Obtaining a Mobility Aid and What One to ChooseA mobility aid is a piece of equipment or device designed to help you walk when your mobility is impaired, temporarily or permanently or to provide other means of mobility...Reactions0reactionsComments0 comments
The Process of Getting a Handicap PlacardIf you have trouble walking due to myasthenia gravis and haven’t gotten a handicap placard or license plate, you may want to at least think about it. You can get...Reactions0reactionsComments8 comments
Role ReversalAfter almost 50 years of marriage, hubby and I were "used to one another." A lot of things went without saying. We had come through a lot of health scares...Reactions0reactionsComments2 comments
What Is Congenital Myasthenic Syndrome?Myasthenia gravis (MG) is a disease that causes weakness and fatigue in muscles that you voluntarily control. It is an autoimmune disease. This means that your immune system mistakes normal...Reactions0reactionsComments0 comments
MG During My PregnancyI get asked a lot by other women who have myasthenia gravis (MG) what it was like for me when I was pregnant. While my story is a little different...Reactions0reactionsComments2 comments
MG WarriorI am alone! No one understands what it's like for me. There's that deep pain inside, I just want to cry! The feeling is there and I just want to...Reactions0reactionsComments12 comments
Dressing AidsMyasthenia gravis (MG) causes some of us to feel fatigued all or most of the time. So how do we manage our daily hygiene and getting dressed for the day?...Reactions0reactionsComments6 comments
Can You Donate Blood With Myasthenia Gravis?Donating blood helps people in local hospitals who need blood transfusions. It benefits people who have lost blood from transplants or surgery. It also helps people who cannot make enough...Reactions0reactionsComments1 comments
An MG MarriageMy husband didn’t marry me when I was sick. He had no idea what was in store for his or our future when he got down on one knee and...Reactions0reactionsComments3 comments
My Thymectomy and MeIt was January 2021, a new year. My first neurologist appointment of the year, my doctor and I decided that the next step was a thymectomy surgery. I was a...Reactions0reactionsComments21 comments
Bathing Tips for MGOne of my biggest problems with range of motion is using my left arm due to pain from the left side of my neck, shoulder, and upper back that radiates...Reactions0reactionsComments0 comments
What Qualities Should I Look for in a Doctor?The path to a myasthenia gravis (MG) diagnosis can be exhausting, but finding the right doctor can make a huge impact. We had the opportunity to hear from our patient...Reactions0reactionsComments12 comments
Two Steps Forward, One Step Back ... the MG DanceMyasthenia gravis (MG) is sometimes a little like Lucy and the football. You make careful life changes, modify your goals, take your meds, follow doctors’ orders, and symptoms seem to...Reactions0reactionsComments6 comments
What Now?I am so frustrated, I'm not quite sure what to do! It already took 48 years to get a diagnosis of myasthenia gravis (MG) - the entire time there were...Reactions0reactionsComments5 comments
Diagnosed During A PandemicMarch of 2020, the country shut down. And at the end of that month, it seemed like so did my body? I began to have a slight eyelid droop for...Reactions0reactionsComments7 comments
Toilet and Bathroom Aids for MGSome may find this topic a little embarrassing, but elimination is a fact of life and is nothing to be embarrassed about. As someone living with myasthenia gravis (MG), I've...Reactions0reactionsComments0 comments
Can Anybody Understand?I have myasthenia gravis (MG)! Each minute of each day can change rapidly, leaving my life in limbo when it comes to what I'm able to do. Sometimes daily life...Reactions0reactionsComments5 comments
My Experiences with Doctors and MisdiagnosisIt's been a long hard battle for a diagnosis over the years. The past 2 years have been both the best and the worst. After 10 years of remission from...Reactions0reactionsComments5 comments
Oral Care Products for People with MGPeople with myasthenia gravis (MG) may experience individual struggles with daily oral care. I previously talked about risks at the dentist and tips on how to prepare for a dentist...Reactions0reactionsComments0 comments
The Lessons We Teach Our ChildrenThe thing that I find most challenging about having myasthenia gravis (MG) might surprise you. It’s not the double vision, the prednisone roller coaster, or even the times where my...Reactions0reactionsComments0 comments