Switching DoctorsIn the first 2 years of being diagnosed I found a doctor who was incredible. He really set the bar high for the things to look for in a practitioner... By Mallory San Nicolas3 min readBookmark for laterReactions 0 reactions Comments8 comments
I Hate It, I Hate It, I Hate It!I'm a bit frustrated right now. I'm hoping some of you can help me! I'm going to give some examples of why I hate myasthenia gravis (MG). I'm a pretty... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments9 comments
Independent Living Aids for Cooking and EatingMany of us with myasthenia gravis suffer with varying degrees of weakness and pain. Activities most people take advantage of are more difficult for us. Whether you love to cook... By Janice Koehn4 min readBookmark for laterReactions 0 reactions Comments1 comments
Planning for the PartyThe days are getting shorter. Families and friends will be getting together for picnics and end-of-season celebrations. The continuing threat of COVID makes the option of outdoor social events more... By Juliana Texley3 min readBookmark for laterReactions 0 reactions Comments2 comments
Thanks to Social Media, I Met a Friend With MG in PersonAfter 24 hours in the hospital for slurred speech, a drooping eye, double vision, and overall weakness, I had all clear tests. My frustration was rising with nurses about why... By Jodi Enders3 min readBookmark for laterReactions 0 reactions Comments2 comments
My Experience Taking Mycophenolate Mofetil (CellCept)Just after getting diagnosed with myasthenia gravis, I started taking Mestinon. It quickly made an amazing difference. A few months later, I started into an exacerbation, so my neurologist started... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments6 comments
Managing Vision IssuesFor some reason, double vision is the hardest symptom for me to manage. I say double-vision, but for me it’s more like an intoxicated vision after drinking. It’s been quite... By Mallory San Nicolas2 min readBookmark for laterReactions 0 reactions Comments21 comments
Home Cleaning AidsCleaning your home can be extremely tiring and difficult when living with myasthenia gravis (MG). This is true for me, even when I feel great. What can people living with... By Janice Koehn2 min readBookmark for laterReactions 0 reactions Comments1 comments
Making Self-Care a PriorityI’ve had myasthenia gravis for almost 10 years now. I can’t believe I’m even typing that. It feels surreal to think back on how much I’ve learned since I was... By Mallory San Nicolas3 min readBookmark for laterReactions 0 reactions Comments9 comments
Choosing a Wheelchair, Power Chair, or Mobility ScooterYou’ve checked with your insurance about what durable equipment and mobility aids they will cover for myasthenia gravis (MG). You’ve discussed your needs with your physician. You’ve ruled out walkers... By Janice Koehn5 min readBookmark for laterReactions 0 reactions Comments0 comments
Firing My NeurologistI wrote an article called "My Experience with Doctors and Misdiagnoses" where I talked about how I finally got to meet with a neurologist who was able to figure out... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments0 comments
Obtaining a Mobility Aid and What One to ChooseA mobility aid is a piece of equipment or device designed to help you walk when your mobility is impaired, temporarily or permanently or to provide other means of mobility... By Janice Koehn5 min readBookmark for laterReactions 0 reactions Comments0 comments
The Process of Getting a Handicap PlacardIf you have trouble walking due to myasthenia gravis and haven’t gotten a handicap placard or license plate, you may want to at least think about it. You can get... By Janice Koehn3 min readBookmark for laterReactions 0 reactions Comments8 comments
Role ReversalAfter almost 50 years of marriage, hubby and I were "used to one another." A lot of things went without saying. We had come through a lot of health scares... By Juliana Texley4 min readBookmark for laterReactions 0 reactions Comments2 comments
What Is Congenital Myasthenic Syndrome?Myasthenia gravis (MG) is a disease that causes weakness and fatigue in muscles that you voluntarily control. It is an autoimmune disease. This means that your immune system mistakes normal... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
MG During My PregnancyI get asked a lot by other women who have myasthenia gravis (MG) what it was like for me when I was pregnant. While my story is a little different... By Mallory San Nicolas3 min readBookmark for laterReactions 0 reactions Comments2 comments
MG WarriorI am alone! No one understands what it's like for me. There's that deep pain inside, I just want to cry! The feeling is there and I just want to... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments9 comments
Dressing AidsMyasthenia gravis (MG) causes some of us to feel fatigued all or most of the time. So how do we manage our daily hygiene and getting dressed for the day?... By Janice Koehn3 min readBookmark for laterReactions 0 reactions Comments6 comments
Can You Donate Blood With Myasthenia Gravis?Donating blood helps people in local hospitals who need blood transfusions. It benefits people who have lost blood from transplants or surgery. It also helps people who cannot make enough... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments1 comments
An MG MarriageMy husband didn’t marry me when I was sick. He had no idea what was in store for his or our future when he got down on one knee and... By Mallory San Nicolas4 min readBookmark for laterReactions 0 reactions Comments3 comments