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Myasthenia Gravis

Hello. I have MG.After 18 months I'm actually seeing a MG specialist. Neurologist are great,but to have a specialist who opened a MG clinic in a hospital has been great. Good luck to all of us. Seat belt packet for first responders. Might save your life. Has a scan on the card,and information packet that you put the information you want others to know.

  1. Hi Mark, First of all, best wishes. MG is a difficult illness to cope with. Aside from the usual MG challenges, I think what hit me was that when I was diagnosed I was told I could no longer drive a motor vehicle. Its not a big thing because there are other modes of transport but thing is: it all hit me at once when diagnosed. Im not complaining. Taking it one day at a time. Phyllis

    1. I agree, it would be great to have a local place specializes MG. However, I have to give Credit too is amazing group. This allows us to become experts and more importantly be able to share our medical teams experts age with other people . I can't help but to be excited about the concept that we are all becoming experts in our own care while helping medical professionals serve our community better. - team member Deborah Vick



      1. Hello. If you have a medical teaching facility check with them.

        1. so glad to hear you have found physicians that have been so amazing! I hope you know our community is here for you anytime. Please feel free to reach out anytime. Kindly, Jessica, MG Team Member

          1. it took from June 2022,until now to get in to see Dr. Kahn. Worth the wait. It's taken months,but now I believe my team of specialists, including PCP, MG Dr,rheumatologist,ophthalmologist,pain management,brain and spine specialists. It's quite amazing. But it took time,coordination and prayers. The Assistance Fund has been instrumental as well. Good health everyone This a great life saving information for first responders. You attach to your seat belt. Easily adjustable.It has scan on it that takes them to a website. Also you can fill out the card inside with your information

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