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Did you test positive for any MG antibodies?

AChR, MuSk, LRP4? Are you seronegative? Don't know or not sure? Share your experiences here.

  1. I have tested positive for achr n nerve conduction test ... M checking achr in every month n the results is still positive but decreased than before

    1. I've tested positive twice for AChR Binding Abs, AChR Blocking Abs, AChR Modulating Abs and Anti-Striation Abs. All of the results have been very high so far.

      1. Hello again, Doug! Appreciate you getting back to me. Goodness, you're managing a lot. What a year this must have been for you since (a correct, finally) diagnosis. I really hope the physical therapy helps with your bursitis. Please do keep us posted on your progress if you'd like! To change your profile picture, ensure that you're logged in and then head to "Account Settings" from the upper right hand corner of the screen. From there, you should be able to upload a photo! I appreciate your kind words as we get our community off its feet. If you have any suggestions for us or ideas on what you'd like to see here, please feel free to shoot them my way! I'm one of the Community Managers on the site. Hope you've been having a gentle weekend 😀 -Alesandra ( Team)

      2. m uploading my pictures in profile ..this is my current pics .... My taking steriod n others many medication too face is like moon face. body r odema n obesity .. totallly changed. .. thymectomy done for me ( for having thymoma ) before this Operation ivig took

    2. I don't test positive for MG through any of the current tests available! I have treatment refractory MG. The doctors all agree that I do have Myasthenia, it is just some form that they haven't seen before! The only positive test I had was a tensilon test way back in 1995. I have had a lot of success with Rituxan.

      1. I remember when I first went to the neurologist and they said I didn't have the typical myasthenia gravis, but had to run some extra blood tests. My husband was relieved, but I wasn't so sure because of my symptoms. Those tests felt like they took forever, and when the results came back, it was revealed that I had MuSK MG. Because of this, treatment has been trickier. However, Rituxan is known to be very effective for MuSK MG patients and I have to agree. I believe I am living in medical remission now.

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