Community Views: What You Wish People Understood About Myasthenia GravisLiving with a rare disease means a lot of questions like, "You have what?" Myasthenia gravis (MG) is a diagnosis many do not understand. After explaining the disease, loved ones...reactionscomments
On the Road Again in the Tiny HouseWe sometimes reminisce about "good old days." Just a few years ago we traveled constantly both for pleasure and as part of our obligations for an association. It’s hard to...reactionscomments
Prednisone's Impact on My Self-EsteemIn a previous article, I talked about how prednisone caused me to have the horrible side effect of severe edema (swelling caused by fluid retention). My self-esteem was about as...reactions5comments
The Pros and Cons of ThymectomyThymectomy is often one of the first treatments doctors consider for many people with myasthenia gravis (MG). This surgical procedure removes the thymus, a small gland located near the breastbone...reactions1comment
My Horrible Side Effect with PrednisoneI was put on prednisone because the Mestinon alone didn’t help, nor did the intravenous immune globulin (IVIG). The first time I was on prednisone, I was on a 20...reactions1comment
Managing Myasthenia Gravis FlaresMyasthenia gravis (MG) is a chronic (long-term) autoimmune disorder. MG is caused by antibodies attacking receptors in muscles. This destroys how nerves and muscles communicate, which results in muscle weakness...reactions37comments
The Most Expensive PrescriptionMyasthenia gravis (MG) often creates sudden changes in lifestyle. People who had been constantly active find themselves trapped. Projects that would have filled long days can be exhausting, and the lure...reactionscomments
My Cooking Tips for Myasthenia GravisI have always cooked from scratch. Growing, harvesting, and preserving my own fruits and vegetables. In years past, that also included grinding my own grains for flour. Including acorn flour...reactions2comments
Exercising Again After My DiagnosisOur first summer coming back to Tennessee from Colorado in 2007, we rented a house with a pool - we thoroughly enjoyed the pool and grilling area. It was a...reactions13comments
How Do I Connect with People Living with Myasthenia Gravis?Navigating life with myasthenia gravis (MG) can be overwhelming, especially if you do not know others with the condition. It is hard to know where to turn when all the...reactionscomments
Coping with PrednisoneWith a diagnosis of myasthenia gravis comes medication. The most common treatment is Mestinon (pyridostigmine). This drug targets the defect in communication at the junction of the nerve and muscle...reactionscomments
My Strange and Uncommon Symptoms with Myasthenia GravisMost of us have the classic symptoms you could read in a textbook about myasthenia gravis. But, what about those strange symptoms no one or few have heard about or...reactions42comments
A Glimmer of HopeIn October of 2020, I was officially diagnosed with what my neurologist said, "for now we are calling it seronegative myasthenia gravis." He also believed there was something else going...reactions3comments
Preparing for Surgery When You Have Myasthenia GravisMedical Disclaimer: This content was created for generalized informational purposes only. This is not intended to be a substitute for professional medical advice, diagnosis, or treatment. People with myasthenia gravis...reactions1comment
Myasthenia Gravis and the Impact on My JobWhen I first fell ill with myasthenia gravis, as for many, it was a very difficult time. Not only was I trying to adjust to all the changes this ugly...reactions3comments
My Journey to Buy a Mobility DeviceMy journey to use mobility devices began when I could not get out and enjoy things like shopping, going to a park, or hiking. Although sometimes it is an issue...reactions1comment
Living With the Depressing Symptoms of Myasthenia GravisLearning to live with myasthenia gravis after my diagnosis was depressing. No one bothered to tell me, but I knew I couldn’t drive safely, so I didn’t. My vision was...reactions2comments
Myasthenia Gravis Can Be Hard to SwallowThe first symptoms of myasthenia gravis often involve vision, but problems with swallowing can soon follow. Swallowing is a complex process that involves over 30 nerves and muscles. So it’s...reactions7comments
Myasthenic and Cholinergic Crises: What You Need to KnowIf you or a loved one is living with myasthenia gravis (MG), you may worry about complications. One serious complication that can develop is called a myasthenic crisis. Another less...reactions3comments
Unending Fatigue with Myasthenia GravisI just recently had a few days with no fatigue. They were wonderful! Those days keep me going no matter how few and far between they happen to be. Sometimes...reactions3comments
