Is There Hope with Myasthenia Gravis?For the years leading up to this myasthenia gravis (MG) flare, I worked 40 to 60 hours or more a week. I was going full steam every day. I'm not...Reactions0reactionsComments1 comments
The Anxiety That Comes with an MG DiagnosisAnxiety on its own can be debilitating. It’s a completely separate and individual diagnosis that many people struggle with. What I didn’t expect when I was initially diagnosed with myasthenia...Reactions0reactionsComments2 comments
What Activities Increase Your MG Muscle Weakness?Myasthenia gravis (MG) is often referred to as the "snowflake disease" because symptoms and severity can vary from person to person. With MG, everyone's condition can look a little different...Reactions0reactionsComments0 comments
When Another Health Crisis Hits with MGA few months ago, I had a medical emergency. My heart was failing and I was unable to function. Looking back at this particular event, my symptoms may have started...Reactions0reactionsComments0 comments
Transsternal Thymectomy Recovery: Tips, Advice, and What to ExpectA little over a year ago, I had a transsternal thymectomy. In this article I will share tips and advice I learned while recovering from surgery. If all goes smoothly...Reactions0reactionsComments19 comments
My MG WishlistIf you have myasthenia gravis (MG), you know how much stuff you miss out on in life. Although I have heard of a few people who have gone on to...Reactions0reactionsComments1 comments
Those Commercials!With a condition like myasthenia gravis (MG), it’s easy to become glued to a recliner and watch way too much television. But it doesn’t even require a condition to develop...Reactions0reactionsComments0 comments
Every Season with Myasthenia GravisWhere I live there are 4 very distinct seasons! I truly do like all 4 seasons. Each has their own uniqueness about them. But for me, each one also creates...Reactions0reactionsComments4 comments
Overcoming a Fear of NeedlesHaving a fear of needles, also known as trypanophobia, is very common. The number of needles you are exposed while trying to receive a diagnosis of myasthenia gravis (MG) or...Reactions0reactionsComments1 comments
Living with Multiple DiagnosesYou would think that having a rare, chronic illness would be enough, but most of us have found that when there is 1, there is often 2 ... or 3...Reactions0reactionsComments20 comments
What to Eat and Avoid with MG DysphagiaWhile I was in the hospital being tested for myasthenia gravis (MG), I developed a symptom no one wants - the inability to swallow, or dysphagia. It came out of...Reactions0reactionsComments5 comments
The Fun Thing About Life: How I Find Humor in MGThere is nothing fun about having myasthenia gravis (MG). It has a lot of ups and downs and twists and turns. You never know from one second to the next what...Reactions0reactionsComments12 comments
Is It the Heat or the Humidity?Don't get me wrong, I know the heat bothers me with myasthenia gravis (MG). But my husband and I have been paying very close attention to the humidity and pressure...Reactions0reactionsComments0 comments
Preparing for and Managing MG Muscle WeaknessA myasthenia gravis (MG) trigger is anything that makes MG symptoms worse. Everyone's triggers can be different, but understanding what worsens your MG can help you manage your condition. We...Reactions0reactionsComments6 comments
A Trip to the Emergency Room with Breathing DifficultySeveral months ago I called my dedicated nurse, Diane, who was assigned to me by my insurance company to help with my myasthenia gravis (MG). I don't know about you...Reactions0reactionsComments1 comments
Feeling Left in the Dust When MG Prevents Us from Joining Our PartnerMyasthenia gravis (MG), the ultimate buzzkill, may have you feeling left in the dust when symptoms leave you unable to tag along with your partner to everything. It can leave...Reactions0reactionsComments0 comments
Compromised Mobility and Hotel Emergency EvacuationWhen we’re traveling, we often stay in a hotel. Since I have myasthenia gravis (MG) with limited mobility, I research everything I question. I have gained a lot of knowledge...Reactions0reactionsComments0 comments
Keeping Your Medical Records OrganizedKeeping track of your medical records is essential for your health, especially when you, your child, or your loved one has myasthenia gravis. With organized medical records, you can track...Reactions0reactionsComments0 comments
Unpredictable Fatigue with Myasthenia GravisOne of the hardest parts of dealing with myasthenia gravis (MG) is fatigue. Especially never knowing when it's going to hit or not knowing how long that fatigue is going...Reactions0reactionsComments22 comments
Let Me ExplainOne of the hardest parts of living with a rare disease are those awkward explanations. Myasthenia gravis (MG) doesn’t always come with a limp or a rash. It sometimes comes...Reactions0reactionsComments4 comments