New diagnosis of MG...I just had my first visit with a neurologist after I tested positive for MG back in November. It seems my double vision got worse a couple of years back...reactions3replies
An Interview With Chef Sean Brock: Pursuing Your Passion With MG...Chef Sean Brock is an award-winning chef and restaurateur who is focused on Southern cuisine. Sean is the winner of the 2010 James Beard Award for Best Chef, Southeast. He...reactionscomments
A Break in the Chaos...This whole week so far has been wonderful! The temperature outside is 90 degrees but it feels like it's 100 degrees. Tomorrow it's supposed to be even hotter. I can't...reactionscomments
What medical testing is OK if you have gMG?...Orthopedic specialist is wanting to do multiple tests to evaluate several issues. These include MRI, nerve conduction tests, mylogram with dye, etc. Can't find internet sites that discuss medical testing....reactions3repliesGeneralized MG
PVCs ...I recently saw an article, quite a technical medical article, they talked about the possibility of PVCs, premature Ventricular contractions, and MG. Do we know anything about the correlation if...reactions1reply
The 2024 Social Health Awards Program...Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...reactionscomments
Potential New Therapies for MG...There are several new emerging pharmaceuticals for myasthenia gravis (MG). Many of these therapies have a novel mechanism of action, thereby offering a new potential treatment for people who do...reactions8comments
What Not to Say to Someone with MG...These are variations on things people have actually said to me, in my real life. Please, for the love of all you hold dear, don’t say these things to anyone...reactions33comments
My Vyvgart Experience...I am AChR-positive, and allergic to Prednisone, so my treatment is Pyridostigmine only. I was at 60 MG 5 times a day and struggling. I have received 4 rounds of...reactions9comments
Myasthenia Gravis and Dental Procedure Risks...For more information on dental care and how to prepare for an appointment, check out the article, "The Struggle with a Dental Visit." What makes oral care such a big...reactions11comments
GmG...I am a 62 year old female diagnosed in 1998 with myasthenia gravis had a thymectomy and other treatments went into remission for over 20 years remission living in Florida...reactions4replies
Massage Therapy School and Myasthenia Gravis...It took doctors 48 years to diagnose me with myasthenia gravis (MG). During this time, I had a lot of flares. They all looked a little different than what MG...reactionscomments
A New Life with Myasthenia Gravis...My journey with myasthenia gravis started officially in 2018, but the symptoms started as early as 2017, by the time I started my clinical rotation in med school. Night shifts...reactions3comments
The Struggle with a Dental Visit...Myasthenia gravis (MG) is an autoimmune disorder that creates challenges for our medical and dental care. You may not be accustomed to having to research every aspect of your care...reactions2comments
4 Ways to Prepare for Traveling with MG...I remember one of the first things I thought I’d have to give up shortly after being diagnosed with myasthenia gravis (MG) was traveling. I couldn’t imagine being away from...reactions16comments
Shelbie Brown...Shelbie Brown currently resides in New Jersey. She began having symptoms right as the pandemic hit in March 2020. Not being able to see a doctor in person right away...
Myasthenia Gravis post COVID Vaccination ...Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...reactions18repliesGeneralized MGNewly Diagnosed
My PCP says......Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...reactions12repliesHealthcare TeamGeneralized MGSymptoms
Our Daily Struggle with Hair Care...Hair styling can be a real drain for people with myasthenia gravis (MG). For something that should be so very simple, it's often frustrating and challenging on us. I am...reactions9comments
Treatment ...Doc is looking @ Imuran or CellCept & IVIG for me. Anyone have any insight or experience with these treatments? *sounds like the "cure" may be worse than the disease?...reactions2repliesGeneralized MGNewly Diagnosed
