Unending Fatigue with Myasthenia GravisI just recently had a few days with no fatigue. They were wonderful! Those days keep me going no matter how few and far between they happen to be. Sometimes...Reactions0reactionsComments3 comments
IVIG: Success or Failure?I’d been living with myasthenia gravis (MG) for about 3 months. The speech problem was now intermittent, but I still had minor issues with swallowing. My breathing problem had improved...Reactions0reactionsComments3 comments
Saying Goodbye to PrednisoneI'm eating breakfast on a Saturday morning and all seems normal. However, this morning is different. For the first time in 2 years, a little white pill isn't in front...Reactions0reactionsComments3 comments
Feeling Defeated by Myasthenia GravisThis week we've had high heat along with high humidity. I don't know about you, but for me, it's been a real struggle. You might have other triggers for your...Reactions0reactionsComments1 comments
Motherhood and Myasthenia GravisWhen I feel better, I want to: This was the wish list I made as I lay bedridden with myasthenia gravis. These simple activities that were normal routines for most...Reactions0reactionsComments0 comments
What Is the Difference Between Myasthenia Gravis and Bell’s Palsy?Myasthenia gravis (MG) and Bell’s palsy share a few common symptoms. However, they are different conditions with distinct underlying causes. MG is an autoimmune disease that results in weakness in...Reactions0reactionsComments0 comments
My Experience with Urinary IncontinenceI don’t know about you, but I get so tired of needing to pee, along with not being able to hold it. Sometimes it just runs out ... I feel...Reactions0reactionsComments18 comments
Why Can’t We Find the Correct Treatment for Me?Back in December 2008, I’d been living with a diagnosis of myasthenia gravis (MG), asthma, allergies, and hypertension for a couple of weeks. Still, my right eye was closed! I...Reactions0reactionsComments0 comments
Rediscovering a New "Normal"When I received my diagnosis of myasthenia gravis (MG) in February of 2019, everything changed. My full and busy life came to a halting stop. As my symptoms progressed, my...Reactions0reactionsComments0 comments
Adjusting to Life with Myasthenia GravisI spent days in the hospital awaiting a diagnosis. Finally, I was home at last! When I got home, I had a welcome banner that my children and grandchildren made...Reactions0reactionsComments4 comments
Resistance Band Stretching Helps my MGHow did people with myasthenia gravis (MG) get the nickname "snowflake"? Because we are all different just like a snowflake. No 2 people with MG are exactly alike! Some people...Reactions0reactionsComments3 comments
Rituximab for Myasthenia GravisRituximab is a drug used for various autoimmune conditions, 1 being myasthenia gravis (MG). Many people with MG see a response with immunosuppressants. However, about 10 percent of people with...Reactions0reactionsComments0 comments
What To Know About Antibiotics and Myasthenia GravisIf you have myasthenia gravis (MG), certain drugs can make your MG symptoms worse. It is important that you and your doctors are aware of which drugs should be used...Reactions0reactionsComments10 comments
Reclaiming My Career After Myasthenia GravisIn April of 2019, I officially quit. I stepped down from everything I was involved in. It felt like my aspirations were flushed down the drain as I left my...Reactions0reactionsComments1 comments
Moody Myasthenia Roller Coaster RideI don't know about you, but for me, the moodiness of myasthenia gravis (MG) just makes it hard to live with. Think about it, 1 moment you are doing fine...Reactions0reactionsComments3 comments
What Is the Connection Between Pain and Myasthenia Gravis?Myasthenia gravis (MG) is an autoimmune condition that affects how nerves and muscles talk to one another. This can lead to muscle weakness and fatigue. MG can affect specific parts...Reactions0reactionsComments66 comments
After a Long Wait ... Finally A DiagnosisIn case you missed it, you can read about the days leading up to Janice's diagnosis in the article, A Major Step Towards Diagnosis. The day of my Tensilon test...Reactions0reactionsComments0 comments
Social Media and Myasthenia Gravis SupportWith a diagnosis of myasthenia gravis (MG) often comes a sense of intense loneliness. The disease is rare. The symptoms are mostly internal. Despite that ptosis wink, others often cannot...Reactions0reactionsComments5 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like myasthenia gravis (MG)...Reactions0reactionsComments0 comments
What Is the Tensilon Test?The Tensilon test is a procedure once used to help diagnose myasthenia gravis (MG). It has not been used in the United States in years. Other types of tests are...Reactions0reactionsComments1 comments