Thymectomy
Hi just to let the community know that since the thymectomy to remove a thymoma I have had three ct scans and I am pleased to say that all have shown no recurrence of the thymoma. I have now been in remission, if that is the correct word, for nearly three years. I have now turned 80 and enjoying life
Given the chance to have thymectomy I would jump at the chance. My condition improved considerably after having mine removed. As my neurologist said the thymus gland plays a significant part in the operation of the immune system and I am convinced that removing the gland plus the thymoma made a significant improvement in my condition. Go for it
Hi
, thank you for sharing! So glad to hear that your thymectomy made a big improvement in your condition. Best, Allison (Team Member)
I am 76, diagnosed a few months ago. I had realized something was wrong a year before. It took that long to find a referral to a neurologist for treatment. I too wondered if my MG would have stayed occular and not progressed to generalized had I been able to be treated earlier. I have been doing well on Mestinon and progesterone low doses. Sr180 and 10 mg. I walk every day and do 20 minutes of stretching and calisthenics daily. Some days I am stronger but I still move however I can. I have been sleeping well. About 6-8 hrs. I do get up a few times for the bathroom. I am getting out now to play cards. I'll get back to my hobbies when I get there. Looking forward to travel to see my great grand babies in Nova Scotia. We will see this year, 2023, how that turns out.
I have a positive outlook on life. I help wherever I can and have always been a community booster.
I post this story to let you know acceptance and researching and advocacy all work to deal with this disease. I will adjust to my new norm. I won't hike 2 hrs but I can do 20 minutes and shop walk for an hour or two at a time
I can't paint all day but I can 3 hrs at a time.
Now thinking about the thymectomy route should my neurologist talk to me about it.
Will this work for a 76 yr old? Will it be stressful to my body and set me back? Will I take the chance it's possible for remission? Not enough research out there to make a case one way or another.
My story so far.Thanks for taking the time to share this positive news with us. Best wishes, Kaitlyn (Team Member) This is beautiful news. Congratulations!! I'm very happy for you. Continue to enjoy your life and keep us updated on your accomplishments. - Jazmin (team member)
