Wheels for Days...Since my initial diagnosis of myasthenia gravis (MG) in June of 2021, trying to find and maintain some normalcy has been a biggie for me. Like many others that have... By Ashley Lujan3 min readBookmark for laterReactions0reactionsComments2 comments
Community Views: What You Wish People Understood About Myasthenia Gravis...Living with a rare disease means a lot of questions like, "You have what?" Myasthenia gravis (MG) is a diagnosis many do not understand. After explaining the disease, loved ones... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Sleep hallucinations ...I was diagnosed with MG back in 2016. I’ve had a thymectomy and I’ve been on IVIG infusion ever since. I know that there are several side effects from MG...Reactions0reactionsComments2 repliesAutoimmune Diseases
Diagnosis Eludes Us- So Frustrated...At 19 I noticed my daughter holding her chin up all of the time and she stopped singing around the house. She had trouble swallowing and chewing. Since then she...Reactions0reactionsComments4 repliesAutoimmune DiseasesDiagnosisGeneralized MG
possibly diagnosed with MuSK MG and confused/scared...I am a 34 year old woman in New York and for the last 7 months, been having strange symptoms on and off. It started with my arms/legs tingling and...Reactions0reactionsComments10 repliesNewly DiagnosedMuscle Weakness
On the Road Again in the Tiny House...We sometimes reminisce about "good old days." Just a few years ago we traveled constantly both for pleasure and as part of our obligations for an association. It’s hard to... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments0 comments
Prednisone's Impact on My Self-Esteem...In a previous article, I talked about how prednisone caused me to have the horrible side effect of severe edema (swelling caused by fluid retention). My self-esteem was about as... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments5 comments
The Pros and Cons of Thymectomy...Thymectomy is often one of the first treatments doctors consider for many people with myasthenia gravis (MG). This surgical procedure removes the thymus, a small gland located near the breastbone... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments1 comments
Still Improving ...I have come a long way since my MG diagnosis in July 2020. I saw my specialist today. My eyelids were even and the twitching is reduced, double vision is...Reactions0reactionsComments1 repliesNewly Diagnosed
My Horrible Side Effect with Prednisone...I was put on prednisone because the Mestinon alone didn’t help, nor did the intravenous immune globulin (IVIG). The first time I was on prednisone, I was on a 20... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments1 comments
Managing Myasthenia Gravis Flares...Myasthenia gravis (MG) is a chronic (long-term) autoimmune disorder. MG is caused by antibodies attacking receptors in muscles. This destroys how nerves and muscles communicate, which results in muscle weakness... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments18 comments
The Most Expensive Prescription...Myasthenia gravis (MG) often creates sudden changes in lifestyle. People who had been constantly active find themselves trapped. Projects that would have filled long days can be exhausting, and the lure... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments0 comments
Cristiano Del Giacco...Cristiano was previously a pateint leader on Myasthenia-Gravis.com. Cristiano Del Giacco is a marketing professional, Brazilian Jiu Jitsu black belt, and biomedical science student. Cristiano was an athlete before his... By Editorial Team 1 min readBookmark for later
My Cooking Tips for Myasthenia Gravis...I have always cooked from scratch. Growing, harvesting, and preserving my own fruits and vegetables. In years past, that also included grinding my own grains for flour. Including acorn flour... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments2 comments
Exercising Again After My Diagnosis...Our first summer coming back to Tennessee from Colorado in 2007, we rented a house with a pool - we thoroughly enjoyed the pool and grilling area. It was a... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments1 comments
How Do I Connect with People Living with Myasthenia Gravis?...Navigating life with myasthenia gravis (MG) can be overwhelming, especially if you do not know others with the condition. It is hard to know where to turn when all the... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Active 3 days agoHow do you deal with fatigue?...Hello everyone! I am curious and would like to hear about the different ways you deal with/ handle being fatigued. As for me I always seem to have a roller...Reactions0reactionsComments4 repliesSide EffectsTips & Advice
Coping with Prednisone...With a diagnosis of myasthenia gravis comes medication. The most common treatment is Mestinon (pyridostigmine). This drug targets the defect in communication at the junction of the nerve and muscle... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments0 comments
My Strange and Uncommon Symptoms with Myasthenia Gravis...Most of us have the classic symptoms you could read in a textbook about myasthenia gravis. But, what about those strange symptoms no one or few have heard about or... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments42 comments
A Glimmer of Hope...In October of 2020, I was officially diagnosed with what my neurologist said, "for now we are calling it seronegative myasthenia gravis." He also believed there was something else going... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments3 comments