muscles communicate. The body mistakenly attacks itself, leading to muscle weakness. The word "myasthenia" means muscle weakness... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments20 comments
