Finding Comfort When We Redefine FamilyThe holiday season recently passed. If family interactions didn’t unravel as well as we had hoped, we might still focus on this...reactions7comments
The Impact of Myasthenia Gravis on FriendshipsBefore I was diagnosed with myasthenia gravis (MG), I was very social. I loved community gatherings and hosted people over at our...reactions1comment
Accepting My Limitations Gave Me FreedomIf there’s one thing myasthenia gravis (MG) brings, it’s limitations: limitations on the capacity for activity, work, and the potential for productivity...reactions7comments
Become Your Own Myasthenia Gravis AdvocateAs you probably know, myasthenia gravis (MG) is a chronic autoimmune disease. Because of the rarity of this disease, many physicians and...reactions1comment
Diagnosing Myasthenia GravisMyasthenia gravis (MG) can be a hard diagnosis to receive. I don’t mean hard as in emotionally challenging, although that definitely happens...reactions1comment
A Healing Balm for Stress and AnxietyStress and anxiety have been a constant tension in my life. A few days ago, a mysterious itchy rash started spreading across...reactions1comment
Living with and Managing Multiple ConditionsIn other articles, I’ve talked briefly about living with 2 or more health conditions. When I was first diagnosed with myasthenia gravis...reactions5comments
Raising Young Children While Managing Myasthenia GravisI have 2 children - a son who is 4, and a daughter who just turned 2. Life is nonstop with the...reactionscomments
I'm a Rag DollRag dolls are made out of cloth and slightly stuffed. When you set one down, they just kind of crumple into a...reactions13comments
Dealing with Transportation IssuesOne of the things I have found hard to deal with while living with myasthenia gravis is transportation. There are times when...reactions4comments
Preparing for Thymectomy and Hospital Pandemic RestrictionsIt has been 6 months since my thymectomy. Woohoo! The pain medications kept most of my time in the hospital a blur...reactionscomments
Prednisone WithdrawalPrednisone is an anti-inflammatory drug commonly used for its immunosuppressant properties in people with myasthenia gravis (MG). Its role is to manage...reactions11comments
Could It Be Myasthenia Pain or Something Else?Once you discover you have myasthenia gravis (MG), there is a lot of learning and adjustments to be made. Then just when...reactions2comments
Resolutions and Goal Setting Can Be IntimidatingHere we are into a new year! When everyone else is making personal or professional resolutions or setting goals, I wonder how...reactionscomments
Shining a Light on PhotophobiaMyasthenia gravis (MG) patients experience many symptoms. As individuals, we have different symptoms, react to the same situations differently, and medications work...reactionscomments
Special Delivery: Navigating the Maze of SpecialistsLike many in this community, my husband’s path to diagnosis and treatment was far from direct. His symptoms began while we were...reactionscomments
Should I Wait? When I Know I Need Help and Just How MuchAfter having myasthenia gravis (MG) for almost 3 decades, I have gotten pretty good at knowing when I need to call my...reactions3comments
FDA Approves Vyvgart™ (efgartigimod) for Adults with Generalized Myasthenia GravisOn December 17, 2021, the U.S. Food and Drug Administration (FDA) approved Vyvgart™ (efgartigimod) to treat generalized myasthenia gravis (gMG) in adults...reactionscomments
More Helpful Cooking Solutions for Myasthenia GravisIn case you missed it, check out part 1 of this article, My Cooking Tips for Myasthenia Gravis. For those of us...reactions1comment
Obsessing About Early Christmas DecoratingMy Christmas decorating obsession has kept me busy until a few days ago. Then, Christmas, birthday, and our anniversary came along. I...reactionscomments
