Dealing with MG Weakness and MisconceptionsThere is a misconception that if our legs are weak from myasthenia gravis (MG), all we have to do is quit being lazy and exercise! People wonder, "Why do you...Reactions0reactionsComments0 comments
Ask the Advocate: Diagnosis and GriefLife looks different after a myasthenia gravis (MG) diagnosis. It may take some time to process these changes. While everyone responds differently, grief is a natural reaction and can even...Reactions0reactionsComments0 comments
The High Cost of MG Medication and CareThe medical bills that accumulated during my initial diagnosis and treatment of myasthenia gravis (MG) came to thousands of dollars. Fortunately, I had good insurance, so most of those expenses...Reactions0reactionsComments2 comments
The Impact of Ethnicity in Myasthenia GravisHealth disparities are prevalent across all diseases. They encompass factors not just related to ethnicity. Health disparities are based on other factors such as sex, sexual orientation, immigration status, age...Reactions0reactionsComments0 comments
3 Things That Help Our Relationships While Living with MGRelationships are beautiful, but they can also be complicated. They take work and they take effort. Throwing a chronic illness into the mix just complicates them further. Sometimes we don’t...Reactions0reactionsComments0 comments
Gardening and Harvesting Adjustments for MGIn case you missed it, check out part 1 of this article, "Gardening Safely When You Have MG." In the days since COVID began, gardening has been on the rise...Reactions0reactionsComments0 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with myasthenia gravis. New here? We invite you to explore...Reactions0reactionsComments0 comments
My Life with Myasthenia GravisAs best as I remember, my symptoms started around age 10. My first symptom was difficulty using my hands and fingers along with extreme constipation. It was to the point...Reactions0reactionsComments4 comments
What If?I feel anxious and fearful. What if my symptoms come back? What if the medication stops working? What if I have to go back to surviving; hungry, tired, and unable...Reactions0reactionsComments1 comments
Gardening Safely When You Have MGWhen you're finished reading this article, check out part 2, "Gardening and Harvesting Adjustments for MG." Spring is just around the corner, so it won’t be long until it’s warm...Reactions0reactionsComments1 comments
Take the Health and Media Habits Survey!Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media do you use to relax or even find information about your condition?...Reactions0reactionsComments0 comments
A Little Help From FriendsA rare disease, unique and varied symptoms, a scarcity of specialists ... all these things make people with myasthenia gravis (MG) feel isolated and starved for good contacts. In a world...Reactions0reactionsComments2 comments
Recovering After My First Myasthenia Flare-UpIn case you missed it, check out part 1 of this article, "Dealing with My First MG Flare-Up." My myasthenia gravis symptoms had finally subsided, and I was doing pretty...Reactions0reactionsComments2 comments
My Experience with COVIDDespite knowing it was more than likely inevitable, I caught COVID. I believe this is actually my second time, however, the first time wasn’t confirmed. It was too early in...Reactions0reactionsComments0 comments
Dealing with My First Myasthenia Flare-UpMost of us who live with myasthenia gravis (MG) will experience a flare eventually. I’ve had some minor flares since my initial diagnosis, but they usually last for a very...Reactions0reactionsComments2 comments
How to Talk to Children About Your Myasthenia GravisTalking with your children about your myasthenia gravis (MG) can cause major anxiety. You do not know how your child will react. You might worry that they will get upset...Reactions0reactionsComments1 comments
Finding a Caregiver for Someone with MGLife with myasthenia gravis (MG) often requires assistance and support. This care varies by the severity of symptoms and ranges from skilled hands-on work to simple errands. Handling all of...Reactions0reactionsComments0 comments
Stressful Times Call for Relaxing Times with MGWhen you have a disease such as myasthenia gravis (MG), learning how and when to rest and relax is key to a healthy existence! We know stress with MG can...Reactions0reactionsComments1 comments
Ask the Advocate: How do You Stay Motivated with MG?When living with myasthenia gravis (MG), energy levels, muscle strength, and symptoms can change daily. These fluctuations may be frustrating, and at times, discouraging. To help others face the hard...Reactions0reactionsComments0 comments
Living with Myasthenia Gravis and My Mood SwingsI grew up a rather passive person. Though things would bother me, I rarely allowed people to see me upset. I considered crying a weakness and something I didn’t want...Reactions0reactionsComments0 comments