Diaphoresis, anyone?
Two medications I take - Pyridostigmine and Levothyroxine - are known to have excessive sweating as side effects. This has been getting out of hand - sometimes when it's hot and I'm even just walking I will sweat entirely through my shirt, underwear, and pants! It really makes it very difficult to maintain an active lifestyle. The excess sweating, along with associated increase in urinary urgency has made my usual weekly activities (bike-riding, pickleball, reffing soccer) extremely difficult to do without embarrassment. I've asked both my PCP and neurologist about it, but haven't gotten any real feedback yet (the neurologist just sort of threw up her hands and changed the subject...)
Anyway, I was wondering if anybody else had experienced anything similar or if this is just my own private hell? 😉
Hello 09telecaster,
Totally understand what you are going through.
We need to take the Pyridostigmine and the Thyroxine but the sweating is unbearable. It can be so embarrassing, I cannot do the simplest of tasks for very long without the sweat just running down my face and into my eyes.
And then of course I become breathless and have to sit down, usually in front of a fan. I never go anywhere without a hand held fan and if out in a cafe or restaurant
I will usually ask to keep the menu to fan myself with if I’ve not remembered my own hand held!
I don’t know what the solution is, like you, the medical professionals just seem to shrug off my questions guess they don’t have an answer either.
You are definitely not alone with this problem and my guess is that there are many others with MG out there that are putting up with this embarrassing side effect.
Summer can be a nightmare as armpits et al start to get smelly!
Very hard for those without MG to understand that this isn’t just sweating it’s mega sweating😂
Tillyval (uk)
