Hello everyone
I am recently diagnosed with Myasthenia and am finding it increasingly difficult to cope mentally. In 6 months I've gone from being fairly active, living a stressful but busy life, to being barely able to get from one room to another. I can't believe how rapidly I have deteriorated.
I know I'm only at the beginning of the journey and have only been on medication for two weeks (prednisolone and pyridostigmine) and have been told that things may get worse before they get better.
The physical symptoms are bad enough but mentally I am struggling to see a future. I've always been a positive, jolly person but now I feel a darkness descending that I am struggling to control. I don't have a support network, no friends, only me and partner who has a debilitating illness of his own.
Sorry for such a negative post, but any helpful pointers would be more than welcome. I wish you all the best day you can have. Regards H