Pay Attention to Slow Heart Rate...I had taken Mestinon for years. The pharmacy printout mentioned slow heart rate as a possible side effect. I had not noticed a slowed pulse and so went on as...reactions4comments
A Flare, an Exacerbation, or a Crisis...When I was first diagnosed with myasthenia gravis (MG), I didn’t know there were levels to symptom severity. I just knew that I didn’t feel well. It took several months...reactions9comments
Ask the Health Leader: Comforting Someone After a Diagnosis...Processing a myasthenia gravis (MG) diagnosis takes time. You might also worry about the impact on your relationships. Friends, family, and caregivers may wonder how they can help you adjust...reactions2comments
What to Expect When Starting Mestinon for Myasthenia Gravis...Medical Disclaimer: This content was created for generalized informational purposes only. This is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Pyridostigmine (Mestinon) is a...reactions32comments
An Interview With Dr. Aziz Shaibani: Coping With Myasthenia Gravis...Dr. Aziz Shaibani is a neurologist specializing in neuromuscular disorders with over 30 years of experience. He serves as a Clinical Professor of Medicine at Baylor College of Medicine; Adjunct...reactions1comment
Enter Our Awareness Month Giveaway...*This giveaway has closed but we still welcome community members to share their coping strategies.* In honor of Myasthenia Gravis Awareness Month, we're gifting one lucky winner a copy of...reactions68repliesCopingAwareness
I Wish I Had Said …...Everyone has those moments. You are surprised by a comment. It could be from a stranger or a close acquaintance. They say something about your visible symptoms or limitations. Or they...reactionscomments
Combat Fatigue with Rest and Planning Ahead...When we have a disease such as myasthenia gravis, how do we function? How do we continue to work, do our chores, be a spouse, a parent, cook, go shopping?...reactions8comments
Bladder Problems and Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune disease that causes weakened muscles. With MG, the nerves are not able to communicate with muscles well. MG can affect people at any age...reactions39comments
MuSK MG...... ... anyone out there with MuSK MG? Hello, I have just been diagnosed with MuSk MG and am awaiting my first appointment with a nuero muscular specialist nuerologist. Wondering...reactions4replies
Muscles...Hi I'm new here and waiting for blood results achr & musk. Can anyone help,I have graves disease,TED and pernicious anemia. My eye Dr requested blood tests as have one...reactions9repliesMuscle Weakness
My Life Changing, Life Destroying Story...My name is Stephen, I reside in the North East of England. I've never enjoyed great health since 2003 when I developed chronic recurring nasal polyps, and I'm now five...reactions4comments
A Different Kind of Prescription...When I was first diagnosed with myasthenia gravis, I remember thinking that the Mestinon my doctor prescribed would just make all my symptoms go away. I remember him describing it...reactions22comments
How do I manage this mysthania ?gravis...Hi Am ifeoma I started experiencing weakness in 2010 because I was pregnant I thought it was one of the symptoms of pregnancy. After birth it continues that I have...reactions1replyAwareness
Excited for Spring...It's spring here and I'm rather excited! Now, that might seem strange to say being that I have myasthenia gravis (MG) and I can't do a lot. Although my medications...reactions2comments
Plasma aphersis ...Wondering if anyone knows. If getting 10treaments of plasma aphersis (didn’t work) am I losing any of protection from the Covid shots had 3. Drs didn’t answer me either!!! Dr...reactions2repliesAutoimmune Diseases
Rebekah Dorr...I have been living with MG for nearly 11 years and I have worked as a patient educator, clinical advocate and online community leader for a little over 8 years...
Thymus gland...Do i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that it can only improve by 30 % if...reactions4repliesTreatmentThymectomy
Long-Term Side Effects of Prednisone...Most people with myasthenia gravis (MG) are familiar with prednisone, a common drug prescribed during flares. Prednisone belongs to the drug class called corticosteroids. This class of medications have been...reactions20comments
Low-dose naltrexone...Hello everyone There's someone here who has heard of or is taking LDN ?...reactions9repliesGeneralized MGTreatment
