Planning for the PartyThe days are getting shorter. Families and friends will be getting together for picnics and end-of-season celebrations. The continuing threat of COVID makes the option of outdoor social events more...Reactions0reactionsComments2 comments
Thanks to Social Media, I Met a Friend With MG in PersonAfter 24 hours in the hospital for slurred speech, a drooping eye, double vision, and overall weakness, I had all clear tests. My frustration was rising with nurses about why...Reactions0reactionsComments2 comments
My Experience Taking Mycophenolate Mofetil (CellCept)Just after getting diagnosed with myasthenia gravis, I started taking Mestinon. It quickly made an amazing difference. A few months later, I started into an exacerbation, so my neurologist started...Reactions0reactionsComments6 comments
Managing Vision IssuesFor some reason, double vision is the hardest symptom for me to manage. I say double-vision, but for me it’s more like an intoxicated vision after drinking. It’s been quite...Reactions0reactionsComments29 comments
Home Cleaning AidsCleaning your home can be extremely tiring and difficult when living with myasthenia gravis (MG). This is true for me, even when I feel great. What can people living with...Reactions0reactionsComments1 comments
Making Self-Care a PriorityI’ve had myasthenia gravis for almost 10 years now. I can’t believe I’m even typing that. It feels surreal to think back on how much I’ve learned since I was...Reactions0reactionsComments11 comments
Choosing a Wheelchair, Power Chair, or Mobility ScooterYou’ve checked with your insurance about what durable equipment and mobility aids they will cover for myasthenia gravis (MG). You’ve discussed your needs with your physician. You’ve ruled out walkers...Reactions0reactionsComments0 comments
Firing My NeurologistI wrote an article called "My Experience with Doctors and Misdiagnoses" where I talked about how I finally got to meet with a neurologist who was able to figure out...Reactions0reactionsComments0 comments
Obtaining a Mobility Aid and What One to ChooseA mobility aid is a piece of equipment or device designed to help you walk when your mobility is impaired, temporarily or permanently or to provide other means of mobility...Reactions0reactionsComments0 comments
The Process of Getting a Handicap PlacardIf you have trouble walking due to myasthenia gravis and haven’t gotten a handicap placard or license plate, you may want to at least think about it. You can get...Reactions0reactionsComments8 comments
Role ReversalAfter almost 50 years of marriage, hubby and I were "used to one another." A lot of things went without saying. We had come through a lot of health scares...Reactions0reactionsComments2 comments
What Is Congenital Myasthenic Syndrome?Myasthenia gravis (MG) is a disease that causes weakness and fatigue in muscles that you voluntarily control. It is an autoimmune disease. This means that your immune system mistakes normal...Reactions0reactionsComments0 comments
MG During My PregnancyI get asked a lot by other women who have myasthenia gravis (MG) what it was like for me when I was pregnant. While my story is a little different...Reactions0reactionsComments2 comments
MG WarriorI am alone! No one understands what it's like for me. There's that deep pain inside, I just want to cry! The feeling is there and I just want to...Reactions0reactionsComments12 comments
Dressing AidsMyasthenia gravis (MG) causes some of us to feel fatigued all or most of the time. So how do we manage our daily hygiene and getting dressed for the day?...Reactions0reactionsComments6 comments
Can You Donate Blood With Myasthenia Gravis?Donating blood helps people in local hospitals who need blood transfusions. It benefits people who have lost blood from transplants or surgery. It also helps people who cannot make enough...Reactions0reactionsComments1 comments
An MG MarriageMy husband didn’t marry me when I was sick. He had no idea what was in store for his or our future when he got down on one knee and...Reactions0reactionsComments3 comments
My Thymectomy and MeIt was January 2021, a new year. My first neurologist appointment of the year, my doctor and I decided that the next step was a thymectomy surgery. I was a...Reactions0reactionsComments21 comments
Bathing Tips for MGOne of my biggest problems with range of motion is using my left arm due to pain from the left side of my neck, shoulder, and upper back that radiates...Reactions0reactionsComments0 comments
What Qualities Should I Look for in a Doctor?The path to a myasthenia gravis (MG) diagnosis can be exhausting, but finding the right doctor can make a huge impact. We had the opportunity to hear from our patient...Reactions0reactionsComments12 comments