I have never tried Rystiggo. However, my doctor suggested I try it as a possible treatment in the future since it can also help treat MuSK. My only worry is that I was told that you can't have IVIG along with Rystiggo and I do very well with IVIG. Currently, I'm on Rituximab every 6 months and IVIG every 3 weeks and mestinon.
Jodi Enders Moderator & Contributor
I appreciate you asking this question that I am sure others have or will in the future. I could not find any scientific literature online about Rystiggo and IVIG being recommended to avoid combining. I would love to know if you have. If not, I recommend seeking a second opinion from another MG specialist if you are interested in trying Rystiggo but apprehensive about stopping the IVIG.
-Jodi, Team Member
Allison Echols Member
Hi , are you currently using Rystiggo? If so, what has been your experience? Hopefully, a few community members will chime in with their experiences as well! Best, Allison (Team Member)