Recently I found out I had MG
I was told I have MG about 2 month ago and I’m scared to death about what’s lies ahead of me in this journey. Started with my right eye lid dropping. See neurologist and started on pyridostigm and tomorrow I start an autoimmune drug and I have no idea what to expect.
Welcome Sgill. You've come to the right place. Many of us here have had MG for many years, and all of us went through what you are going through now: those initial months of fear. I don't want to minimize MG. It's a very formidable disease. But of all the autoimmune diseases it may be the most treatable. There is a lot of research going on and many pharmaceuticals available. The traditional treatment of pyridostigmine early on and an immunosuppressant like Cellcept or azathioprine are well tested, usually successful and not expensive. I have two pieces of advice.
1) Be patient. The immunosuppressant can take many months to work and the process of getting your whole medicine regimen right can take a year or two. You will have setbacks and some periods of wondering if you will ever get better. You will.
2) Set reasonable expectations for your neurologist and yourself. Don't expect to get well. It's not the flu, and it's not going away. What you want is all your symptoms largely controlled by your medications, You will need to make some adjustments, but there is no reason you cannot live a very long and happy life.
