How Do I Connect with People Living with Myasthenia Gravis?
Navigating life with myasthenia gravis (MG) can be overwhelming, especially if you do not know others with the condition. It is hard to know where to turn when all the information is so new and unfamiliar. You may be looking to connect with real people living with MG but you do not know where to find them!
The good news: You do not need to know someone with MG to hear real-life experiences, have your worries heard, and get your questions answered!
It is easy to talk to others living with MG in our community when you register for a free, anonymous membership.
How can I connect with others?
Most people start by reading our articles about life with myasthenia, lifestyle adjustments, symptoms experienced, and MG management.
Many articles on this website are written by someone who has experience living with MG or doctors. Other writers on our Editorial Team bring the latest news and information about MG to the community.
At the end of our articles, there is a comments section where members can join the conversation. You can add a comment to share your personal experiences on the subject or ask a related question. We also have a range of emoji reactions if you would like to share how you feel about the article – surprised, sad, supportive, and more.
Join the conversation on our forums
Articles are just the beginning! You can also ask any questions you may have about MG using our forums. Using the forums is a great way to get answers to any of your "Is this normal?" questions and hear directly from those who have been through it.
Forums are a way to dive deeper into a conversation around specific topics. For example, this forum thread is a place for those who are newly diagnosed to share their concerns, while this thread focuses on MG antibodies and which ones you may have tested positive for.
Have you ever wondered, "Am I the only one dealing with this?" or "Has anyone else had this symptom?" On Myasthenia-Gravis.com, you will find community members who have submitted their own stories and written from their own experiences and perspectives. They share their personal stories and journeys with MG.
You can share your story with others too. Your story is a place where you can vent, share, and look for support or give information on what has helped you manage to inspire others.
Post a status update
Want to share how you are feeling today? Your status update is a quick way to update the community on how you are doing. Good, bad, or overwhelmed? We are here to listen and provide support.
Have you found it difficult to discuss your diagnosis or symptoms with loved ones?