Hello. I have MG.After 18 months I'm actually seeing a MG specialist. Neurologist are great,but to have a specialist who opened a MG clinic in a hospital has been great. Good luck to all of us.
Phyllis Member
Hi Mark, First of all, best wishes. MG is a difficult illness to cope with. Aside from the usual MG challenges, I think what hit me was that when I was diagnosed I was told I could no longer drive a motor vehicle. Its not a big thing because there are other modes of transport but thing is: it all hit me at once when diagnosed. Im not complaining. Taking it one day at a time. Phyllis
Deborah Vick Member
I agree, it would be great to have a local place specializes MG. However, I have to give Credit too is amazing group. This allows us to become experts and more importantly be able to share our medical teams experts age with other people . I can't help but to be excited about the concept that we are all becoming experts in our own care while helping medical professionals serve our community better. - team member Deborah Vick
Mark Member
Hello. If you have a medical teaching facility check with them.
Jess.Hall Community Admin
so glad to hear you have found physicians that have been so amazing! I hope you know our community is here for you anytime. Please feel free to reach out anytime. Kindly, Jessica, MG Team Member
Mark Member
it took from June 2022,until now to get in to see Dr. Kahn. Worth the wait. It's taken months,but now I believe my team of specialists, including PCP, MG Dr,rheumatologist,ophthalmologist,pain management,brain and spine specialists. It's quite amazing. But it took time,coordination and prayers. The Assistance Fund has been instrumental as well. Good health everyone