Brain Fog
I am 6 months into my MG diagnosis. Right now doing OK with Pyridostigmine. Lately, I have been having trouble with brain fog & short term memory loss. I asked my neurologist about what could be done and he said there is no relationship between MG and brain fog. I would be interested in other's experiences, including: treatment, symptoms, and or results. Thank You! https://myasthenia-gravis.com/clinical/brain-fog
What side effects can this medication cause?
Pyridostigmine may cause side effects. Tell your doctor if any of these symptoms are severe or do not go away:
upset stomach
diarrhea
vomiting
drooling
pale skin
cold sweats
blurred vision
watery eyes
increased urge to urinate
anxiousness and feelings of panic
muscle weakness
Some side effects can be serious. If you experience any of the following symptoms, call your doctor immediately:
severe itching, skin rash, or hives
slurred speech
confusion
seizures
difficulty breathingYes
Hi
, we appreciate you taking the time to share. As you can see you are not alone in experiencing this. Have you tried anything to help relieve the brain fog or brought this up to your physician? Kindly, Jessica (Team Member)
My breathing was horrible. I am seronegative mg which is very hard to diagnose. Long story a neurologist thought I had it thought I don't . My primary put me on mestiton which the lowest dose I saw improvement. My pulmonologist had a scan of my thymus done which showed it had a cyst on it.
I got it removed even though I was 61 yrs old. I had my chest cut open to get it out robotics does not always get it all. The day I got out of hospital I could breathe again. Now a yr and half later I have seen 85% improvement. Heat weather or over doing it still causes me to flarethey found out I have PAI 1 a genetic blood disorder my blood does not break down right: I have fatty liver with a lesion. I have medobolic syndrome also. Some type of arthritis poly??? The good news I ain't dead yet
ROFL.I send much compassion and good vibes your way! -Jodi, Team Member
I don't have brain fog per-se but my memory is terrible since MG, only 5 months ago. Mostly short term memory; cannot remember names of anything, never been this bad and scare of Alzheimer! Probably lack of acetylcholine, so important for brain.
Hi Jodi, I'm doing fine except for usual bladder/ memory issues. I was thinking, I had a crisis in March soon after my diagnosis, follow with "severe hypoxic respiratory failure", it probably damage something, like the memory; we don't want to go into respiratory failure. I still feel fortunate that my main issue is my left eye and it's much better; I can walk, drive and go to the gym. Thank you for checking on me. Unfortunately, bladder and memory issues are common problems for many with MG. However, the cause of this needs to be researched more. A lot of people experience bladder problems while on MG treatments such as mestinon. However, the brain fog and memory issues seem to be more attributed to MG in general based off of the amount of people with MG who experience it. A lot of people, including myself, specifically suffer from short-term memory. Here are two scientific studies I think you will be interested in: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8640249/ & https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4445185/. Stay strong, and keep focusing on the positive progress you're making. Best wishes 😀
Jodi, Team Member
