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New diagnosed

I just diagnosed s week and just got the hospital on Prednisone hope to start mestinon tomorrow? Need something for tongue and blurry vision! Does it take awhile to start to work,! I had 5 days IVIG

  1. How are you doing today?? Prednisone from my experience
    kicks in pretty quickly.... (For some people it makes things worse for a few days before they get better.)
    I have never had IVIG but I have heard that can take a while to kick in. Just take a deep breath and let the meds
    have time to work... Hugs to you!! ❄ Sally Farrier... Myasthenia-Gravis.com (team member).

    1. My journey has been a little different. I have not had Prednisone. After I was diagnosed I was immediately started on mestinon and it was very effective immediately. I started on a low dose 15mg twice a day with additional doses as needed. Then I learned the importance of knowing my triggers. Like too much exercise, shopping in stores with lots of fluorescent lights looking from side to side while walking down the isles, Infections, certain antibiotics, certain vaccinations and who knows what else. Many of these triggers I experienced back to back during a short period of time while also getting COVID and mestinon stopped working for me. My neurologist got me approved for IVIG and that treatment brought me back to a place where mestinon was working again. I am taking much higher dose of it though 60mg 3 x a day. My understanding of Prednisone is it needs to be ramped up slowly and may take a while to work.

      1. My eyelid drooping and blurred vision was better in 2 days. A week later I was almost back to normal. Now, after a year, I am weening off Prednisone and starting Cellcept.

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