Rediscovering a New "Normal"When I received my diagnosis of myasthenia gravis (MG) in February of 2019, everything changed. My full and busy life came to a halting stop. As my symptoms progressed, my...Reactions0reactionsComments0 comments
Adjusting to Life with Myasthenia GravisI spent days in the hospital awaiting a diagnosis. Finally, I was home at last! When I got home, I had a welcome banner that my children and grandchildren made...Reactions0reactionsComments4 comments
Resistance Band Stretching Helps my MGHow did people with myasthenia gravis (MG) get the nickname "snowflake"? Because we are all different just like a snowflake. No 2 people with MG are exactly alike! Some people...Reactions0reactionsComments3 comments
Rituximab for Myasthenia GravisRituximab is a drug used for various autoimmune conditions, 1 being myasthenia gravis (MG). Many people with MG see a response with immunosuppressants. However, about 10 percent of people with...Reactions0reactionsComments0 comments
What To Know About Antibiotics and Myasthenia GravisIf you have myasthenia gravis (MG), certain drugs can make your MG symptoms worse. It is important that you and your doctors are aware of which drugs should be used...Reactions0reactionsComments10 comments
Reclaiming My Career After Myasthenia GravisIn April of 2019, I officially quit. I stepped down from everything I was involved in. It felt like my aspirations were flushed down the drain as I left my...Reactions0reactionsComments1 comments
Moody Myasthenia Roller Coaster RideI don't know about you, but for me, the moodiness of myasthenia gravis (MG) just makes it hard to live with. Think about it, 1 moment you are doing fine...Reactions0reactionsComments3 comments
What Is the Connection Between Pain and Myasthenia Gravis?Myasthenia gravis (MG) is an autoimmune condition that affects how nerves and muscles talk to one another. This can lead to muscle weakness and fatigue. MG can affect specific parts...Reactions0reactionsComments64 comments
After a Long Wait ... Finally A DiagnosisIn case you missed it, you can read about the days leading up to Janice's diagnosis in the article, A Major Step Towards Diagnosis. The day of my Tensilon test...Reactions0reactionsComments0 comments
Social Media and Myasthenia Gravis SupportWith a diagnosis of myasthenia gravis (MG) often comes a sense of intense loneliness. The disease is rare. The symptoms are mostly internal. Despite that ptosis wink, others often cannot...Reactions0reactionsComments5 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like myasthenia gravis (MG)...Reactions0reactionsComments0 comments
What Is the Tensilon Test?The Tensilon test is a procedure once used to help diagnose myasthenia gravis (MG). It has not been used in the United States in years. Other types of tests are...Reactions0reactionsComments1 comments
Frustrated with Vision ProblemsDo you also have vision problems? With all the stuff that goes on with myasthenia gravis (MG), one of the more frustrating things for me is the vision problems. Personally, I...Reactions0reactionsComments1 comments
My Experience with RituximabI was diagnosed with anti-MuSK myasthenia gravis (MuSK+ MG) in February of 2019. My neurologist recommended getting rituximab because of its high remission rate for patients with MuSK+ MG. However...Reactions0reactionsComments3 comments
Can You Die From Myasthenia Gravis?Myasthenia gravis (MG) is an autoimmune condition that impacts the way nerves and muscles communicate. The body mistakenly attacks itself, leading to muscle weakness. The word "myasthenia" means muscle weakness...Reactions0reactionsComments24 comments
What Myasthenia Gravis Drugs are Safe During Pregnancy?Pregnancy is an exciting time. But, for those with autoimmune conditions such as myasthenia gravis (MG), pregnancy may be accompanied by feelings of apprehension. People with MG respond to MG differently...Reactions0reactionsComments0 comments
Country Life with Myasthenia GravisThe temperature is about 72 degrees with soft breezes today as I sit here on the deck in my rocking chair overlooking the backyard. Streaks of brilliant orange, yellow, black...Reactions0reactionsComments1 comments
A Major Step Towards DiagnosisAt this point in the ongoing recount of my hospitalization and diagnosis of myasthenia gravis (MG), more new symptoms kept rolling in 1 or 2 at a time. Every day...Reactions0reactionsComments1 comments
What To Do While Waiting for a DiagnosisThere’s an old meme about a frog in a pot. It waits and waits to respond to increasing discomfort. It's not just frogs; humans procrastinate too! Awareness of a potentially serious challenge...Reactions0reactionsComments2 comments
The Unspoken Battle of Weight LossWhen many people with myasthenia gravis (MG) talk about their struggle with weight, they often talk about weight gain. Weight gain is a common side effect of prednisone. It is...Reactions0reactionsComments5 comments