Trying to Stay Positive When Living with Myasthenia GravisOne of the hardest things to do when living with any chronic health condition is trying to stay positive. I was diagnosed with seronegative myasthenia gravis (MG) about 2 years...reactionscomments
Life as a Military Spouse Living with MGShortly after my myasthenia gravis diagnosis in 1995, I married my college sweetheart who was an Ensign in the US Navy. I remember being so concerned that I wouldn’t be...reactionscomments
When Is It Too Much?Some mornings I wake up and I know right from the start ... today I just need to rest. Now mind you, I do have to take Mestinon every 2...reactions8comments
Furniture for MG WeaknessLet’s talk about living room and dining room furniture since that’s where we spend a lot of time. My husband and I are both tall, as are our children. Low...reactionscomments
Surviving Myasthenia GravisWord to the wise, especially for those living with myasthenia gravis (MG) at a young age: Us adults are all just faking it 'til we make it. It’s true. As...reactions3comments
My Unexpected Insurance Company AllyMyasthenia gravis (MG) can be scary when you are left by yourself to figure out what is going on. Knowing who to call when you think there is a problem...reactionscomments
How to Approach Gardening When You Have Physical LimitationsI have always loved gardening. I guess you could say "it’s in my blood." I’m a farmer’s daughter originally from Kansas. I pretty much did it all, just like my...reactionscomments
Adding a Wheelchair Ramp to Our HomeI don’t have stairs into my house. Well, I do, but they are covered with a wheelchair ramp. I needed a way into the house, so my husband and youngest...reactions2comments
Trying to Work After Almost Two YearsAs we all know, myasthenia gravis (MG) is a roller coaster ride that we didn't voluntarily get on, but we're on the ride anyway! Because of MG, I've had several...reactions2comments
You Work at a Restaurant?"You work at a restaurant?" After people learn that I have myasthenia gravis (MG), it's very shocking for them to hear that I am a server. Doctors, nurses, and non-medical...reactionscomments
How I Explain MG to OthersI can start out the day just fine. I'm ready to go as if I didn't have myasthenia gravis (MG), even if it's a day where I'm a little slow...reactions4comments
Managing Safety at Home When Diagnosed with MGA diagnosis of myasthenia gravis (MG) can bring with it a lot of problems. One of those is home safety. There are some things in my home today that I...reactions2comments
Minimalizing Has Given Me Energy to Do MoreI have lived in a converted van for 4 months, traveling full time with my boyfriend and 2 cats! We are in the process of working towards a converted school...reactions2comments
Switching DoctorsIn the first 2 years of being diagnosed I found a doctor who was incredible. He really set the bar high for the things to look for in a practitioner...reactions10comments
I Hate It, I Hate It, I Hate It!I'm a bit frustrated right now. I'm hoping some of you can help me! I'm going to give some examples of why I hate myasthenia gravis (MG). I'm a pretty...reactions9comments
Independent Living Aids for Cooking and EatingMany of us with myasthenia gravis suffer with varying degrees of weakness and pain. Activities most people take advantage of are more difficult for us. Whether you love to cook...reactions1comment
Planning for the PartyThe days are getting shorter. Families and friends will be getting together for picnics and end-of-season celebrations. The continuing threat of COVID makes the option of outdoor social events more...reactions2comments
Thanks to Social Media, I Met a Friend With MG in PersonAfter 24 hours in the hospital for slurred speech, a drooping eye, double vision, and overall weakness, I had all clear tests. My frustration was rising with nurses about why...reactions2comments
My Experience Taking Mycophenolate Mofetil (CellCept)Just after getting diagnosed with myasthenia gravis, I started taking Mestinon. It quickly made an amazing difference. A few months later, I started into an exacerbation, so my neurologist started...reactions6comments
Managing Vision IssuesFor some reason, double vision is the hardest symptom for me to manage. I say double-vision, but for me it’s more like an intoxicated vision after drinking. It’s been quite...reactions31comments
