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Cellcept

I'm on 50 mg of prednisone plus 240 mg of mestinon daily. The prednisone is awful. Ive gained weight and i have the worse case of moon face ever. Can't even recognize myself in a mirror. My neurologist is thinking about putting me on cellcept in the future
Has anyone had experiences with cellcept? Thank you for your time. Judy

  1. I was also on 50mg for months. It’s a great drug in that it “fixes” the problem but I was unrecognizable. I am now on vyvgart and Cellcept. I’m doing alright but I can’t get the weight off that I gained with prednisone. I’m 77 years old, so I can’t hope to get a whole lot better. I had two very major back surgeries within 10 months and am trying to recover from that. Cellcept takes a few months to start working so you may be on prednisone for awhile yet. Hang in there! You aren’t alone in the struggle to keep this disease in check

  2. Hi Judy, I'm sorry to hear about the challenges you've been facing with prednisone. I'm sure it's been really frustrating, especially not being able to recognize yourself. Hopefully, community members will chime in with their experiences but in the meantime, here's a few resources that we have on CellCept.
    https://myasthenia-gravis.com/living/cellcept-review
    https://myasthenia-gravis.com/living/taking-cellcept
    https://myasthenia-gravis.com/living/cellcept-basics
    https://myasthenia-gravis.com/forums/ive-bee-n-prescribed-cellcept
    Please let us know if you have any questions or would like some additional resources. Best, Allison (Team Member)

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