Difficulty swallowing while sleeping
I have difficulty every night swallowing phlegm approx 4 hours every night after I have fallen asleep. I wake up, drink a lot of water and go back to sleep.
I sleep on an incline (and I’ve tried not sleeping on an incline). I take my meds (Mestinon, prednisone and a new one with a name that starts with an ‘a’).
Has anyone else experienced this problem?
Are you keeping a daily log of symptoms? might help. Is the 90mg the fast acting mestinon? That only lasts 3-4hrs so if this is happening far from dose might not hurt to try the long acting right at bed time. Also if she thinks is reflux did she recommend anything? I was told the same thing, but sleep study showed problems.Have you had a sleep study?
Frustrating isn't it? Both as a nurse and a patient, keep a log of symptoms and much as I hate the saying "we must be our own advocate" it is true.I’m having a sleep apnea test done in a couple weeks. As for a ‘normal’ sleep study-no. What problems did yours show?
I’ve been advocating insanely. I’m trying to keep my GP, neurologist, and my sciatica drs all organized and informed.
Any other advice? It would be so nice to be able to breath thru the night.
Good morning. Sleep study and one for apnea are the same thing. Mine didn't show full apnea but ineffective breathing and Oxygen dropping into the 70's!!, was put on oxygen after the first one by nasal prongs as pulm said no apnea and muscles had nothing to do with it( roll eyes)
When kept getting worse had a second one to set the bipap settings. went back to sleep med this time MD not NP at my insistense.Then was oxygen with bipap , finally got mestinon and then pulm rehab consult and improved PFT 10%, had another all night oximetry ( think pulse ox with recording box, done at home) this time held in the highs 80's so off oxygen at demand of insurance.
Have appt with NMD and pulm rehab doc in March. I have been through 7 neuros, 4 pulmonologists. Thankfully they have all been on EPIC computer system and it communicates fully with the specialists in Chicago so everyone can see all results and notes. Still means I have to make them read stuff and communicate before making changes.
Let me know how the sleep study goes.
cheryl
Are you on 60 mg or 180mg Mestinon? Have you talked to your MD about this? I had similar distress but also had trouble breathing, on bipap to rest diaphragm and long acting mestinon which has helped a lot. I don't think many doctors understand the distress of night waking feeling breathless and choking but still need to tell them as many times as it takes to get help. Good luck
Thanks for your reply. I was beginning to think I was the only one experiencing this.
I’m on 90 mg Mestinon 4/day.
Saw my neurologist today for checkup. He is decreasing my prednisone very very slowly and says I may find a difference.
Also saw my respiratory specialist today and she feels it’s acid reflux.
So…….???
