Let Me ExplainOne of the hardest parts of living with a rare disease are those awkward explanations. Myasthenia gravis (MG) doesn’t always come with a limp or a rash. It sometimes comes...Reactions0reactionsComments4 comments
Coping with Muscle Spasms and Cramping in MGMuscle weakness is the hallmark of myasthenia gravis (MG). However, at Myasthenia-Gravis.com, community members often discuss a variety of symptoms they have experienced since diagnosis, including muscle spasms and cramping...Reactions0reactionsComments58 comments
My First Pregnancy with an MG DiagnosisI’m 9 months pregnant and about to have our third baby any day. Although my symptoms with myasthenia gravis (MG) started presenting during my second pregnancy (more than 10 years...Reactions0reactionsComments0 comments
Community Views: Shifting Perspectives After an MG DiagnosisA myasthenia gravis (MG) diagnosis can change many things in your life. Energy, activity level, pain, and stamina can shift daily. Your outlook on life can shift as well. Members...Reactions0reactionsComments0 comments
How Do I Make My Outdoor Space Power Chair-Friendly?I don’t let myasthenia gravis (MG) stop me from being outside and enjoying the things I love. But how do I make that happen when I’m in a power chair?...Reactions0reactionsComments0 comments
What MG Muscle Weakness Feels LikeMyasthenia gravis (MG) is an autoimmune disease that causes muscle weakness. But what exactly does muscle weakness feel like? To understand more, we took the opportunity to ask our Patient...Reactions0reactionsComments34 comments
CellCept From My StandpointI have been on CellCept® (mycophenolate mofetil) for 2 and a half years since my myasthenia gravis (MG) diagnosis. I am sharing my experience to benefit others interested in learning...Reactions0reactionsComments11 comments
Steps Towards Making the Bedroom MG-FriendlyMany myasthenia gravis (MG) sufferers complain of insomnia or difficulty sleeping. For a while after my diagnosis, I had several MG symptoms, 1 of which was difficulty breathing, especially if...Reactions0reactionsComments2 comments
Keep Calm and Spoon OnHave you ever heard of the term "spoonie?" If you know what a spoonie is, then there is a good chance you may consider yourself a spoonie or relate to...Reactions0reactionsComments0 comments
The Hardest Thing for Me with Myasthenia GravisLet me be clear: There are so many hard things about myasthenia gravis (MG). There is the fatigue, chewing and swallowing issues, breathing difficulty, and vision problems, just to name...Reactions0reactionsComments7 comments
5 Things I Wish I Knew When I Was Diagnosed with MGThis year marks 10 years since myasthenia gravis (MG) began for me. My official 10 year anniversary of living with this disease. Looking back, I had so many thoughts running...Reactions0reactionsComments37 comments
Conquering My Fear of Swimming After DiagnosisThe first time I went swimming after my myasthenia gravis (MG) diagnosis, I was very anxious. For those who haven’t experienced the ugly symptoms that come with MG, such as...Reactions0reactionsComments10 comments
Flying with Incontinence: Going Through Airport SecurityI've flown a few times, and maybe a dozen times before having problems with myasthenia gravis (MG) and incontinence. As we all know, the security check at airports is not...Reactions0reactionsComments2 comments
What Are Prism Glasses and Can They Help People With Myasthenia Gravis?Weakness of the muscles that control eye movement often causes the first symptoms of myasthenia gravis (MG). While there are therapies available to treat MG, prism glasses are not usually...Reactions0reactionsComments30 comments
Getting Back to a Semi-Normal Life with Myasthenia GravisIt has been a long road these last 3 years with myasthenia gravis. In just the blink of an eye, I have gone from doing whatever I wanted, when I...Reactions0reactionsComments0 comments
Myasthenia Gravis and Reducing My Mestinon DosageWe’ve just passed the 2 year anniversary of my thymectomy, and the results I've seen continue to impress. I'm currently on the lowest dose of Mestinon since I started treatment...Reactions0reactionsComments18 comments
Don’t Waste Energy Stressing Over Things That Didn’t Work in Your FavorDuring a recent paddleboarding outing, my boyfriend and I were returning to the boat ramp, only minutes away, when I hit a rapid current that sent me back some 50...Reactions0reactionsComments0 comments
Not Ready for SummerNow don't get me wrong, I love summer. Well ... I used to love summer! But the longer I live with myasthenia gravis (MG), the more heat bothers me. Whether...Reactions0reactionsComments11 comments
Box Breathing and How It Helps With StressOur lives are filled with family obligations, work and school responsibilities, healthcare appointments, and busy schedules. Stress is a normal part of life. But sometimes, stress can get out of...Reactions0reactionsComments7 comments
My Youngest Grandson's Opinion About My MGOur grandsons were over visiting and they were asking to go outside. What they really wanted to do was ride the dirt bike. They know another adult has to be...Reactions0reactionsComments3 comments