Causes of Minor MG Flares and How to Deal with ThemEver since my medication change to mycophenolate (CellCept), I’ve done quite well! I’ve had very minor issues since then and I’ve lost about half of my prednisone weight. I’m glad...reactions5comments
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Having Myasthenia Gravis, COVID, and PneumoniaWhile I realize that everyone's experience can be different, this is a personal account of my experience with COVID-19 and myasthenia gravis (MG). In January 2021, I was in a...reactions5comments
Dealing with MG Weakness and MisconceptionsThere is a misconception that if our legs are weak from myasthenia gravis (MG), all we have to do is quit being lazy and exercise! People wonder, "Why do you...reactionscomments
Ask the Advocate: Diagnosis and GriefLife looks different after a myasthenia gravis (MG) diagnosis. It may take some time to process these changes. While everyone responds differently, grief is a natural reaction and can even...reactionscomments
The High Cost of MG Medication and CareThe medical bills that accumulated during my initial diagnosis and treatment of myasthenia gravis (MG) came to thousands of dollars. Fortunately, I had good insurance, so most of those expenses...reactions2comments
The Impact of Ethnicity in Myasthenia GravisHealth disparities are prevalent across all diseases. They encompass factors not just related to ethnicity. Health disparities are based on other factors such as sex, sexual orientation, immigration status, age...reactionscomments
3 Things That Help Our Relationships While Living with MGRelationships are beautiful, but they can also be complicated. They take work and they take effort. Throwing a chronic illness into the mix just complicates them further. Sometimes we don’t...reactionscomments
Gardening and Harvesting Adjustments for MGIn case you missed it, check out part 1 of this article, "Gardening Safely When You Have MG." In the days since COVID began, gardening has been on the rise...reactionscomments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with myasthenia gravis. New here? We invite you to explore...reactionscomments
My Life with Myasthenia GravisAs best as I remember, my symptoms started around age 10. My first symptom was difficulty using my hands and fingers along with extreme constipation. It was to the point...reactions4comments
What If?I feel anxious and fearful. What if my symptoms come back? What if the medication stops working? What if I have to go back to surviving; hungry, tired, and unable...reactions1comment
Gardening Safely When You Have MGWhen you're finished reading this article, check out part 2, "Gardening and Harvesting Adjustments for MG." Spring is just around the corner, so it won’t be long until it’s warm...reactions1comment
Take the Health and Media Habits Survey!Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media do you use to relax or even find information about your condition?...reactionscomments
A Little Help From FriendsA rare disease, unique and varied symptoms, a scarcity of specialists ... all these things make people with myasthenia gravis (MG) feel isolated and starved for good contacts. In a world...reactions2comments
Recovering After My First Myasthenia Flare-UpIn case you missed it, check out part 1 of this article, "Dealing with My First MG Flare-Up." My myasthenia gravis symptoms had finally subsided, and I was doing pretty...reactions2comments
My Experience with COVIDDespite knowing it was more than likely inevitable, I caught COVID. I believe this is actually my second time, however, the first time wasn’t confirmed. It was too early in...reactionscomments
Dealing with My First Myasthenia Flare-UpMost of us who live with myasthenia gravis (MG) will experience a flare eventually. I’ve had some minor flares since my initial diagnosis, but they usually last for a very...reactions2comments
How to Talk to Children About Your Myasthenia GravisTalking with your children about your myasthenia gravis (MG) can cause major anxiety. You do not know how your child will react. You might worry that they will get upset...reactions1comment
Finding a Caregiver for Someone with MGLife with myasthenia gravis (MG) often requires assistance and support. This care varies by the severity of symptoms and ranges from skilled hands-on work to simple errands. Handling all of...reactionscomments