An Interview With Dr. Aziz Shaibani: Coping With Myasthenia GravisDr. Aziz Shaibani is a neurologist specializing in neuromuscular disorders with over 30 years of experience. He serves as a Clinical Professor of Medicine at Baylor College of Medicine; Adjunct...Reactions0reactionsComments1 comments
I Wish I Had Said …Everyone has those moments. You are surprised by a comment. It could be from a stranger or a close acquaintance. They say something about your visible symptoms or limitations. Or they...Reactions0reactionsComments0 comments
Combat Fatigue with Rest and Planning AheadWhen we have a disease such as myasthenia gravis, how do we function? How do we continue to work, do our chores, be a spouse, a parent, cook, go shopping?...Reactions0reactionsComments8 comments
Bladder Problems and Myasthenia GravisMyasthenia gravis (MG) is an autoimmune disease that causes weakened muscles. With MG, the nerves are not able to communicate with muscles well. MG can affect people at any age...Reactions0reactionsComments21 comments
A Different Kind of PrescriptionWhen I was first diagnosed with myasthenia gravis, I remember thinking that the Mestinon my doctor prescribed would just make all my symptoms go away. I remember him describing it...Reactions0reactionsComments22 comments
Excited for SpringIt's spring here and I'm rather excited! Now, that might seem strange to say being that I have myasthenia gravis (MG) and I can't do a lot. Although my medications...Reactions0reactionsComments2 comments
Long-Term Side Effects of PrednisoneMost people with myasthenia gravis (MG) are familiar with prednisone, a common drug prescribed during flares. Prednisone belongs to the drug class called corticosteroids. This class of medications have been...Reactions0reactionsComments5 comments
Is Myasthenia Gravis Genetic?Do your genes play a role in whether you will develop myasthenia gravis (MG)? There are no known risk factors for the disease. But, scientific research continues to shed light...Reactions0reactionsComments6 comments
Struggles with Myasthenia Gravis Fatigue and PainI will be doing a series of articles about how to make life a little easier when you have myasthenia gravis (MG). The articles will be centered around bathing, grooming...Reactions0reactionsComments0 comments
Having Surgery Without a Neurologist ConsultWe all know there’s a certain amount of risk with surgery and anesthesia under the best of circumstances. Surgeons and anesthesiologists talk to their patients about the expected results and...Reactions0reactionsComments0 comments
Pillow Packin'Years ago while undiagnosed, I was desperately looking for ways to help me cope. My muscles were so tired, weak, and hurt so bad at times that I could not...Reactions0reactionsComments7 comments
Lessons Learned from IVIGWhen I was first diagnosed with myasthenia gravis (MG) in 2015, I was extremely underwhelmed by the number of treatment options. Somehow I was also extremely overwhelmed with the idea...Reactions0reactionsComments12 comments
Myasthenia Gravis Diagnosis After the Age of 55: The RisksIn case you missed it, check out part 1 of this article, "A Myasthenia Gravis Diagnosis After the Age of 55." The "wild ride" I was on was a turning...Reactions0reactionsComments1 comments
Crisis TimeWith a condition as rare as myasthenia gravis (MG), caregivers are often challenged to advocate for appropriate care. That can sometimes require a lot of preparation and a surprising level...Reactions0reactionsComments0 comments
My Experience with PrednisoneThere aren’t many treatment options for myasthenia gravis (MG) so when we find one that actually works, it’s like hitting the lotto, even when that treatment comes with a ton...Reactions0reactionsComments8 comments
A Myasthenia Gravis Diagnosis After the Age of 55I learned little about myasthenia gravis (MG) when I went through nursing school, graduating in 1972. However, one of the main things I remember about myasthenia was that the onset...Reactions0reactionsComments6 comments
Be Your Own Agent - or TheirsThere is a term educators use that seems simple, but is really pretty deep. It’s agency - the sense that what you do and what you get are related. A...Reactions0reactionsComments0 comments
Causes of Minor MG Flares and How to Deal with ThemEver since my medication change to mycophenolate (CellCept), I’ve done quite well! I’ve had very minor issues since then and I’ve lost about half of my prednisone weight. I’m glad...Reactions0reactionsComments5 comments
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Having Myasthenia Gravis, COVID, and PneumoniaWhile I realize that everyone's experience can be different, this is a personal account of my experience with COVID-19 and myasthenia gravis (MG). In January 2021, I was in a...Reactions0reactionsComments5 comments