Finding a Doctor Who Understands MGThere is a need for better disease management for myasthenia gravis (MG). According to a 2022 report, people with MG had the same number of symptoms after treatment as they...Reactions0reactionsComments26 comments
What Happened to My Face?Years before I was diagnosed with myasthenia gravis (MG), there were times when the left side of my face just seemed to sag way down. For the most part, I'm...Reactions0reactionsComments6 comments
Myths and Facts About SteroidsCorticosteroids, commonly referred to as "steroids," are a class of drugs used to treat a variety of medical conditions. There are many myths and misunderstandings about steroids, which can lead...Reactions0reactionsComments0 comments
Coping with Stress When You Have MGThe last few years, I’ve been under a lot of stress. As with anyone, even when we’re happy and feel stress-free, stress is always near. However, there have been several...Reactions0reactionsComments1 comments
Should I Wear a Medical Alert Bracelet for MG?Myasthenia gravis (MG) is a condition in which the immune system attacks healthy cells in places where the nerves connect to the muscles. Symptoms of MG can change on a...Reactions0reactionsComments7 comments
Myasthenia Gravis Does Not Stop Us From Making MemoriesSince my myasthenia gravis (MG) diagnosis, I have endured my hands going weak when I use them intensely. I have been on the road towards remission since my diagnosis. Yet...Reactions0reactionsComments3 comments
Getting a Second OpinionA diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your diagnosis. You may also be curious about your treatment options...Reactions0reactionsComments4 comments
The Longest Day: Single Fiber Electromyography TestingWe'll admit it now. We put it off. The definitive test that would have helped my hubby's team close in on a diagnosis of seronegative myasthenia gravis was put off way...Reactions0reactionsComments2 comments
How Pets Add Value to My Life with MGOnce my medication controlled my myasthenia gravis (MG), I started doing pretty well. However, over the past 4 years, MG and my emotions have been challenging. During this time, my...Reactions0reactionsComments6 comments
Getting a Colonoscopy When You Have Myasthenia GravisI know everybody loves to get colonoscopy! I just recently had my third colonoscopy, but it was the first one after being officially diagnosed with myasthenia gravis (MG). Although I...Reactions0reactionsComments8 comments
Unique Struggles of a Young Adult With Myasthenia GravisMyasthenia gravis (MG) symptoms can begin at any age, most often beginning for females before they reach the age of 40. Anyone who has had MG as a young adult...Reactions0reactionsComments0 comments
What Does It Mean to Be a Rare Disease?Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are reading this now. You are not alone if you are...Reactions0reactionsComments0 comments
Myasthenia Gravis and Differential DiagnosisMyasthenia gravis (MG) is an autoimmune condition. This means it is caused by the immune system attacking the body mistakenly. The symptoms of MG can sometimes look like other conditions...Reactions0reactionsComments7 comments
High Altitude Effects on the Body When You Have MGMy husband and I love Colorado! When we lived in Greeley and Westminster, we would take many day trips into the Rocky Mountains, going west on I-70 or north of...Reactions0reactionsComments6 comments
Community Views: Having a ThymectomyOne treatment for myasthenia gravis (MG) is a thymectomy. A thymectomy is a surgery on your chest. The surgery removes the thymus gland, which is near the heart. For many...Reactions0reactionsComments7 comments
The Unusual Night with Myasthenia GravisIt's nothing new for me to go to bed around 8:30 PM. I'm not usually tired at that time, the problem is I no longer have any core body strength...Reactions0reactionsComments3 comments
Issues That Made Me Despise My Power WheelchairI really despise my power wheelchair. I have not liked it since the day it was delivered! I am in a power chair because of myasthenia gravis (MG) weakness and...Reactions0reactionsComments2 comments
What Is Medical Gaslighting?If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical gaslighting can happen to anyone, but it most...Reactions0reactionsComments9 comments
Relationships, Intimacy, and MGMyasthenia gravis (MG) is a rare disease, a chronic condition, and often misunderstood. Coping with any one of those factors alone could place a strain on relationships, let alone managing...Reactions0reactionsComments6 comments
MG Has Changed My Perspective on YogaI didn't do yoga, let alone try it, before I started having myasthenia gravis (MG) symptoms. I imagined yoga as a long stretching session, something I was already doing. Typically...Reactions0reactionsComments8 comments