The Importance of Finding a Doctor Who Specializes in MGThroughout my years living with myasthenia gravis (MG), I’ve had my fair share of doctors. I’ve also been in between doctors when the one I had unexpectedly went on permanent...Reactions0reactionsComments12 comments
Preparing for Winter with a Power ChairAs we prepare for colder weather, it’s time to think about winterizing our outdoor living spaces. It’s bad enough to manage walking on wet or icy surfaces - but what...Reactions0reactionsComments0 comments
The Challenges of Seronegative Myasthenia GravisIn this guest post, Cheri Higgason writes about the challenges of obtaining a seronegative myasthenia gravis diagnosis. As someone who has experienced it firsthand, she encourages others to keep pushing...Reactions0reactionsComments32 comments
Benefits of Understanding MG and Being Your Own AdvocateTake the initiative to become an advocate for your health and you will have a completely new experience with your myasthenia gravis (MG) doctor. Every day, doctors brief patients about...Reactions0reactionsComments3 comments
My Reaction to Insecticides, Pesticides, and HerbicidesThe other day I was in the house when I heard a plane. It was flying low, I could tell by the sound of the engine. I live in a...Reactions0reactionsComments0 comments
The Way We WereI'm one of the few who hates the song "Have a Holly, Jolly Christmas." For huge numbers of us, the idea that the season must be endlessly jolly is way...Reactions0reactionsComments0 comments
Botox® and MGBotox® injections work by temporarily weakening muscles and are a common procedure with several uses. They are commonly used to minimize wrinkles. But they can also treat certain conditions. For...Reactions0reactionsComments1 comments
My Muscles with Myasthenia GravisOur muscles are funny things. If we don't use them, we lose them. Our muscles have memory and remember how to do things. But when you have myasthenia gravis (MG)...Reactions0reactionsComments2 comments
The Holidays with Myasthenia GravisI remember the busy days of preparing for the holidays. There was always so much to do, but I never gave it a second thought. Between preparing meals, decorating, shopping...Reactions0reactionsComments0 comments
My MG ProgressionMy myasthenia gravis (MG) symptoms first began in 2013. I should say "symptom" because it was only vision issues. I never had a droopy eyelid, and I couldn’t really explain...Reactions0reactionsComments2 comments
MG Versus MSMyasthenia gravis (MG) is a chronic (long-term) condition that affects your muscles and causes weakness. Multiple sclerosis (MS) is also a chronic condition. MS can sometimes cause symptoms that are...Reactions0reactionsComments0 comments
How To Play Doctor ... Or NotOne of the hardest things about advocating for a patient with a rare disease is the uncertainty of the information that we want to share. Only about 14 in every...Reactions0reactionsComments2 comments
Evacuating and Relocating Due to Natural Disasters With MGHurricanes, fires, earthquakes, tsunamis, tornados, avalanches, ice storms, sinkholes, eruptions, flooding, blizzards, and landslides. Natural disasters are devastating phenomena entirely out of our control. I'm located in South Florida and...Reactions0reactionsComments0 comments
Drugs and Vaccines to Avoid With Myasthenia GravisMyasthenia gravis (MG) is a rare disorder of the immune system. MG affects how some muscles and nerves communicate. Many people living with MG experience muscle weakness. Certain types of...Reactions0reactionsComments24 comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments0 comments
Not Recognizing the Person I See in the Mirror With MGHave you looked in a mirror and not recognized the person you saw? As we watch our physical appearance change, it can damper our mental health. Appearance can affect our...Reactions0reactionsComments2 comments
Trying to Stay Positive When Living with Myasthenia GravisOne of the hardest things to do when living with any chronic health condition is trying to stay positive. I was diagnosed with seronegative myasthenia gravis (MG) about 2 years...Reactions0reactionsComments0 comments
Life as a Military Spouse Living with MGShortly after my myasthenia gravis diagnosis in 1995, I married my college sweetheart who was an Ensign in the US Navy. I remember being so concerned that I wouldn’t be...Reactions0reactionsComments0 comments
When Is It Too Much?Some mornings I wake up and I know right from the start ... today I just need to rest. Now mind you, I do have to take Mestinon every 2...Reactions0reactionsComments8 comments
Furniture for MG WeaknessLet’s talk about living room and dining room furniture since that’s where we spend a lot of time. My husband and I are both tall, as are our children. Low...Reactions0reactionsComments0 comments