6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while taking care of...Reactions0reactionsComments0 comments
Facing Surgery with a Diagnosis of Myasthenia GravisI have had 3 prior surgeries, all while experiencing the same symptoms that I currently have. The difference now is that I have been officially diagnosed with myasthenia gravis (MG)...Reactions0reactionsComments0 comments
Thriving in Marriage After MGWhen I was diagnosed with myasthenia gravis (MG), my husband and I had been married for 5 years. We had 1 toddler and a baby on the way. Our marriage...Reactions0reactionsComments2 comments
Finding Comfort When We Redefine FamilyThe holiday season recently passed. If family interactions didn’t unravel as well as we had hoped, we might still focus on this defeat. This is not the mentality we need...Reactions0reactionsComments7 comments
The Impact of Myasthenia Gravis on FriendshipsBefore I was diagnosed with myasthenia gravis (MG), I was very social. I loved community gatherings and hosted people over at our home almost every week. There was nothing like...Reactions0reactionsComments1 comments
Accepting My Limitations Gave Me FreedomIf there’s one thing myasthenia gravis (MG) brings, it’s limitations: limitations on the capacity for activity, work, and the potential for productivity. When I was first diagnosed with MG, the...Reactions0reactionsComments7 comments
Become Your Own Myasthenia Gravis AdvocateAs you probably know, myasthenia gravis (MG) is a chronic autoimmune disease. Because of the rarity of this disease, many physicians and other medical professionals know or understand little about...Reactions0reactionsComments1 comments
Diagnosing Myasthenia GravisMyasthenia gravis (MG) can be a hard diagnosis to receive. I don’t mean hard as in emotionally challenging, although that definitely happens too. I mean it is difficult to find...Reactions0reactionsComments1 comments
A Healing Balm for Stress and AnxietyStress and anxiety have been a constant tension in my life. A few days ago, a mysterious itchy rash started spreading across my body like wildfire. I scrambled to book...Reactions0reactionsComments1 comments
Living with and Managing Multiple ConditionsIn other articles, I’ve talked briefly about living with 2 or more health conditions. When I was first diagnosed with myasthenia gravis in December 2008, I was also diagnosed with...Reactions0reactionsComments5 comments
Raising Young Children While Managing Myasthenia GravisI have 2 children - a son who is 4, and a daughter who just turned 2. Life is nonstop with the demands of 2 toddlers. With them still dependent...Reactions0reactionsComments0 comments
I'm a Rag DollRag dolls are made out of cloth and slightly stuffed. When you set one down, they just kind of crumple into a heap. They cannot be posed into any form...Reactions0reactionsComments13 comments
Dealing with Transportation IssuesOne of the things I have found hard to deal with while living with myasthenia gravis is transportation. There are times when I am unable to drive myself and family...Reactions0reactionsComments4 comments
Preparing for Thymectomy and Hospital Pandemic RestrictionsIt has been 6 months since my thymectomy. Woohoo! The pain medications kept most of my time in the hospital a blur. Still, I remember having many frustrating disappointments. My...Reactions0reactionsComments0 comments
Prednisone WithdrawalPrednisone is an anti-inflammatory drug commonly used for its immunosuppressant properties in people with myasthenia gravis (MG). Its role is to manage MG symptoms and myasthenic crises, often in combination...Reactions0reactionsComments11 comments
Could It Be Myasthenia Pain or Something Else?Once you discover you have myasthenia gravis (MG), there is a lot of learning and adjustments to be made. Then just when you think you’ve got it, you learn something...Reactions0reactionsComments2 comments
Resolutions and Goal Setting Can Be IntimidatingHere we are into a new year! When everyone else is making personal or professional resolutions or setting goals, I wonder how many of us with myasthenia gravis (MG) are...Reactions0reactionsComments0 comments
Shining a Light on PhotophobiaMyasthenia gravis (MG) patients experience many symptoms. As individuals, we have different symptoms, react to the same situations differently, and medications work differently for different people. While some of us...Reactions0reactionsComments0 comments
Special Delivery: Navigating the Maze of SpecialistsLike many in this community, my husband’s path to diagnosis and treatment was far from direct. His symptoms began while we were wintering in a southern state. He discussed that...Reactions0reactionsComments0 comments
Should I Wait? When I Know I Need Help and Just How MuchAfter having myasthenia gravis (MG) for almost 3 decades, I have gotten pretty good at knowing when I need to call my neurologist during a flare. For me, my first...Reactions0reactionsComments3 comments