Crisis TimeWith a condition as rare as myasthenia gravis (MG), caregivers are often challenged to advocate for appropriate care. That can sometimes require a lot of preparation and a surprising level...reactionscomments
My Experience with PrednisoneThere aren’t many treatment options for myasthenia gravis (MG) so when we find one that actually works, it’s like hitting the lotto, even when that treatment comes with a ton...reactions12comments
A Myasthenia Gravis Diagnosis After the Age of 55I learned little about myasthenia gravis (MG) when I went through nursing school, graduating in 1972. However, one of the main things I remember about myasthenia was that the onset...reactions6comments
Be Your Own Agent - or TheirsThere is a term educators use that seems simple, but is really pretty deep. It’s agency - the sense that what you do and what you get are related. A...reactionscomments
Causes of Minor MG Flares and How to Deal with ThemEver since my medication change to mycophenolate (CellCept), I’ve done quite well! I’ve had very minor issues since then and I’ve lost about half of my prednisone weight. I’m glad...reactions5comments
Myasthenia-gravis.com Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on MYASTHENIA-GRAVIS.COM, a Health Union ("Health Union" or "We") owned and operated website. For conflicts between the Promotional giveaway article...reactionscomments
Having Myasthenia Gravis, COVID, and PneumoniaWhile I realize that everyone's experience can be different, this is a personal account of my experience with COVID-19 and myasthenia gravis (MG). In January 2021, I was in a...reactions5comments
Dealing with MG Weakness and MisconceptionsThere is a misconception that if our legs are weak from myasthenia gravis (MG), all we have to do is quit being lazy and exercise! People wonder, "Why do you...reactionscomments
Ask the Advocate: Diagnosis and GriefLife looks different after a myasthenia gravis (MG) diagnosis. It may take some time to process these changes. While everyone responds differently, grief is a natural reaction and can even...reactionscomments
The High Cost of MG Medication and CareThe medical bills that accumulated during my initial diagnosis and treatment of myasthenia gravis (MG) came to thousands of dollars. Fortunately, I had good insurance, so most of those expenses...reactions2comments
The Impact of Ethnicity in Myasthenia GravisHealth disparities are prevalent across all diseases. They encompass factors not just related to ethnicity. Health disparities are based on other factors such as sex, sexual orientation, immigration status, age...reactionscomments
3 Things That Help Our Relationships While Living with MGRelationships are beautiful, but they can also be complicated. They take work and they take effort. Throwing a chronic illness into the mix just complicates them further. Sometimes we don’t...reactionscomments
Gardening and Harvesting Adjustments for MGIn case you missed it, check out part 1 of this article, "Gardening Safely When You Have MG." In the days since COVID began, gardening has been on the rise...reactionscomments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with myasthenia gravis. New here? We invite you to explore...reactions1comment
My Life with Myasthenia GravisAs best as I remember, my symptoms started around age 10. My first symptom was difficulty using my hands and fingers along with extreme constipation. It was to the point...reactions4comments
What If?I feel anxious and fearful. What if my symptoms come back? What if the medication stops working? What if I have to go back to surviving; hungry, tired, and unable...reactions1comment
Gardening Safely When You Have MGWhen you're finished reading this article, check out part 2, "Gardening and Harvesting Adjustments for MG." Spring is just around the corner, so it won’t be long until it’s warm...reactions1comment
Take the Health and Media Habits Survey!Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media do you use to relax or even find information about your condition?...reactionscomments
A Little Help From FriendsA rare disease, unique and varied symptoms, a scarcity of specialists ... all these things make people with myasthenia gravis (MG) feel isolated and starved for good contacts. In a world...reactions2comments
Recovering After My First Myasthenia Flare-UpIn case you missed it, check out part 1 of this article, "Dealing with My First MG Flare-Up." My myasthenia gravis symptoms had finally subsided, and I was doing pretty...reactions2comments