Understanding Myasthenia Gravis Antibodies...Myasthenia gravis (MG) is an autoimmune disorder that affects muscles, causing weakness. This weakness often gets worse as the day goes on. Many people first experience these symptoms in their...Reactions0reactionsComments0 comments
Home and Healthy for the Holidays...There’s an old joke going around: "If you discuss politics at the Thanksgiving table, you will have fewer Christmas gifts to buy." It certainly doesn’t reflect family values! But sometimes...Reactions0reactionsComments0 comments
Myasthenia Gravis in the Emergency Room...If your myasthenia gravis (MG) exacerbation is getting serious and you’ve decided to go to the emergency room, (See Part 1: "When to Go to the Emergency Room for Myasthenia...Reactions0reactionsComments6 comments
Jodi Enders...Jodi Enders is an artist, advocate, and anthropologist diagnosed with myasthenia gravis (MG). She was misdiagnosed and incorrectly treated for Lyme disease and then Lupus throughout college before her Lupus...
Thymectomy recovery advice...Hello everyone, I'll be getting a Thymectomy in 2 weeks and I'm in need of some recovery advice or experiences. My kids will be spending 2 weeks with family because...Reactions0reactionsComments6 repliesThymectomyTips & Advice
My Experience With Acupuncture and MG...I had a relatively healthy life before my diagnosis. Other than a few bouts of pneumonia when I was young, I never experienced any major illnesses or even broken any...Reactions0reactionsComments5 comments
Life Changing MG...I was 21 years old when I experience some symptoms in late 2018. Symptoms started with chewing and swallowing difficulty that was gradual. Then muscle weakness of my arms but...Reactions0reactionsComments2 comments
MG testing complicated by pre-existing conditions...Hello everybody I just registered here today to ask for advice on testing for MG when there are pre-existing genetic conditions and autoimmune conditions with overlapping symptoms. I will try...Reactions0reactionsComments8 replies
When to Go to the Emergency Room for Myasthenia Gravis...Picture this: you’ve got a run-of-the-mill cold, or maybe the weather has been hot, you had a busy weekend, work is stressful ... Whatever the reason, your myasthenia gravis (MG)...Reactions0reactionsComments6 comments
Wheels for Days...Since my initial diagnosis of myasthenia gravis (MG) in June of 2021, trying to find and maintain some normalcy has been a biggie for me. Like many others that have...Reactions0reactionsComments2 comments
Community Views: What You Wish People Understood About Myasthenia Gravis...Living with a rare disease means a lot of questions like, "You have what?" Myasthenia gravis (MG) is a diagnosis many do not understand. After explaining the disease, loved ones...Reactions0reactionsComments0 comments
Sleep hallucinations ...I was diagnosed with MG back in 2016. I’ve had a thymectomy and I’ve been on IVIG infusion ever since. I know that there are several side effects from MG...Reactions0reactionsComments2 repliesAutoimmune Diseases
Diagnosis Eludes Us- So Frustrated...At 19 I noticed my daughter holding her chin up all of the time and she stopped singing around the house. She had trouble swallowing and chewing. Since then she...Reactions0reactionsComments4 repliesAutoimmune DiseasesDiagnosisGeneralized MG
possibly diagnosed with MuSK MG and confused/scared...I am a 34 year old woman in New York and for the last 7 months, been having strange symptoms on and off. It started with my arms/legs tingling and...Reactions0reactionsComments10 repliesNewly DiagnosedMuscle Weakness
On the Road Again in the Tiny House...We sometimes reminisce about "good old days." Just a few years ago we traveled constantly both for pleasure and as part of our obligations for an association. It’s hard to...Reactions0reactionsComments0 comments
Prednisone's Impact on My Self-Esteem...In a previous article, I talked about how prednisone caused me to have the horrible side effect of severe edema (swelling caused by fluid retention). My self-esteem was about as...Reactions0reactionsComments5 comments
The Pros and Cons of Thymectomy...Thymectomy is often one of the first treatments doctors consider for many people with myasthenia gravis (MG). This surgical procedure removes the thymus, a small gland located near the breastbone...Reactions0reactionsComments1 comments
Still Improving ...I have come a long way since my MG diagnosis in July 2020. I saw my specialist today. My eyelids were even and the twitching is reduced, double vision is...Reactions0reactionsComments1 repliesNewly Diagnosed
My Horrible Side Effect with Prednisone...I was put on prednisone because the Mestinon alone didn’t help, nor did the intravenous immune globulin (IVIG). The first time I was on prednisone, I was on a 20...Reactions0reactionsComments1 comments
Managing Myasthenia Gravis Flares...Myasthenia gravis (MG) is a chronic (long-term) autoimmune disorder. MG is caused by antibodies attacking receptors in muscles. This destroys how nerves and muscles communicate, which results in muscle weakness...Reactions0reactionsComments18 comments
