Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team...
Swings of emotions following diagnosis ...I'm pretty new here, I'm experiencing huge swings of emotions following diagnosis. From extreme relief and happy that I have an answer...reactions4repliesNewly DiagnosedCopingTips & Advice
Botox® and MG...Botox® injections work by temporarily weakening muscles and are a common procedure with several uses. They are commonly used to minimize wrinkles...reactions3comments
My Muscles with Myasthenia Gravis...Our muscles are funny things. If we don't use them, we lose them. Our muscles have memory and remember how to do...reactions2comments
The Holidays with Myasthenia Gravis...I remember the busy days of preparing for the holidays. There was always so much to do, but I never gave it...reactions4comments
My MG Progression...My myasthenia gravis (MG) symptoms first began in 2013. I should say "symptom" because it was only vision issues. I never had...reactions7comments
Awful problems after covid jab ...Smell in the nose. Occasionally hot and sweaty problems with eyes could that be the vaccine or covid itself...reactions2repliesGeneralized MGMuscle WeaknessSide Effects
Tapering Off Mestinon?...I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms...reactions4repliesMuscle WeaknessGeneralized MGTreatment
MG Versus MS...Myasthenia gravis (MG) is a chronic (long-term) condition that affects your muscles and causes weakness. Multiple sclerosis (MS) is also a chronic...reactionscomments
Side Effects From Pyridostigmine(Mestinon)...Have you experienced any side effects from the MG treatment Pyridostigmine, commonly called Mestinon? This article on our website, https://myasthenia-gravis.com/treatment/ache-inhibitor, discusses the...reactions19repliesSide EffectsTreatmentDiagnosis
How To Play Doctor ... Or Not...One of the hardest things about advocating for a patient with a rare disease is the uncertainty of the information that we...reactions2comments
Evacuating and Relocating Due to Natural Disasters With MG...Hurricanes, fires, earthquakes, tsunamis, tornados, avalanches, ice storms, sinkholes, eruptions, flooding, blizzards, and landslides. Natural disasters are devastating phenomena entirely out of...reactionscomments
Mycophenolate Mofetil 500mg...Last year was a milestone making 80, Octogenarian status, but challenge with multiple health concerns, full hysterectomy finding ovarian cancer, stage 3...reactions8repliesOcular MG
What Should I Do?...I went to BWH and meet with Dr. Dou.... a 150-mile round trip. He wanted to continue to see me, but it...reactions6replies
EMG test on Mestinon?...Hi, I have been put on Mestinon 90mg every 4 hours during the day and 180 mg time release at night. Should...reactions7repliesGeneralized MGSeronegative
OMG and other medications I’m taking ...Hi all. I’m in the UK. Diagnosed with OMG 10 years ago when I was 42. Remitting and relapsing. Went into remission...reactions4repliesOcular MG
Drugs and Vaccines to Avoid With Myasthenia Gravis...Myasthenia gravis (MG) is a rare disorder of the immune system. MG affects how some muscles and nerves communicate. Many people living...reactions24comments
What Is the Social Health Network Community?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
Any side effects of long term IVIG treatment? ...I am now 53 years old. I got diagnosed with Thymoma in Dec 2020. Had surgery in February 2021. After surgery, in...reactions3replies
Your Azathioprine (Imuran) Side Effect Experience...Azathioprine, also known as Imuran, can cause several side effects, commonly including nausea and vomiting. Long-term usage can cause cancer and infection...reactions3repliesNewly DiagnosedSide EffectsTreatment
