Wasn’t in Remission
I’m submitting this for my spouse, Karen, who was diagnosed with MG three years ago. She had a thymectomy and was later on IVIG infusions and later Cellcept was added. She first stopped the infusions and later the Cellcept and she and her neuro thought she may be in remission or even cured but her neuro told her to get back on the Mestinon if she needed to. After about 5 months she became fatigued and diplopia and slurred speech started again. She started back on the Mestinon and the Cellcept and about 3 months later received her 1st infusion and will be getting her next one next week.She now says she will no longer think she’s in remission and will not again stop the Cellcept which fortunately she’s not had any side effects from. But she will again see if she can remain off the infusions or spread them out as far as possible.I hope this story is helpful to those thinking they may be in remission or cured.
Hello
thank you for advocating for your wife and remaining by her side. This a journey for both you and your are well supported here. I had a thymectomy in 2021. I take mestinon (60mg 3x a day) and prednisone (20mg a day) currently. My last infusion was in January 2023, and I was taken on off cellcept in 2018. I'm saying this because I was diagnosed in 2012 and I know how frustrating it can be to think you're in remission and this crazy disease creeps back in out of nowhere. I empathize with you and your wife. Myasthenia Gravis is a tricky illness but know that you're not alone in navigating the ups and downs of MG. I hope your wife remains strong in hopes that she will reach remission soon. - Jazmin (MG team member) 
Hi
we appreciate you taking the time to share with us. Remission can be a tricky thing. I know others in our community can relate. I hope moving forward your wife finds relief again. Please know we're here to support you both in any way we can. Just in case you or your wife may be interested, I included an article on remission -https://myasthenia-gravis.com/living/remission. Sending many positive vibes and hugs. -Jessica, Team Member
