Surviving Myasthenia GravisWord to the wise, especially for those living with myasthenia gravis (MG) at a young age: Us adults are all just faking it 'til we make it. It’s true. As...Reactions0reactionsComments3 comments
My Unexpected Insurance Company AllyMyasthenia gravis (MG) can be scary when you are left by yourself to figure out what is going on. Knowing who to call when you think there is a problem...Reactions0reactionsComments0 comments
How to Approach Gardening When You Have Physical LimitationsI have always loved gardening. I guess you could say "it’s in my blood." I’m a farmer’s daughter originally from Kansas. I pretty much did it all, just like my...Reactions0reactionsComments0 comments
Adding a Wheelchair Ramp to Our HomeI don’t have stairs into my house. Well, I do, but they are covered with a wheelchair ramp. I needed a way into the house, so my husband and youngest...Reactions0reactionsComments2 comments
Trying to Work After Almost Two YearsAs we all know, myasthenia gravis (MG) is a roller coaster ride that we didn't voluntarily get on, but we're on the ride anyway! Because of MG, I've had several...Reactions0reactionsComments2 comments
You Work at a Restaurant?"You work at a restaurant?" After people learn that I have myasthenia gravis (MG), it's very shocking for them to hear that I am a server. Doctors, nurses, and non-medical...Reactions0reactionsComments0 comments
How I Explain MG to OthersI can start out the day just fine. I'm ready to go as if I didn't have myasthenia gravis (MG), even if it's a day where I'm a little slow...Reactions0reactionsComments4 comments
Managing Safety at Home When Diagnosed with MGA diagnosis of myasthenia gravis (MG) can bring with it a lot of problems. One of those is home safety. There are some things in my home today that I...Reactions0reactionsComments2 comments
Minimalizing Has Given Me Energy to Do MoreI have lived in a converted van for 4 months, traveling full time with my boyfriend and 2 cats! We are in the process of working towards a converted school...Reactions0reactionsComments2 comments
Switching DoctorsIn the first 2 years of being diagnosed I found a doctor who was incredible. He really set the bar high for the things to look for in a practitioner...Reactions0reactionsComments10 comments
I Hate It, I Hate It, I Hate It!I'm a bit frustrated right now. I'm hoping some of you can help me! I'm going to give some examples of why I hate myasthenia gravis (MG). I'm a pretty...Reactions0reactionsComments9 comments
Independent Living Aids for Cooking and EatingMany of us with myasthenia gravis suffer with varying degrees of weakness and pain. Activities most people take advantage of are more difficult for us. Whether you love to cook...Reactions0reactionsComments1 comments
Planning for the PartyThe days are getting shorter. Families and friends will be getting together for picnics and end-of-season celebrations. The continuing threat of COVID makes the option of outdoor social events more...Reactions0reactionsComments2 comments
Thanks to Social Media, I Met a Friend With MG in PersonAfter 24 hours in the hospital for slurred speech, a drooping eye, double vision, and overall weakness, I had all clear tests. My frustration was rising with nurses about why...Reactions0reactionsComments2 comments
My Experience Taking Mycophenolate Mofetil (CellCept)Just after getting diagnosed with myasthenia gravis, I started taking Mestinon. It quickly made an amazing difference. A few months later, I started into an exacerbation, so my neurologist started...Reactions0reactionsComments6 comments
Managing Vision IssuesFor some reason, double vision is the hardest symptom for me to manage. I say double-vision, but for me it’s more like an intoxicated vision after drinking. It’s been quite...Reactions0reactionsComments27 comments
Home Cleaning AidsCleaning your home can be extremely tiring and difficult when living with myasthenia gravis (MG). This is true for me, even when I feel great. What can people living with...Reactions0reactionsComments1 comments
Making Self-Care a PriorityI’ve had myasthenia gravis for almost 10 years now. I can’t believe I’m even typing that. It feels surreal to think back on how much I’ve learned since I was...Reactions0reactionsComments11 comments
Choosing a Wheelchair, Power Chair, or Mobility ScooterYou’ve checked with your insurance about what durable equipment and mobility aids they will cover for myasthenia gravis (MG). You’ve discussed your needs with your physician. You’ve ruled out walkers...Reactions0reactionsComments0 comments
Firing My NeurologistI wrote an article called "My Experience with Doctors and Misdiagnoses" where I talked about how I finally got to meet with a neurologist who was able to figure out...Reactions0reactionsComments0 comments