CellCept From My StandpointI have been on CellCept® (mycophenolate mofetil) for 2 and a half years since my myasthenia gravis (MG) diagnosis. I am sharing my experience to benefit others interested in learning...reactions12comments
Steps Towards Making the Bedroom MG-FriendlyMany myasthenia gravis (MG) sufferers complain of insomnia or difficulty sleeping. For a while after my diagnosis, I had several MG symptoms, 1 of which was difficulty breathing, especially if...reactions2comments
Keep Calm and Spoon OnHave you ever heard of the term "spoonie?" If you know what a spoonie is, then there is a good chance you may consider yourself a spoonie or relate to...reactionscomments
The Hardest Thing for Me with Myasthenia GravisLet me be clear: There are so many hard things about myasthenia gravis (MG). There is the fatigue, chewing and swallowing issues, breathing difficulty, and vision problems, just to name...reactions9comments
5 Things I Wish I Knew When I Was Diagnosed With MGThis year marks 10 years since myasthenia gravis (MG) began for me. My official 10 year anniversary of living with this disease. Looking back, I had so many thoughts running...reactions37comments
Conquering My Fear of Swimming After DiagnosisThe first time I went swimming after my myasthenia gravis (MG) diagnosis, I was very anxious. For those who haven’t experienced the ugly symptoms that come with MG, such as...reactions10comments
Flying with Incontinence: Going Through Airport SecurityI've flown a few times, and maybe a dozen times before having problems with myasthenia gravis (MG) and incontinence. As we all know, the security check at airports is not...reactions2comments
What Are Prism Glasses and Can They Help People With Myasthenia Gravis?Weakness of the muscles that control eye movement often causes the first symptoms of myasthenia gravis (MG). While there are therapies available to treat MG, prism glasses are not usually...reactions33comments
Getting Back to a Semi-Normal Life with Myasthenia GravisIt has been a long road these last 3 years with myasthenia gravis. In just the blink of an eye, I have gone from doing whatever I wanted, when I...reactionscomments
Myasthenia Gravis and Reducing My Mestinon DosageWe’ve just passed the 2 year anniversary of my thymectomy, and the results I've seen continue to impress. I'm currently on the lowest dose of Mestinon since I started treatment...reactions18comments
Don’t Waste Energy Stressing Over Things That Didn’t Work in Your FavorDuring a recent paddleboarding outing, my boyfriend and I were returning to the boat ramp, only minutes away, when I hit a rapid current that sent me back some 50...reactionscomments
Not Ready for SummerNow don't get me wrong, I love summer. Well ... I used to love summer! But the longer I live with myasthenia gravis (MG), the more heat bothers me. Whether...reactions13comments
Box Breathing and How It Helps With StressOur lives are filled with family obligations, work and school responsibilities, healthcare appointments, and busy schedules. Stress is a normal part of life. But sometimes, stress can get out of...reactions7comments
My Youngest Grandson's Opinion About My MGOur grandsons were over visiting and they were asking to go outside. What they really wanted to do was ride the dirt bike. They know another adult has to be...reactions3comments
How Do I Get the Latest Updates on Myasthenia-Gravis.com?The internet is rife with information on myasthenia gravis (MG). Unfortunately, sometimes it can get to be a little too much. Perhaps it leaves you feeling like you are trapped...reactionscomments
How Gardening with MG Is Beneficial to MeIn some of my other articles, I’ve mentioned that my husband and I love to garden. We love growing and preserving our own food. There are several reasons we love...reactions2comments
My Experience with Myasthenia Gravis and Cholesterol MedicationIn September 2019, I was in the emergency room with extremely high blood pressure. I was started on atorvastatin because of my high cholesterol levels. Atorvastatin is a drug that...reactions18comments
Myasthenia Gravis Has Changed How I Approach My ArtI have been a painter since I was young and I have consistently been painting landscapes "en plein air," which is the term for painting outside. Myasthenia gravis (MG) initially...reactions11comments
Juggling Myasthenia Gravis and Other Health ConditionsTraveling the world, mountain and rock climbing, skydiving, deep sea fishing, going to an arts performance, or simply going to a sporting event or tourist trap ... these are all...reactions1comment
What 3 Factors Worsen Your MG?What 3 factors worsen your myasthenia gravis (MG)? I bet we can all answer that question. Here are my 3: fatigue, infection, and stress. When I get very tired, I...reactions10comments