Two Steps Forward, One Step Back ... the MG DanceMyasthenia gravis (MG) is sometimes a little like Lucy and the football. You make careful life changes, modify your goals, take your meds, follow doctors’ orders, and symptoms seem to...Reactions0reactionsComments8 comments
What Now?I am so frustrated, I'm not quite sure what to do! It already took 48 years to get a diagnosis of myasthenia gravis (MG) - the entire time there were...Reactions0reactionsComments5 comments
Diagnosed During A PandemicMarch of 2020, the country shut down. And at the end of that month, it seemed like so did my body? I began to have a slight eyelid droop for...Reactions0reactionsComments7 comments
Toilet and Bathroom Aids for MGSome may find this topic a little embarrassing, but elimination is a fact of life and is nothing to be embarrassed about. As someone living with myasthenia gravis (MG), I've...Reactions0reactionsComments0 comments
Can Anybody Understand?I have myasthenia gravis (MG)! Each minute of each day can change rapidly, leaving my life in limbo when it comes to what I'm able to do. Sometimes daily life...Reactions0reactionsComments5 comments
My Experiences with Doctors and MisdiagnosisIt's been a long hard battle for a diagnosis over the years. The past 2 years have been both the best and the worst. After 10 years of remission from...Reactions0reactionsComments5 comments
Oral Care Products for People with MGPeople with myasthenia gravis (MG) may experience individual struggles with daily oral care. I previously talked about risks at the dentist and tips on how to prepare for a dentist...Reactions0reactionsComments0 comments
The Lessons We Teach Our ChildrenThe thing that I find most challenging about having myasthenia gravis (MG) might surprise you. It’s not the double vision, the prednisone roller coaster, or even the times where my...Reactions0reactionsComments0 comments
Domestic and Sexual Abuse in People with DisabilitiesEditor's note: Content warning - This article includes experiences with sexual assault, domestic abuse, and violence. I am former Certified Domestic Abuse Advocate of 10 years, and I also have...Reactions0reactionsComments0 comments
Myasthenia Gravis-Friendly House AdaptationsWe recently conducted the Inaugural Myasthenia Gravis (MG) In America survey. One question on the survey asked, "What changes or modifications to your household/living space have you made since you...Reactions0reactionsComments8 comments
I Was Prescribed MG Cautionary DrugsIn previous articles, I've talked about having the symptoms of myasthenia gravis (MG) for 48 years before being diagnosed. At times these symptoms were quite severe. Now in my 60...Reactions0reactionsComments2 comments
How Do I Get Answers with MG?I know many people with mysterious symptoms, such as those that appear with myasthenia gravis (MG), who are finding it increasingly difficult to find qualified physicians to diagnose and treat...Reactions0reactionsComments0 comments
Bathing Aids and Tools for Myasthenia GravisWhen we are struggling with myasthenia gravis (MG) symptoms, bathing can be difficult. If you tire easily, try resting before bathing. I almost always bathe right after rising in the...Reactions0reactionsComments0 comments
Tips for the Summer HeatThe heat is not our friend. Not with myasthenia gravis at least. It may send us spiraling downhill fast, and it does for many including myself. It actually took me...Reactions0reactionsComments13 comments
An Interview With Chef Sean Brock: Pursuing Your Passion With MGChef Sean Brock is an award-winning chef and restaurateur who is focused on Southern cuisine. Sean is the winner of the 2010 James Beard Award for Best Chef, Southeast. He...Reactions0reactionsComments0 comments
A Break in the ChaosThis whole week so far has been wonderful! The temperature outside is 90 degrees but it feels like it's 100 degrees. Tomorrow it's supposed to be even hotter. I can't...Reactions0reactionsComments0 comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments0 comments
Potential New Therapies for MGThere are several new emerging pharmaceuticals for myasthenia gravis (MG). Many of these therapies have a novel mechanism of action, thereby offering a new potential treatment for people who do...Reactions0reactionsComments8 comments
What Not to Say to Someone with MGThese are variations on things people have actually said to me, in my real life. Please, for the love of all you hold dear, don’t say these things to anyone...Reactions0reactionsComments33 comments
Myasthenia Gravis and Dental Procedure RisksFor more information on dental care and how to prepare for an appointment, check out the article, "The Struggle with a Dental Visit." What makes oral care such a big...Reactions0reactionsComments11 comments