Exercising Again After My DiagnosisOur first summer coming back to Tennessee from Colorado in 2007, we rented a house with a pool - we thoroughly enjoyed the pool and grilling area. It was a...Reactions0reactionsComments1 comments
How Do I Connect with People Living with Myasthenia Gravis?Navigating life with myasthenia gravis (MG) can be overwhelming, especially if you do not know others with the condition. It is hard to know where to turn when all the...Reactions0reactionsComments0 comments
Coping with PrednisoneWith a diagnosis of myasthenia gravis comes medication. The most common treatment is Mestinon (pyridostigmine). This drug targets the defect in communication at the junction of the nerve and muscle...Reactions0reactionsComments0 comments
My Strange and Uncommon Symptoms with Myasthenia GravisMost of us have the classic symptoms you could read in a textbook about myasthenia gravis. But, what about those strange symptoms no one or few have heard about or...Reactions0reactionsComments42 comments
A Glimmer of HopeIn October of 2020, I was officially diagnosed with what my neurologist said, "for now we are calling it seronegative myasthenia gravis." He also believed there was something else going...Reactions0reactionsComments3 comments
Preparing for Surgery When You Have Myasthenia GravisMedical Disclaimer: This content was created for generalized informational purposes only. This is not intended to be a substitute for professional medical advice, diagnosis, or treatment. People with myasthenia gravis...Reactions0reactionsComments0 comments
Myasthenia Gravis and the Impact on My JobWhen I first fell ill with myasthenia gravis, as for many, it was a very difficult time. Not only was I trying to adjust to all the changes this ugly...Reactions0reactionsComments3 comments
My Journey to Buy a Mobility DeviceMy journey to use mobility devices began when I could not get out and enjoy things like shopping, going to a park, or hiking. Although sometimes it is an issue...Reactions0reactionsComments1 comments
Living with the Depressing Symptoms of Myasthenia GravisLearning to live with myasthenia gravis after my diagnosis was depressing. No one bothered to tell me, but I knew I couldn’t drive safely, so I didn’t. My vision was...Reactions0reactionsComments2 comments
Myasthenia Gravis Can Be Hard to SwallowThe first symptoms of myasthenia gravis often involve vision, but problems with swallowing can soon follow. Swallowing is a complex process that involves over 30 nerves and muscles. So it’s...Reactions0reactionsComments7 comments
Myasthenic and Cholinergic Crises: What You Need to KnowIf you or a loved one is living with myasthenia gravis (MG), you may worry about complications. One serious complication that can develop is called a myasthenic crisis. Another less...Reactions0reactionsComments3 comments
Unending Fatigue with Myasthenia GravisI just recently had a few days with no fatigue. They were wonderful! Those days keep me going no matter how few and far between they happen to be. Sometimes...Reactions0reactionsComments3 comments
IVIG: Success or Failure?I’d been living with myasthenia gravis (MG) for about 3 months. The speech problem was now intermittent, but I still had minor issues with swallowing. My breathing problem had improved...Reactions0reactionsComments3 comments
Saying Goodbye to PrednisoneI'm eating breakfast on a Saturday morning and all seems normal. However, this morning is different. For the first time in 2 years, a little white pill isn't in front...Reactions0reactionsComments3 comments
Feeling Defeated by Myasthenia GravisThis week we've had high heat along with high humidity. I don't know about you, but for me, it's been a real struggle. You might have other triggers for your...Reactions0reactionsComments1 comments
Motherhood and Myasthenia GravisWhen I feel better, I want to: This was the wish list I made as I lay bedridden with myasthenia gravis. These simple activities that were normal routines for most...Reactions0reactionsComments0 comments
What Is the Difference Between Myasthenia Gravis and Bell’s Palsy?Myasthenia gravis (MG) and Bell’s palsy share a few common symptoms. However, they are different conditions with distinct underlying causes. MG is an autoimmune disease that results in weakness in...Reactions0reactionsComments0 comments
My Experience with Urinary IncontinenceI don’t know about you, but I get so tired of needing to pee, along with not being able to hold it. Sometimes it just runs out ... I feel...Reactions0reactionsComments18 comments
Why Can’t We Find the Correct Treatment for Me?Back in December 2008, I’d been living with a diagnosis of myasthenia gravis (MG), asthma, allergies, and hypertension for a couple of weeks. Still, my right eye was closed! I...Reactions0reactionsComments0 comments
Rediscovering a New "Normal"When I received my diagnosis of myasthenia gravis (MG) in February of 2019, everything changed. My full and busy life came to a halting stop. As my symptoms progressed, my...Reactions0reactionsComments0 comments