Raising Young Children While Managing Myasthenia GravisI have 2 children - a son who is 4, and a daughter who just turned 2. Life is nonstop with the demands of 2 toddlers. With them still dependent...reactionscomments
I'm a Rag DollRag dolls are made out of cloth and slightly stuffed. When you set one down, they just kind of crumple into a heap. They cannot be posed into any form...reactions13comments
Dealing with Transportation IssuesOne of the things I have found hard to deal with while living with myasthenia gravis is transportation. There are times when I am unable to drive myself and family...reactions4comments
Preparing for Thymectomy and Hospital Pandemic RestrictionsIt has been 6 months since my thymectomy. Woohoo! The pain medications kept most of my time in the hospital a blur. Still, I remember having many frustrating disappointments. My...reactionscomments
Prednisone WithdrawalPrednisone is an anti-inflammatory drug commonly used for its immunosuppressant properties in people with myasthenia gravis (MG). Its role is to manage MG symptoms and myasthenic crises, often in combination...reactions11comments
Could It Be Myasthenia Pain or Something Else?Once you discover you have myasthenia gravis (MG), there is a lot of learning and adjustments to be made. Then just when you think you’ve got it, you learn something...reactions2comments
Resolutions and Goal Setting Can Be IntimidatingHere we are into a new year! When everyone else is making personal or professional resolutions or setting goals, I wonder how many of us with myasthenia gravis (MG) are...reactionscomments
Shining a Light on PhotophobiaMyasthenia gravis (MG) patients experience many symptoms. As individuals, we have different symptoms, react to the same situations differently, and medications work differently for different people. While some of us...reactionscomments
Special Delivery: Navigating the Maze of SpecialistsLike many in this community, my husband’s path to diagnosis and treatment was far from direct. His symptoms began while we were wintering in a southern state. He discussed that...reactionscomments
Should I Wait? When I Know I Need Help and Just How MuchAfter having myasthenia gravis (MG) for almost 3 decades, I have gotten pretty good at knowing when I need to call my neurologist during a flare. For me, my first...reactions3comments
FDA Approves Vyvgart™ (efgartigimod) for Adults with Generalized Myasthenia GravisOn December 17, 2021, the U.S. Food and Drug Administration (FDA) approved Vyvgart™ (efgartigimod) to treat generalized myasthenia gravis (gMG) in adults who test positive for the anti-acetylcholine receptor (AChR)...reactionscomments
More Helpful Cooking Solutions for Myasthenia GravisIn case you missed it, check out part 1 of this article, My Cooking Tips for Myasthenia Gravis. For those of us who eat and cook meat, standing over a...reactionscomments
Obsessing About Early Christmas DecoratingMy Christmas decorating obsession has kept me busy until a few days ago. Then, Christmas, birthday, and our anniversary came along. I usually have plenty of help from my husband...reactionscomments
My Journey with Diets and Learning to Enjoy Food AgainWhen I was first diagnosed with myasthenia gravis (MG), I started researching diets for autoimmune diseases. Due to my upbringing which valued holistic health, I believed my body was capable...reactions2comments
Seeing the Light - Or NotThey say that "hindsight is 20/20." In the case of my husband's myasthenia gravis (MG), his sudden loss of 20/20 vision should have been our first clue to the possibility...reactions2comments
Celebrating Christmas the Myasthenia and COVID WayThe biggest holidays of the year are peaking just around the corner. This will be our second Christmas dealing with COVID-19 during the holidays. My view on life is different...reactionscomments
5 Ways to Gussy Up Mashed Potatoes (When Mashed Potatoes Are All You Can Eat)Question: When is the worst time of year to have a myasthenia gravis (MG) flare up? Well, there isn’t really a good time for one, but for me, the winter...reactions1comment
The Importance of Self CareThe past 2 years have been extremely challenging for me and for my family. I was diagnosed with myasthenia gravis (MG) 27 years ago and there have been rough times...reactions3comments
MG Gave Me Lemons, So I Made LemonadeBeing diagnosed with myasthenia gravis (MG) can be a shock. Not only are you confronted by a condition you’ve never heard of before, but you’re also faced with change. Change...reactionscomments
Reinventing Myself with Myasthenia GravisAh, being alive and having the energy to do the things that you want to do! Or at least that's what we see portrayed on TV. But then again, TV...reactions3comments
