Leg weakness
I have MG, but my main symptoms are leg weakness and fatigue. Double vision is much better after Thymectomy in 2017. I would love to hear from people that have dominant symptoms, cause I sometimes think I am a fraud, I don’t really have MG. I know denial is a big part of this disease as well. And, I know it’s the snowflake disease but does anyone out there sound like me. Also, I wonder if my Thymectomy miracle will last?
i was diagnosed in 2021, i have delt with the onset symptoms(droopy eye ect) had a thymectomy, seemed fine for a couple months then my legs started hurting , they got bad enough that i was using two canes to walk. went on some different meds for a while back off of them now but the fatigue is still there. i work a very physical job and the guys at work do act like i am faking , but i know my body, the leg thing is real, making the decision to move your leg and it just not happening is real. you are not alone.
Hi
unfortunately others, who do not live with a chronic condition, can have a difficult time demonstrating empathy. I'm truly sorry to hear how others at your work treat you. Others here can relate to the frustrations that come from others behaving this way. How are you managing this week? Please know we're here for you anytime. Kindly, Jessica, Team Member 
I too had to deal with people (some family members) thinking I was faking it as well. I just pray others will gain some understanding and empathize with us. You are so strong being able to work with this disease. Unfortunately, I had to quit my job because I felt myself having some sort of setback everyday to the point where I could barley stand. I do hope you are able to take extra breaks when needed. - Jazmin (MG team member)
Meli, Lol I know I feel like a fraud at times myself.... This is normal when one day you need every assistive devise. Like a wheelchair, walker, eye patch neck brace slur words, drool etc. and 20 mins later for the rest of the day you are fine. Yep, that's MG!! No rhyme or reason sometimes it does what it wants to when it wants. Learn to laugh at yourself it's the only way through this. And know you are NOT alone or a Fraud. I have never had a Thymectomy, so I can't speak for that. But I have had a few complete remissions over the years with no medications. Until MG decides to show its ugly head. It is a vicious circle. You know anything good and bad is possible!!!
Just to let you know today I have on ankle & knee braces, soft neck brace, eye patch over 1 eye. Yesterday I I had none of this on. But I drove round trip 60 mile and by the time I went 30 the leg weakness and fatigue were unbelievable. And after I got home fine!! So yep, my husband and I joke about me "pretending" to have MG!! And my Husband Knows without a shred of doubt I Have Myasthenia Gravis and this is not "pretending or faking/fraud!! Hugs and Love to you Meli!!! ❄️Sally Farrier...Myasthenia-Gravis.com (team member).yes, I keep thinking I don’t have it. Then moments when I know I have it. It’s so off and on! , then you are just fine!!! Just learn to laugh about it and know that you are NOT a fraud!! MG likes to play games!!! Lots of Hugs and Love to you Meli!!! ❄️Sally Farrier...Myasthenia-Gravis.com (team member).
Hi
, I am hopeful that others in the community will jump in to share their experiences with MG. But in the meantime I wanted to reach out and thank you for sharing so honestly. We have seen so much discussion amongst community members who experience a range of symptoms and severity with MG. It can be difficult to come to terms with a diagnosis, but just because your experience is different than others does not make it less real or valid. I also wanted to share this article: https://myasthenia-gravis.com/living/worried-thoughts The author shares their worries about whether their MG will come out of remission. Please know you are not alone in wondering about the future with MG. Sending positive thoughts to you and thanks again for sharing. (Lauren, Myasthenia-Gravis.com Team) Thank you for your support!
